Neurological conditions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

I'm worried about not being taken seriously because I might have a high pain threshold

tootlesweetietootlesweetie Member Posts: 6 Listener
edited February 5 in Neurological conditions
Hi I have a spinal cyst.

I'm uncertain about whether I have a high pain threshold or not. And it scares me when doctors don't take me seriously with stating it's in my head. Having been extremely Ill because of this. 
(¯´•._.• each to their own •._.•´¯(

Replies

  • woodbinewoodbine Community Co-Production Group Posts: 4,498 Disability Gamechanger
    hi @tootlesweetie welcome to scope, good to meet you.
    Have you considered asking your GP to refer you to the local pain clinic?
    "Putting a child into care, isn't caring for a child" (T.Rhattigan)
  • chiariedschiarieds Community Co-Production Group Posts: 9,181 Disability Gamechanger
    Hi @tootlesweetie - & welcome to the community. I'm sorry you're in pain, & not being taken seriously. I think it's very difficult to know whether we have a high pain threshold or not, but reported pain, is pain full stop.
    Presumably your spinal cyst was found with an MRI. Sometimes they don't cause any problems, & sometimes they do. Is there another GP at your local surgery that you might contact? I would suggest this first to see what advice they can offer. All pain should be looked into, & the patient helped as much as possible, & many are helped by pain clinics as mentioned above.
  • tootlesweetietootlesweetie Member Posts: 6 Listener
    Thank you. For such a warm welcome. I have been going in circles from gp, to specialist, to out of hours. I have a bag logged of issues. Now had a new gp who literally said it's in my head again. Giving me a link to excepting my pain. I am not getting things explained to me. And I am traumatised by the length of time it has taken me to be heard. Including a bowel perforation. And delayed operations taking years even when they show I have extremely large gallstones. They literally are repeatedly nonchalant about me asking. Things did go wrong.
    (¯´•._.• each to their own •._.•´¯(
  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    Hi and welcome from me too 

    Sorry you are not being taken seriously by your gp and health services 

    Have you thought of looking into alternative therapies like acupuncture or hypnosis just a thought 
  • tootlesweetietootlesweetie Member Posts: 6 Listener
    Janer1967 hi,

    I have used hypnotherapy in the past which helped with neck problems and stiffness. I would definitely recommend it. Plus you can self hypnotised.
    (¯´•._.• each to their own •._.•´¯(
  • Sparklebright63Sparklebright63 Member Posts: 41 Listener
    Hi to all

    I have a High pain threshold I get servre paid level 10 when I have lots of problems I've been to the pain clinic and they discharged me as they said they couldn't do anything else for me.
    I am now under phyiso and will be having walking sticks and and increased medication.


    Spsrklenright63.
  • mikehughescqmikehughescq Member Posts: 6,621 Disability Gamechanger
    I also have a high pain threshold but two issues here:

    1 - diagnosis. You don’t appear to know if you have a high pain threshold. There are clear paths to getting this tested so start asking about that specifically. It is the only way you will ever know whether stuff is real or in your head.

    2 - benefits. Great case law recently on how lack of meds cannot be taken to indicate lack of pain etc. so at this stage I wouldn’t worry about that. You don’t need a diagnosis for benefits but you do need to convince people that your symptoms are real so you really need to get to grips with 1.
  • OverlyAnxiousOverlyAnxious Member Posts: 1,438 Disability Gamechanger
    Isn't that a low pain threshold?  As in, it doesn't take much pain to pass your 'acceptable' threshold?

    I'm extremely sensitive to touch & pain and is one of the reasons that I'm unable to have any physical treatment.  But I've been calling that a 'low' pain threshold.  Have I been asking for more pain?  :#
  • tootlesweetietootlesweetie Member Posts: 6 Listener
    I think it's high tolerance to pain for me. I do feel pain. What I experience with gallbladder pain I was walking around when I have known others with same condition were floored by it. Even perforated my bowel. I literally wasn't in enough pain to get taken seriously. My pain was partly displayed by other symptoms such as sweating. Losing control of bladder. And distress at not being taken seriously has put me through the mill and turn my world upside down. And I'm still dealing with the repercussions every time I seek medical help.

    Thank you for your understanding:-)

    OverlyAnxious said:
    Isn't that a low pain threshold?  As in, it doesn't take much pain to pass your 'acceptable' threshold?

    I'm extremely sensitive to touch & pain and is one of the reasons that I'm unable to have any physical treatment.  But I've been calling that a 'low' pain threshold.  Have I been asking for more pain?  :#

    (¯´•._.• each to their own •._.•´¯(
  • Wini1960Wini1960 Member Posts: 129 Pioneering
    Hi tootlesweetie its not helpful when your GP doesn't care about your medical needs. They are their to serve you, its their job. If people were not sick they would not have a job. I would say ask to be referred to a pain clinic but be aware the list is long. I have degenerative lumbar spine and sacrilitus and before our present circumstances i had one lesson with a private physiotherapist. Not that the NHS is no good, but even the NHS is six weeks between appointments. I do wish you well in getting the help you need🙂👍
  • tootlesweetietootlesweetie Member Posts: 6 Listener
    Thank you everyone <3  :blush: sorry I hadn't responded sooner. My services have been very slow since xmas. 

    I will try all your suggestions.. this doctor just triggered and brought back everything I have had to fight for. I'm really struggling with the fear of not being heard. I'm also struggling to breath which I need to get to the bottom of. It could all be down to the cyst pressing on spine. I suppose it's a process. Just scary not to feel acute pain like I should when it comes to my digestive system. 
    (¯´•._.• each to their own •._.•´¯(
  • Wini1960Wini1960 Member Posts: 129 Pioneering
    Hi tootlesweetie you are more than welcome🙂👍
  • mikehughescqmikehughescq Member Posts: 6,621 Disability Gamechanger
    Wini1960 said:
    Hi tootlesweetie its not helpful when your GP doesn't care about your medical needs. They are their to serve you, its their job. If people were not sick they would not have a job.
    A GP is not there to “serve you” at all. Far from it. Sometimes a GP is obliged to tell you truths you don’t want to hear; to refuse you access to meds and services you don’t need. I’ve never met a GP who doesn’t care about the medical needs of their patients either. They may have issues of their own; may have poor communication skills but not caring is I think something of a mis-reading. 

    Pain is significantly subjective and as such incredibly difficult to diagnose. Your 9 out of 10 may well be my 1 out of 10 and vice verse. Those things you think aren’t in your head are actually sometimes totally in your head. Whilst many many patients are undiagnosed and many misdiagnosed it can’t be assumed that such things automatically equate to medical incompetence. Sometimes things are just damn hard to get to the bottom of.
  • tootlesweetietootlesweetie Member Posts: 6 Listener
    I disagree. It is not correct to state GPs care. It's naive to believe that. They are health professionals. And they are the gateway to care.


    (¯´•._.• each to their own •._.•´¯(
  • mikehughescqmikehughescq Member Posts: 6,621 Disability Gamechanger
    Naive! Right. I’ve worked with healthcare professionals in a variety of capacities (theirs and mine) for decades. There are many criticisms I think can be validity made of both them; their processes and the structures they work within. Not caring is not one of them. Indeed I’ve just spent the day on Zoom with around 200 healthcare professionals. As ever I come away with many impressions and contradictions. Not caring ain’t one of them. 

    I suggest you read some of my other posts before you suggest my beliefs on the subject are naive. They may differ to yours but they’re certainly not grounded in anything resembling naivety. 

    I find it a genuinely offensive comment.
Sign in or join us to comment.