PIP, DLA and AA
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Benefit adviser said I won’t be accepted are they right?

pleasebekindpleasebekind Member Posts: 3 Listener
Sorry if this doesn’t make sense I keep crying so not talking properly.

I spoke to a benefit adviser and they said I won’t get pip because I have no evidence or help from doctor. Has the law changed? She said there is not point applying because I can’t evidence anything. 

But I was on PIP and DLA before for many years and never gave any information apart from my form.

 I was on PIP for mainly my mental health and it ended last year in February. I didn’t do the forms when they came because my friend used to help me but she passed away in 2019 before Christmas and I still was not thinking right as she was my only friend. 

I been on pip and before that DLA and always on high rate. I am finding it hard because my housing benefit and esa went down because I stopped getting pip so now I am thinking straight I want to try pip again. 

I emailed to a benefit help place but they won’t help me as they said I don’t have a chance to get awarded so would take away help from someone who needs it more. 

Is it right that you can not get awarded any more with out things from your doctor? I don’t think I even have a doctor. 

Replies

  • popsy79popsy79 Member Posts: 1 Listener
    I’m very sorry to hear about your plight and for the loss of your dear friend.

    I don’t know if the advisor is right, but she certainly hasn’t helped you with that answer!

    The following advice is from my own experience only, not a professional response.

    I am not an expert on benefits claims, but a cynical recipient of all the tricks and barriers to receiving the benefits to which, on paper, I am entitled. I have asked for, and received help from many quarters in order to achieve relief for the time being, but these awards always have an end date, unfortunately and I know that I shall continue to need the help of others to receive my entitlements as they expire. I have learned that navigating this system alone leads to failed claims, even when valid.

    I would advise you to contact MIND, who may be able to offer you some practical solutions.

    Also, if you were on PIP/DLA before now and your “disability” has not improved then you should be entitled to claim, in theory. Are you not in contact with a medical professional for your issues? Even from what the so-called advisor says, one can glean that being in touch with a medical professional who can attest to your mental state would certainly be a step in the right direction. Then, getting them to supply the full information required to the DWP, when the DWP ask for not enough evidence so that they can decline one’s claim and further delay it and demoralise one further so that one gives up prematurely is another story!

    Claiming benefits to which one is entitled in theory, when one is disadvantaged enough to need them is fraught with hurdles baked into the system where the Government only wants their cronies rather than the actual disadvantaged among us to extract tax pounds.  (IMHO)

    So, even with help from a GP, a psychologist/psychiatrist, MIND, benefits advisors it is still a hard struggle to achieve what should be a dignified existence in these times. But without help, it is almost impossible.

    Please see a GP and get referred to whomever you need to in order to establish the credibility of your claim regarding your health. Find a different benefits advisor who will point you towards the next steps along the way to forward your claim; help you to fill out the Byzantine forms, and ask for the supporting medical information to be supplied by whoever you need to do that for you.

    Good luck.


  • [Deleted User][Deleted User] Posts: 1,651 Listener
    Sorry, but this benefits advisor sounds like a bit of a numpty and that's being kind... 

  • janer1967janer1967 Member Posts: 9,159 Disability Gamechanger
    Hi and welcome 

    I'm sorry but I dont agree with the benefit advisor 

    Many people can get PIP without sending evidence 

    You may  need help filling in the form for your best chance and there is lots if advice on here in PIP section 

    The best evidence is your own detailed account of how your condition affects your daily life and mobility giving real examples 

    You do normally put your ho and doecisludt details on your application so they can be contacted and if needed DWP will send them form yo complete 

    By not having a gp I presume you dont take any medication or see any medical teams which can sometimes go against your claim but I'm not saying it means you cant apply 

    Have good look on here in the benefits section especially at the descriptors 
  • woodbinewoodbine Member Posts: 3,749 Disability Gamechanger
    hi @pleasebekind and welcome to scope, hope you are ok this afternoon.
    @ from their elbow.
    You don't have to present evidence with your claim, and they rarely if ever contact your GP.
    Was the "advisor" from CAB? I would recommend trying welfare rights if you haven't already.
    You can also include a letter from someone who knows you and your problems with the claim form.
    Good luck
    my advice is given freely and is correct to the best of my knowledge.
  • calcotticalcotti Member Posts: 1,188 Pioneering
    Lots of useful information here too Personal Independence Payment - Citizens Advice
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • chiariedschiarieds Member Posts: 7,968 Disability Gamechanger
    edited February 4
    Hi @pleasebekind - & welcome to this friendly & supportive community. I'm sorry that you received such poor 'advice.' Medical evidence is not needed when claiming PIP. If I remember correctly, it has been mentioned on this forum, that about half successful PIP claims have no medical evidence whatsoever.
    On a personal note, I had very little medical evidence, just a letter from my GP (which he offered to do), which I thought may be helpful as he could see some of my physical problems, & poor mobility. Did that help, I don't know?
    As mentioned above, it's how your disability affects you; your own individual replies on your PIP claim form that carry more weight. Again, as above, a supportive letter from someone who knows you well may also help your claim.
    Check with Advicelocal as woodbine suggests, to see if there's someone from Welfare rights who may be better able to help you. Please see: https://advicelocal.uk/
    If you have any questions at any time, please do ask, as there's usually someone here who can help/advise.

  • BrettWBrettW Member Posts: 607 Pioneering
    Hi @pleasebekind I didn't send any medical evidence at all with my claim and have been awarded PIP. 

    To be fair evidence from a Dr wont carry much weight anyway unless it is directly related to how your disability affects you in your everyday life which most Dr's won't be privvy to anyway.

    Do what has been advised above and contact one of the agencies suggested and they will put you in touch with someone who can help you with your claim.

    Whoever you spoke to before has given you bad advice - you do not need the help of your doctor to successfully claim PIP
  • mikehughescqmikehughescq Member Posts: 5,980 Disability Gamechanger
    edited February 4
    I don’t know what is meant by a “benefits adviser”. I would normally associate the phrase with the administration of benefits rather than a welfare rights adviser who would be on the other side of that particular fence. 

    Either way, I’m going to tread cautiously. 

    Firstly, my view always has been that medical evidence is rarely needed to support a PIP claim. However, there are some caveats to that. It almost certainly will be required if something pivotal is disputed e.g. if a diagnosis or prognosis is disputed or symptoms are reported outside of the normal range of what would be expected with a specific condition. 

    It will also almost certainly be needed where a claimant lacks insight into their condition e.g. someone with a learning disability or some forms of mental ill health. 

    You haven’t said what your particular issues are in any detail (I’m not asking) but the question of whether medical evidence is needed is slightly more nuanced than a black and white yes or no. No-one, regardless of their expertise can say for certain that the adviser was wrong without knowing more about your circumstances and more about why the adviser might have said what they said. The adviser will have said what they said based on far more information than we have here. I think benefit of the doubt on that basis. 

    Secondly, for clarity, no it is absolutely not true that a claim cannot succeed without input or evidence from a GP. However, there may circumstances specific to you where the advice that a claim cannot succeed may be true. 

    It is true, as stated above, that around 52% of disability benefit claims succeed without medical evidence and its not clear what firm that evidence takes for the other 48%. 

    Finally, you appear to have an adviser. If you’re not sure why they said what they said then go talk to them and ask them outright. Most advisers will be more than happy to talk shop given the opportunity and to explain their perspective in depth. If you feel unable to do that then they’re probably not the right adviser for you. However, a forum ought not to be the next stop. You simply need a second opinion from a different expert adviser. 

    So, no, not necessarily bad advice but certainly something to clarify. 
  • pleasebekindpleasebekind Member Posts: 3 Listener
    I’m not sure how to reply to individual people so please accept my apology if I am doing this wrong. 

    I don’t know if I’m allowed to say but the person I had help from is from citizen advice is that the wrong place? Please tell me if I can’t say the company here.

    I have BPD, Tourettes, social anxiety disorder and agoraphobia. I also have a disfigurement and scarring which I know isn’t a disability but it does impact me. 

    I haven’t left my home in maybe 15 years and my dear friend is the only person I’ve seen in that time but I can’t see her any more now she’s gone. 

    I did use to have doctors and a therapist and counsellor and CPN would come to the house a few times a week but it was making things harder so I stopped seeing them. My friend was the only person in a long time, she used to come and cook for me and remind me to wash and find me clean clothes.

    I think it sounds like I won’t be able to claim as I have no one to write a letter for me, I don’t see doctors any more and I was only diagnosed a long long time ago. I do sometimes refer myself for counselling but then it comes to them calling to do an assessment and I get scared so I don’t answer and they discharge me again. 

    I’m not really good at confrontation so I didn’t want to ask her any more questions when it was clear she didn’t think I can be accepted and that she couldn’t help me. 

    I don’t know what to do now I don’t want to keep bothering people to help me. Can I do the forms without help and just try to write it myself, or do you need to have help? 
  • janer1967janer1967 Member Posts: 9,159 Disability Gamechanger
    @pleasebekind

    Of course you can do the forms yourself I did mine in my own .

    We only advise getting help to give you the best chance 

    You need to ring PIP to start the application and they will send out forms.  You dont have to send a letter from someone these are all just recommendations to help also the assessments are being done over the phone so you might feel this is better than f2f 

    To reply to someone all you do is put @ before their username like I have done at top of this reply but that will just appear on the post you are replying to 

    You can personal message someone once you have made 25 posts 



  • mikehughescqmikehughescq Member Posts: 5,980 Disability Gamechanger
    Having read that I think I can be much more forthright. You have a winnable case for PIP and you should go for it. Every absence of medical evidence or intervention is explainable and that’s what you will need to do. Nothing to stop you doing the forks yourself but perhaps have a look around for another adviser to help with the forms. It won’t be straightforward but done properly it can be done. 
  • calcotticalcotti Member Posts: 1,188 Pioneering
    Do you know if the person you saw at Citizens Advice was a specialist Benefits advisor or one of the general advisers. The general advisers are volunteers and although they are trained they have to cover every possible query so their experience is variable.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • pleasebekindpleasebekind Member Posts: 3 Listener
    Thank you all you are so nice it has made me cry again. 


    Is it possible to get the forms without me calling? It will take me a long time to build up to calling and then I may feel different and it will be too late to claim if I’m not in my right mind, because sometimes I go into denial or just different. 

    @mikehughescq do I ask citizens advice for a different person or look somewhere else? I don’t want them to think I am rude and I would have to email the person who emailed me and ask for someone else, that would be very rude and uncomfortable I think. I’m not sure I can do that. Is it okay to ask again for advice from a different place or am I better to stay with one? 

    @calcotti I didn’t know there was a difference, maybe that is there I messed everything up. I looked and their message says volunteer at the end after their name so is that not the right one? 
  • mikehughescqmikehughescq Member Posts: 5,980 Disability Gamechanger
    edited February 4
    calcotti said:
    Do you know if the person you saw at Citizens Advice was a specialist Benefits advisor or one of the general advisers. The general advisers are volunteers and although they are trained they have to cover every possible query so their experience is variable.

    I can’t see that it makes any difference at this point who advised. Advice can be unsuitable for many reasons. Unfortunately the above statements are themselves misleading. 

    Funding varies on a per bureau and area basis. Some bureaux have paid generalists and volunteer specialists and always have. It varies hugely. 

    It’s also speculation that generalist means less experienced than specialist. It isn’t a sector with especially great pay and whereas the minimum requirement to become a WRO used to be 2 years FTE experience that has long since gone and specialists can be less experienced than their generalists colleagues in terms of length of service. breadth of knowledge and many other factors.

    Finally generalist advisers are not trained to “cover every possible query” and nor would that in itself explain their experience. They are trained on some very basic competencies across 15 areas of advice and then trained how to use the information system. 
  • mikehughescqmikehughescq Member Posts: 5,980 Disability Gamechanger

    @mikehughescq do I ask citizens advice for a different person or look somewhere else? I don’t want them to think I am rude and I would have to email the person who emailed me and ask for someone else, that would be very rude and uncomfortable I think. I’m not sure I can do that. Is it okay to ask again for advice from a different place or am I better to stay with one? 
    That is entirely your call. Some people are assertive and may go back, complain and ask for another adviser. Some people will feel the need to look elsewhere. The only answer is whatever the right answer is for you. 

    I don’t see why you’d need to go back through the same adviser to request another though. There will usually be a generic number and a generic email address. I certainly wouldn’t worry about their perception of you. Advice agencies provide a service. You have the right to ask for a different adviser. They can only say no. 
  • chiariedschiarieds Member Posts: 7,968 Disability Gamechanger

    Claim by post

    You can get a form to send information by post (although this can delay the decision on your claim). Write a letter to ask for the form.

    Personal Independence Payment New Claims
    Post Handling Site B
    Wolverhampton
    WV99 1AH
  • janer1967janer1967 Member Posts: 9,159 Disability Gamechanger
    @pleasebekind see above re your query about other ways to apply 

    Also you may want to think about the assessment as they are usually phone assessments 
    You can request paper based but these are rare and need a strong case put forward if that is all the information they have to base their decision 
  • calcotticalcotti Member Posts: 1,188 Pioneering
    edited February 5
    @calcotti I didn’t know there was a difference, maybe that is there I messed everything up. I looked and their message says volunteer at the end after their name so is that not the right one? 
    You didn’t mess anything up. You sought advice from where you could get it. Citizens Advice do an excellent job but is largely staffed by volunteers and they don’t always get it right. As Mike points out even dedicated benefits advisers will have different levels of experience,

    (Mike - I agree ‘every possible query’ was badly phrased and consequently misleading, I should have said a wide range of queries.)
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • Cher_ScopeCher_Scope Posts: 3,352

    Scope community team

    Hello @pleasebekind and welcome to our online community.  

    I'm so glad our members have been able to offer advice and comfort.  I'm going to send you an email to see if there's anything more we can do to help with your current situation, so please look out for something landing in your inbox :)  

    Best wishes and I hope you have a great Friday.  
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Cher_ScopeCher_Scope Posts: 3,352

    Scope community team

    @pleasebekind Unfortunately I'm having trouble sending you an email as it keeps getting bounced back.  I'll leave the main points below and please email us at [email protected] if you want to talk more privately :)

    I’m really sorry to hear about the loss of your friend - it must have been a big loss and I hope you are keeping okay.  Do you think you’d benefit from additional support with your grief?  MIND have a great webpage full of resources to help with bereavement and it might offer you some comfort.  While we’d recommend getting in touch with your GP if things ever feel too much.

    You mentioned that you don’t have contact with anyone and I wondered if we could help by beginning a referral for a social care needs assessment for you.  There’s absolutely no pressure to do this so please don’t worry.  But if it was something you might be interested in, we’d love to help.  Here’s a NHS webpage with more information about the needs assessment and if you were happy for us to proceed we’d just need a few details such as your full name, address, date of birth and a contact number.  We completely understand if you’d prefer not to, however, please do let us know if you are coping okay getting food etc.  
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Hello @pleasebekind

    How have you been getting on?
    Online Community Coordinator

    Find out more about, and apply for, the Community Co-production Group.

    Want to tell us about your experience on the community? Talk to our chatbot and let us know.
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