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Hi, my name is mxmxm! I'm feeling quite isolated by pain and lack of mobility
Hello. Thank you for accepting me. Am feeling quite isolated by pain and lack of mobility. Fibromyalgia, sciatica, chronic fatigue and recently diagnosed coeliac disease.
Now, with only my second MRI scan in 20 years, there is cervical stenosis but I am being sent back to neurologist before being told anything else about it. I recognise the description when I looked it up; think it may be in lumbar region too (but they would only agreed to scan for neck so need to confirm).
No painkiller touches the pain involved and indeed my stomach cannot tolerate them; nor my nerves for some medications tried since fibromyalgia diagnosis in 2001. For decades I have been told that it was not physical pain but my responses to whatever stresses happen to be in my life at the time. At times I was told I wasn’t trying enough - and most recently that it was functional and sporadic - but there are no gaps between flares or episodes or crises.
I was made redundant due to capability last year after having collapsed at work the previous year and signed off. I was then and am still depressed. A recent bereavement of a close family member from a particularly sudden and aggressive cancer has hit me very hard too. I get much more anxious than I ever was and cannot take things in as I am always in pain - and lately, I have acknowledged the utter isolation of pain.
Can’t really use hands for this long without pain or get sentences right so needed to get this all down. Will be mostly reading posts from now on. I just wanted to say: thank you - good to be here. Having lived with chronic pain for many years, I want to learn as much as I can about how to deal with what comes next. Keep safe, mxmxm