Physical impairments and mobility issues
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Hi, I'm ladysusan25! I have lumbar, thoracic, and cervical stenosis. I'm struggling to stay positive

ladysusan25ladysusan25 Member Posts: 4 Listener
I have lumbar, thoracic and cervical stenosis and should have been operated on on 30th December 2020. Ian still waiting and can now only get around the house on crutches and outside in my mobility scooter.
I have numbness up to my waist and I just can't see any light at the end of the tunnel .

Replies

  • janer1967janer1967 Member Posts: 11,199 Disability Gamechanger
    Hi and welcome 

    Sorry for your issues have you any idea when your surgery will take place 

    I think lots of people are awaiting surgery me included for my eyes which I am now really struggling to see much 

    I think we need to understand the pressure NHS are under not much help but they need to prioritise life threatening cases 

    I hope you get sorted soon
  • Tori_ScopeTori_Scope Posts: 5,020

    Scope community team

    Welcome to the community @ladysusan25 :) 

    I'm sorry to hear that you're struggling to see a light at the end of the tunnel. I can imagine it must be difficult to stay positive when you're not sure on when you might be able to get your operation. 

    Have you spoken to your doctor about when you might be able to get your surgery? As Janer1967, many people's operations have been delayed unfortunately. They might be able to give you an update, or help you with pain management and mobility in the meantime.

    Are you struggling with your mental health at the moment? I'm concerned by your mention of not being able to see a light at the end of the tunnel. 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • ladysusan25ladysusan25 Member Posts: 4 Listener
    Hi, thanks for the reply. I am having what I call a "black cloud day" so, not really struggling with my mental health, just feeling a bit disillusioned.
    My GP is not very helpful or reachable..... Over 100 calls this morning with either ring outs or busy. 
    I have contacted PALS, maybe they'll get me some answers.
  • Tori_ScopeTori_Scope Posts: 5,020

    Scope community team

    I like the phrase 'black cloud day' @ladysusan25. I'm glad to hear you're not feeling too bad today.

    Goodness! 100 calls is a lot. I'm glad to hear you've contacted PALS. Are you able to transfer to a different GP surgery? 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • ladysusan25ladysusan25 Member Posts: 4 Listener
    Hi Tori, we live in a small town in the wilds of the Kent coast and the other GPs are in other towns. I have tried to sign with the one with the best rep, but we're out of their area. This may change as our gps may be closing soon.
    I'll keep soldiering on and hoping I can get it all sorted before the damage is permanent.
  • Tori_ScopeTori_Scope Posts: 5,020

    Scope community team

    Ah I see @ladysusan25. Have you also been in touch with your local Healthwatch? You might be able to get some additional information from them. 

    I also hope that you can get this sorted sooner rather than later, and please do keep us updated! 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • ladysusan25ladysusan25 Member Posts: 4 Listener
    I am happy to say that my neurosurgeon called me today. He is trying to get me a bed asap. If he is unable to do this, I have been advised to go to A & E this week.
    Thanks for your support. :)
  • Tori_ScopeTori_Scope Posts: 5,020

    Scope community team

    Fantastic, thanks for letting us know @ladysusan25 :) What a relief!
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
Sign in or join us to comment.