PIP, DLA and AA
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Hi, my name is silversue2, I'm about to fill out my PIP form

silversue2silversue2 Member Posts: 7 Listener
edited March 4 in PIP, DLA and AA
Hello everyone ,thank you for being there

Replies

  • silversue2silversue2 Member Posts: 7 Listener
    Hi Im about to fill in my PiP FORM just update one about changes etc ,very nervous as my health has declined rapidly in the last 2 years and now bed bound ,but I havnt told them as Im to scared to,due to the fact my assceor lied so much the last time that they lowered my payment from high to standard ,I feel that I am not confident enough to stand up to them as I should of done before
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  • silversue2silversue2 Member Posts: 7 Listener
    I hope so Im going to try and start to fill in form tonight ,I will see how I get on ,if I get stuck I will leave out the questions I cant answer and ask you about them if thats ok?
  • mikehughescqmikehughescq Member Posts: 6,628 Disability Gamechanger
    You don’t need to “stand up to them”. You do need to understand more about what it is you’re doing. Start with https://forum.scope.org.uk/discussion/56365/pip-form-filling#latest 
  • Ross_ScopeRoss_Scope Posts: 4,187

    Scope community team

    Hello @silversue2

    Welcome to the community :) 

    There certainly can be a lot of stress around the time of renewals and updating the DWP, in many cases that stress and anxiety can be caused by previous experiences, so you have my best wishes and support here. However it's also true that just because you may have had a poor experience last time around that doesn't mean the same thing will happen again, and I'm sure you'll be fine :) 

    We can't answer the questions for you, but we can advise the ways in which you might approach answering them, it's always best to ensure that you include anecdotal evidence to illustrate how your condition impacts your daily life and mobility.

    If speaking through things would help you, you can always give Scope's helpline a call, and you could also take a look at Advice Local to see what support might be available in your area.
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  • mikehughescqmikehughescq Member Posts: 6,628 Disability Gamechanger
    Ah, the new line. The forum can’t help you but our helpline can. Good to know.

    I feel a mystery shopper exercise coming on. Wonder if this is like the RNIB help line that told me three times I could not be registered as sight-impaired as the provision I was referring to didn’t exist? I am registered sight-impaired using the exact provision they still say doesn’t exist.
  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    My advice us to treat it as a new claim dont just put mo change still explain how your condition affects you and the impact of trying to do a task 

    Good luck keep us updated 
  • silversue2silversue2 Member Posts: 7 Listener
    I still havnt filled it in ,its awful isnt it to let them get me into a state where Im a bag of nerves ,when I had my last assesment they took me off high rate and put me on standard ,I wll try and keep this really short ,He said I answered the door I didnt husband did ,he said I was dressed in smart casual clothes ,I was in pj s ,he said I sat in a comfortable position ,I was in my electric bed,he said I had 2 sips of water ,no water in the room ,he tried to make me touch my toes ,I cant ,he said I did ,he said I looked tired and that was it ,I cant shower on my own ,I cannot cook a meal and havnt done for years ,I dont do any housework at all ,my husband does everything ,I often fall ,last one was a nasty one as I tried to get up of the sofa to quick and fell into the log burner which was lit ,leaving me with very very bad bruising ,I often have have accidents {sorry}Im on heaps of meds including oramorph and slow release Zomorph which my consulant has just doubled ,Im waiting for another mri scan and bloods ,bascically im very ill and in bed 24/7 with often ambulance visits taking me in to get pain undr control ,So what Im trying to say is do I try for high rate or leave well alone ,my husband is semi retiring to be at home with me ,please tell me what you think xxxx

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  • Adrian_ScopeAdrian_Scope Testing team Posts: 8,002

    Scope community team

    Hello @silversue2. When is your form due back? It can help to break it down and do it bit by bit, rather than completing it in an evening. To give the level of detail needed it can take some time to put it all down.
    What you've written above, with the anecdotal story about your recent fall and the log burner is a good start. Could you add more detail to that when filling in your form? What happened afterwards? What help did you need? What help could have stopped it from happening? 

    The link shared above should help with some of the form and I've quoted a particularly useful portion below for ease:
    4 - For every activity you think you score points you need to think of 2 or 3 recent examples of incidents when you tried to do that activity. Describe in detail the what, when, where, who witnessed, what happened next etc. Don’t skimp on detail. It’s often better to type it up in Word first rather than write in the form. If it won’t fit then add extra sheets, remembering to put your name, NINO and the question to which the answer relates on each sheet. Alternatively, reduce the font and cut and paste the Word answer into the form. Note that doing point 4 correctly is far more important than supporting medical evidence in most cases.
    Unfortunately we're not in a position to suggest which rate you should be aiming for, but if you have a look through the PIP descriptors you should be able to work out an idea of which you meet and the points attached to these. 
    If there's any you're unsure of we'd be more than happy to discuss them with you hear and see if we can help. 
    Ah, the new line. The forum can’t help you but our helpline can. Good to know.

    I feel a mystery shopper exercise coming on. Wonder if this is like the RNIB help line that told me three times I could not be registered as sight-impaired as the provision I was referring to didn’t exist? I am registered sight-impaired using the exact provision they still say doesn’t exist.
    I'm not sure that's what @Ross_Scope said at all. He explained we can't answer the questions for her but that if she'd find it beneficial to talk it through with someone, she could try our helpline. 
    I'm sorry it sounds like you have a bad experience with RNIB. I haven't used them personally, although I know some people find them incredibly helpful. I imagine like with every service, quality of advice can vary depending on who you speak to. I've certainly had my fair share of poor advice given from 'specialists' in the past. 
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  • Ross_ScopeRoss_Scope Posts: 4,187

    Scope community team

    Hi @silversue2

    You didn't mention in your post how long ago the fall into the log burner was, but was it recently? Did you attend A&E or seek medical advice following the incident? It must have been very painful.

    I imagine you have become very worried about your mobility when you are aware that things such as that have happened in the past, which is completely understandable.

    Do you have any sort of care in place to help you with daily tasks? 
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  • silversue2silversue2 Member Posts: 7 Listener
    Hi it was about 2 months ago ,im used to wobbles and falls so no I didnt seek medical advice etc ,I told the doctor though ,I dont know wether she made a note of it ,I cant report every fal trip or wobble it would become just a blur as it happens quite often ,about once or twice a month ,its my M.E and Fibro also fast drop in bp ,I have been on a tilt table in hospital and they were shocked to see how fast it dropped . I feel safe in bed .The worst thing for me is the bathroom ,showers loo etc ,not fun when you have pancreatic atrophy .and diverticular disease.I use a stick in the house and a wheel chair should I need to go out .are they going tosay Why didnt you let us know your diagnosis ? my answer to that is I was to nervous after the last consultation ..........what I should of done is take photos of the bruising after the fall and kept them in my ever growing file

  • silversue2silversue2 Member Posts: 7 Listener
    my husband is my carer but nothing in place
  • Ross_ScopeRoss_Scope Posts: 4,187

    Scope community team

    @silversue2
    I appreciate that the falls happen often, and I'm sorry to hear that. Hopefully you don't pick up any injuries from them however please ensure you speak to a health professional if you ever do.

    I'm glad you have your husband as support. If you have no care in place currently, you might wish to contact your local authority's social care team to refer yourself for a needs assessment, they may be able to help you.
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  • Cher_ScopeCher_Scope Posts: 4,049

    Scope community team

    @silversue2 How are you doing?  Did you make a start on filling in the PIP form? And, have you had any further falls?  I hope not, but do heed Ross' words and seek medical attention if you do.  

    Also, I'd recommend giving some thought to having a free social care needs assessment.  Having this done will allow you to access any aids and adaptations that will improve your quality of life such as walking frames or changes to your home.  To apply for an assessment, visit the government's 'Apply for a needs assessment by social services' webpage.  

    Take care and speak soon.
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  • silversue2silversue2 Member Posts: 7 Listener
    Hey! thanks for getting touch ,yes I did finally fill in the forms about 4 days ago so its a waiting game now ,No more falls so all good.I have rails and a stick and wheel chair ,also a seat in the shower ,it tight in there when my husband is washing me and my hair but we get through it .I will let you know the out come of my form ,but Im not holding my breath ,so much has changed since I was last looked at for the bad so lets see what they say ,Please take care and thank you for the message it means so much to me ,stay safe x
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