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Hi, my name is EmmaL! I'm looking to share information and support on CEV/disabled children

EmmaLEmmaL Member Posts: 4 Listener
Hi there hoping to share info and support re vaccines for CEV/ disabled children

Replies

  • RobbinBrightRobbinBright Member Posts: 20 Listener
    HI Emma! Much appreciated for your message! 
  • EmmaLEmmaL Member Posts: 4 Listener
    Thank you I am wondering if any parents have / know of any children under 16 who’ve been vaccinated for Covid? We are being supported by our MP to advocate for this for our child but keep hitting dead ends 
  • lisathomas50lisathomas50 Posts: 4,324 Disability Gamechanger
    As far as I know no children under the age of 16 are havring vacinations 
  • Ross_ScopeRoss_Scope Posts: 4,114

    Scope community team

    Welcome to the community @EmmaL

    Good to have you aboard, and that's a very important issue.
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  • EmmaLEmmaL Member Posts: 4 Listener
    Thank you if I get any feedback I will update 
  • Tori_ScopeTori_Scope Posts: 4,989

    Scope community team

    You might have already seen it @EmmaL, but I just wanted to share this NHS document from February in case it was of any use. 
    In January, a letter was issued to all CEV patients from the Department of Health and Social Care, informing them that they would be invited to have a vaccine. As we are now offering vaccinations to those who are clinically extremely vulnerable, it is important that parents of children on the CEV list, as well as clinicians, are clear on the clinical policy for vaccinating children against COVID-19.

    All CEV children have been included on the shielding list following a mandatory assessment by a paediatrician, based on the criteria published by the Royal College of Paediatrics and Child Health (RCPCH) which can be seen here.

    Children included on the CEV list fall broadly into the following two categories:
    • Group A - mainly immunodeficiency or with types of cancer;
    • Group B – range of other conditions thought to put them at risk e.g. cardiology, neurology, respiratory etc.

    The independent Joint Committee for Vaccination and Immunisation and Public Health England’s Green Book are clear that the majority of children should not be vaccinated at this time, on the basis of a low morbidity/mortality risk from COVID-19 infection; limited safety data; and overall uncertainty regarding efficacy.

    For a small number of children, over the age of 12 years, the Green Book states:
    Given the very high risk of exposure to infection and outbreaks in institutional settings, vaccination may be considered for children with severe neuro-disabilities who tend to get recurrent respiratory tract infections and who frequently spend time in specialised residential care settings for children with complex needs.

    It is estimated that approximately 1,500 to 2,000 children and young people fall into this category. No other children aged less than 16 years old are recommended to be vaccinated.
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  • EmmaLEmmaL Member Posts: 4 Listener
    Thatch you that’s really kind . I hadn’t see this update . We’ve sent similar to our GP and they keep saying they’ve had no guidance and so cannot help even though they have my son registered as CEV. My husband took him to a drop in clinic today and he was turned away at the last moment, We are a bit stuck. I also called GOSH today and they had no info at all which was disheartening. 
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