Hi, my name is EmmaL! I'm looking to share information and support on CEV/disabled children — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Hi, my name is EmmaL! I'm looking to share information and support on CEV/disabled children

EmmaL Member Posts: 4 Listener
Hi there hoping to share info and support re vaccines for CEV/ disabled children


  • RobbinBright
    RobbinBright Member Posts: 20 Listener
    HI Emma! Much appreciated for your message! 
  • EmmaL
    EmmaL Member Posts: 4 Listener
    Thank you I am wondering if any parents have / know of any children under 16 who’ve been vaccinated for Covid? We are being supported by our MP to advocate for this for our child but keep hitting dead ends 
  • Lisatho11987777
    Lisatho11987777 Member Posts: 5,787 Disability Gamechanger
    As far as I know no children under the age of 16 are havring vacinations 
  • Ross_Scope
    Ross_Scope Posts: 7,487 Scope online community team
    Welcome to the community @EmmaL

    Good to have you aboard, and that's a very important issue.
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it.
  • EmmaL
    EmmaL Member Posts: 4 Listener
    Thank you if I get any feedback I will update 
  • Tori_Scope
    Tori_Scope Posts: 9,644 Scope online community team
    You might have already seen it @EmmaL, but I just wanted to share this NHS document from February in case it was of any use. 
    In January, a letter was issued to all CEV patients from the Department of Health and Social Care, informing them that they would be invited to have a vaccine. As we are now offering vaccinations to those who are clinically extremely vulnerable, it is important that parents of children on the CEV list, as well as clinicians, are clear on the clinical policy for vaccinating children against COVID-19.

    All CEV children have been included on the shielding list following a mandatory assessment by a paediatrician, based on the criteria published by the Royal College of Paediatrics and Child Health (RCPCH) which can be seen here.

    Children included on the CEV list fall broadly into the following two categories:
    • Group A - mainly immunodeficiency or with types of cancer;
    • Group B – range of other conditions thought to put them at risk e.g. cardiology, neurology, respiratory etc.

    The independent Joint Committee for Vaccination and Immunisation and Public Health England’s Green Book are clear that the majority of children should not be vaccinated at this time, on the basis of a low morbidity/mortality risk from COVID-19 infection; limited safety data; and overall uncertainty regarding efficacy.

    For a small number of children, over the age of 12 years, the Green Book states:
    Given the very high risk of exposure to infection and outbreaks in institutional settings, vaccination may be considered for children with severe neuro-disabilities who tend to get recurrent respiratory tract infections and who frequently spend time in specialised residential care settings for children with complex needs.

    It is estimated that approximately 1,500 to 2,000 children and young people fall into this category. No other children aged less than 16 years old are recommended to be vaccinated.
    Online Community Coordinator, she/her

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us how we're doing? Complete our feedback form now.
  • EmmaL
    EmmaL Member Posts: 4 Listener
    Thatch you that’s really kind . I hadn’t see this update . We’ve sent similar to our GP and they keep saying they’ve had no guidance and so cannot help even though they have my son registered as CEV. My husband took him to a drop in clinic today and he was turned away at the last moment, We are a bit stuck. I also called GOSH today and they had no info at all which was disheartening. 


Complete our feedback form and tell us how we can make the community better.