Hi I'm Shonshi41! I've been dealing with a condition for 2 years, and non of my drs can diagnose it
Shonshi41
Community member Posts: 2 Listener
I’ve been dealing with a condition for two years now. None of my doctors can diagnose it. It starts with a small red pimple and erupts into an open wound that burns, stings, stabbing pain. I can’t walk, stand, or anything. I’ve had three of them since March 2019. I just had my last surgery almost two weeks ago. I’ve had a skin graft, a panniculectomy, wound debridements, and parathyroid surgery. I still have no clue what this is and what could stop it.
Comments
-
Hi and welcome
Sorry to hear about your health condition and hope you get some answers and recover from the surgery
Feel free to join in or ask any questions -
Hi @Shonshi41 that must be awful not knowing what courses are, hopefully the Drs can get to the bottom of it for you.
-
Welcome to the community @Shonshi41 I'm sorry to hear that you haven't yet been able to get a diagnosis for your condition.
How did the latest surgery go? Could you be referred to any other specialists who could look into the condition?
Just to let you know, I've renamed your post slightly and moved it into our category for discussions relating to undiagnosed and rare conditions. -
I just came from my surgeon and I’m scheduled for more surgery next week. The wound isn’t closing. I’m just staying positive that this surgery is successful. Unfortunately I very familiar with back to back surgeries.
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 483 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 807 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions