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Disincentivized to improve
Not looking to start any arguments here. Not really sure what I want from this thread, I guess I am just sharing my experience and looking for advice and to see if anyone can relate.
I currently only go out of the house with a family member. I am working on being able to go out alone.
We have broken it down to the smallest level possible and are starting with just a 2 minute walk. I am now at the stage where I have gone through all the facts about being out alone, rehearsed it with a professional, and really all there is to do is make the push and just do it. I am not there yet but I like to think I am getting nearer to the point that I am ready to have a go and see what happens.
However there is a big spanner in the works. This is the fact that, once I am able to leave the house alone, even for a 2 minute walk, I lose my higher rate mobility PIP, and so my Motability car, which is basically my life.
Do not get me wrong: I would give up my PIP and my car any day to be able to PROPERLY go out and about on my own - to the shops, to see friends and relatives, or go to work...
But sacrificing it just to be able to go for a 2 minute walk doesn’t seem worth it to me. Therefore, I find myself in a position where, even if one day I found I could do it, I lack the motivation to go for the walk.
I’m not saying I don’t want to get better. Like I say if I got to the point where I could go out on my own for a proper full length trip i.e. to the shops I’d gladly rip up my PIP claim and hand the car keys back tomorrow!
However the treatment doesn’t work like that and I have to start small, do it in small steps, and the system discourages making that first step.
I won’t pretend to know the answer but maybe there could do with being a grace period of say a year so I have time to work with professionals and get to a decent position of independence, not just a 2 minute walk, before losing my award.
Does anyone have anything to say about this?
Thanks for reading.
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