Cerebral Palsy
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Serious crippling pain.

QueenofdisabilitiesQueenofdisabilities Member Posts: 91 Connected
Hi please can someone tell me the best way to cope with my 
Fibro & Osteoarthritis pain?
When I take my Oramorph it takes the edge off but 10 mins later it's back 
& a heck of a lot worse.
I'm on a massive dose of Gabapentin,Duloxetine & my Oramorph.
I sit gritting my teeth saying God please someone help me I pray.
Any tips,advice or strategies are very gratefully received.

Replies

  • woodbinewoodbine Community Co-Production Group Posts: 4,428 Disability Gamechanger
    hi @Queenofdisabilities we are not allowed for obvious reasons to give medical advice, but I would ask have you asked your GP to refer you to the local pain clinic?
    "Putting a child into care, isn't caring for a child" (T.Rhattigan)
  • lisathomas50lisathomas50 Posts: 4,324 Disability Gamechanger
    Maybe you should talk to your gp about it 
  • Sandy_123Sandy_123 Member Posts: 1,536 Pioneering
    Hi ya @Queenofdisabilities nothing worse then being in pain, I would definitely talk to your gp as your on strong pain relief, hopefully they can sort you something out that works for you.
  • deedeewhiteside123deedeewhiteside123 Member Posts: 1 Listener
    I too suffer with Fibro, Myofacial Pain Syndrome, Migraines and have Sciatica and Footdrop_ ridiculous isn't it!! The best thing I have found which is incredibly hard to do when you are worn down with the effects of constant pain day and night, is to try to keep moving. I know it is difficult, but it helps you physically and emotionally. you do not need to walk far but change your routine and tidy out a cupboard or give something a good clean, it really does release some good endorphins and helps you to put your pain to one side for a short time. 
  • Caz_AlumniCaz_Alumni Scope alumni Posts: 626 Pioneering
    Hi @Queenofdisabilities

    Just wanted to say a proper hi and see how you're getting on? :smile:

    Pain management can be so difficult to deal with and I know everyone has their own strategies for coping Hopefully, your GP might be able to advise, but I wondered what else you had tried for yourself as well? Have you found any other strategies that help you at all?

    @Caz_Scope
    Online Community Coordinator (she/her)

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