Remaining politically neutral during General Election 2024

Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.

Fibromyalgia and Pulsatile Tinnitus

Welliboots93 Community member Posts: 32 Courageous
edited March 2021 in Sensory impairments
Good evening everyone!

Yesterday I had my MRI Scan for pulsatile tinnitus and will get my results with the ENT specialist on the 1st April. I am not sure what to expect because I have moderate hearing loss and when I google pulsatile tinnitus it comes up with tumours, artery problems and pressure in the brain etc! Its all very overwhelming, anyone else have any experience with pulsatile tinnitus, hearing loss and ENT?

Also, I found out last month I have fibromyalgia which was a shock because I was not expecting that! I have no idea how this will impact me in life and I do not really know much about the condition, other than I guess I am in pain for a long time! I have an appointment on Tues with pain management and I am hoping this will be beneficial as I've never had pain management before. Again, if anyone has any info on pain management that would be great!


  • leeCal
    leeCal Community member Posts: 7,550 Disability Gamechanger
    I don’t have pulsatile tinnitus but ordinary tinnitus, very loud. I was sent for an mri scan some years ago as my tinnitus came on very suddenly but they found nothing in the way of tumours or such. ENT then told me that what I had was incurable and that I have joined around one million others in this country with tinnitus. I still have it of course but I have learned to live with it though I never thought I would, that took me around four years or so but we all vary.

    I dont know anything about fibromyalgia though, sorry to hear that you have both those maladies.

    “This is my simple religion. No need for temples. No need for complicated philosophy. Your own mind, your own heart is the temple. Your philosophy is simple kindness.” 
    ― Dalai Lama XIV

  • Caz_Alumni
    Caz_Alumni Scope alumni Posts: 621 Pioneering
    Hi @Welliboots93 :)

    I'm going to move your post over to our Visual and Hearing Impairments section - See if we can get some more response to your query about pulsatile tinnitus. 

    Also, rather than splitting your post up, I wonder if it might be an idea for you to re-post your question about fibromyalgia separately. That way, you might be able to catch the attention of other members of the community with fibromyalgia and speak to them about their experiences as well. 

    Let us know if you have any questions or we can be of any further help :smile:

    Online Community Coordinator (she/her)

    Want to give us feedback? Complete our feedback form now.
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.