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We want to hear from you: please tell us about your experience of the online community.

Does your family support you?

Tori_Scope

Today is International Day of Families. For many people, family can be a vital support network, but being part of a family can certainly have its challenges.

Has being disabled had an impact on your family relationships?
Has having a disabled family member impacted upon your way of life?
Is there enough support out there for families living with disability?
Do you have a family member you'd like to thank today?

Remember that the word 'family' can mean different things to different people, so feel free to include anyone you feel is part of your family, whether that be a blood relative, partner, friend, or anyone else you care about

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Comments

Sandy_123

I should thank my son as when I can't move or do anything he takes care of tidying up, shopping, giving me food and drinks, getting prescriptions, he's only 22 and impacts his life, even when I can move he has to do stuff like heavy shopping, moving things and doing things I can't. In those bleak days I don't know how id cope.

janer1967

My son is my support and does everything he can at 14 to help me . He has been my rock and just takes things in his stride

When he was 10 he got a Laverick award for bravery when I collapsedinyo a coma at home he assisted paramedics getting my meds and my phone and stuff and unfortunately had to watch me in the ambulance trying to stabilise me

My family don't live near but a mention to my brother and sister in law who help where they can and I am grateful for all they do

The downside is I hardly see my mum now as I can't get there and she can only get to me if my brother brings her. We do speak on phone every week

janer1967

@woodbine very sad to read and really glad you have such a supportive wife

I don't blame you for moving away and hope you both found the quiet life you deserve

vikingqueen

You can choose your friends @woodbine

leeCal

My family support me verbally by long distance phone from time to time. They’re around thirty and full of their own concerns, as I was at their age. Though it’s true to say that my youngest did come to visit me twice when I was in hospital a while ago. My partner ignores my problems but keeps up the bill paying and cooking etc so does support me in that way.

It could be better but things are to be accepted or cause constant pain, I’d rather be accepting, not always easy but for the best.

chiarieds

Have to say my son too has been incredible; when he knew I could no longer stay with his Dad, he said come & live near me, & I will look after you some 5+ years ago. My now daughter-in-law is amazing too, so they both help me. My eldest daughter lives further away, but she tends to text/Whats app or ring more, & we share about her little sister, whom my son never knew.

I'm perhaps fortunate in that we share the same genetic disorder, & they still look to me for advice, especially my eldest daughter about her 3 children; we're all different but have much in common.

So today I will thank my son & daughter-in-law, & eldest daughter for their support & understanding in their different ways.

@woodbine you're also fortunate with senior management; wish I'd had a spouse like yours, but thankfully my children have instead helped me enormously.

Sandy_123

I also think we can thank each other, for giving support on here when any 0f us are feeling down or low. We all, with our problems bring our own expertise to the forum, to try help each other or others.
Accasionally there are fall outs or disputes, but we are all unique and fetch different things here, from our own life experiences and qualifications we have.

chiarieds

So true @Sandy_123 - but would say on occasion new members don't like what we say, but everyone in the community does truly try & help support each other, as you say, in our different ways, So, yes, a big thank you to everyone here.

Lisatho11987777

@sandy you have been very zupirtive

Lisatho11987777

Supportive lol ?

Sandy_123

Thanks Lisa @chiarieds yes some don't like the advice that given, we can only our best

Caz_Alumni

Very true @Sandy_123

Thank you for sharing that thought and sentiment.

[Deleted User]

I have 2 sisters, 3 brothers and 2 parents.

Both my parents are abusive and my 2 younger brothers are abusive. One sister refuses to answer my phone calls. There's a history of domestic abuse.

So I only speak to my older brother and my sister. They supported and helped me.

You know what they say. You can choose your friends but you can't choose your family.

Tori_Scope

I'm sorry to hear that @innocent21, but I'm glad your older brother and other sister are supportive. Do you mind me asking whether the abuse is ongoing, and whether you've reported this? You can email us on community@scope.org.uk if you'd prefer.

[Deleted User]

No it's not ongoing as I don't live with any my family any more. I moved out of my parents house in 2017.

I was born in the 1990s and when I was a child, domestic abuse wasn't taken seriously, nobody never saw it as a serious issue. It was a different time back then.

Back in those days, if a child reported to the authorities (eg. police, teachers, child line, doctors, mentors etc) that their parents were committing domestic abuse against them, or that their siblings were committing domestic abuse against them and their parents allowed it to happen and refused to stop it, the authorities logic, of which was representative of that time, is that as long as a child isn't being physically beaten, isn't being raped or sexually harassed or sexually abused, and isn't being neglected so they have food, shelter, education, trips outside and entertainment inside,then any reports of domestic abuse a child reports are to be instantly point blank downplayed, disregarded and excused, with then the interaction and inquiry ended in 30 seconds.

I could list examples of verbal and psychological abuse that would back then be disregarded, but that would be derailing this thread.

I think that children's, women's and mental health charities are have started from some time ago (I don't know since when) to raise awareness and trying to influence the public opinion to change people's attitudes, so that the general public will eventually start to view domestic abuse as a serious issue to be dealt with rather than disregarded. Women's Aid campaigned for laws against domestic abuse and was successful as the British government passed the Domestic Abuse Act 2020. Not only does that law protect people from their current (and maybe ex) partners, but contrary to popular belief, the law also protects children from abusive parents.

Tori_Scope

I'm glad that you're not in that situation any more @innocent21. You're right that attitudes towards domestic abuse have changed over the years, and hopefully we'll continue to see improvements in the way that domestic abuse is thought about and dealt with.

Have you ever spoken to anyone about what you experienced? The NSPCC have a good page on non-recent abuse, which has quite a few useful resources and pieces of information. This includes a link to NAPAC, who you might like to get in touch with should you feel you'd like to talk to someone with expertise in this area.