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Spinal problem i think

Ginajones
Community member Posts: 10 Listener
Hi was just wondering if anyone has experienced pinching burning and electric shock buzzing all the way down spine
Normally get trapped nerve feeling in neck on and off but it seems to be traveling and my neck pain is bad at the mo but also my lower back is painful too
I also get pins and needles in legs arms and face
Daily
Spams in toes that bend and lock for a short time its very painful
Painful joints and still cannot feel the top of my left foot
Went to my neurology appointment and she thinks its 2 problems
Migraine ( pins and needles in face ) which ive had for 6 years
And a spinal problem which shes sending me for a full spinal mri for (hasnt arrived yet tho ) and i had to wait 6 months to see Neurologist
But have been experiencing feelings down spine which are normally just in my neck
Had this problem for well over six years now if not longer when i think back
Anyone experienced this before any info would be great thank you x
Normally get trapped nerve feeling in neck on and off but it seems to be traveling and my neck pain is bad at the mo but also my lower back is painful too
I also get pins and needles in legs arms and face
Daily
Spams in toes that bend and lock for a short time its very painful
Painful joints and still cannot feel the top of my left foot
Went to my neurology appointment and she thinks its 2 problems
Migraine ( pins and needles in face ) which ive had for 6 years
And a spinal problem which shes sending me for a full spinal mri for (hasnt arrived yet tho ) and i had to wait 6 months to see Neurologist
But have been experiencing feelings down spine which are normally just in my neck
Had this problem for well over six years now if not longer when i think back
Anyone experienced this before any info would be great thank you x
Comments
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Hi @Ginajones I'm sorry to read about the symptoms you've been experiencing, unfortunately we are not medical professionals therefore we cannot advise or suggest as to what the cause might be. However, many members of the community, including myself, do have a variety of neurological conditions/struggle with nerve pain, and we would be happy to share our experiences with you
I have Sensory Ataxia, Transverse Myelitis, severe nerve damage and peripheral neuropathy, the combination of them all leave me with symptoms such as: altered sensations in my hands and sometimes around my body, nerve damage throughout my body, peripheral neuropathy causes painful electric type stings in my feet and legs, also with numbness and tingling.
I hope you don't have to wait to long for your spinal MRIDisability Gamechanger - 2019 -
Thank you for your reply Ami2301 im so sorry to hear of your symptoms must be a struggle for you
if you dont mind me asking how long did you get your symptoms for before you were dx and how did they find our you had this condition ?? I appreciate the feed back !! X -
No problem @Ginajones
My peripheral neuropathy began in 2009 and I wasn't diagnosed with it until either 2014/2015 - I only found out when my vitamin b12 had to be checked often and I was reading up about the deficiency, when I came across that peripheral neuropathy and vitamin b12 deficiency are linked, so I spoke to my GP about what I found and asked if this was what i had been experiencing in my legs and feet, and she said yes. (Would have been nice to have been told sooner rather than finding out myself!)
Sensory Ataxia symptoms started around mid 2017, and Transverse Myelitis is believed to have started in September 2017. During a 5 day stay at the neurology hospital in London, along with other tests, but for the two diagnoses were found by a full body and spinal mri, nerve tests and a lumbar puncture.Disability Gamechanger - 2019 -
Ahh i see x i agree would of been nice if doc could of told you sooner my symptoms have been long winded too x hope this mri comes soon !! Hopefully will shed some light on it !!! And thank you so much again x take care
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You're welcome and I really hope it provides some answers for you, keep us updated!Disability Gamechanger - 2019
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Hi @Ginajones good luck, with your MRI hopefully you can see what's going on then and get some treatments. Keep us updated.
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Thank you x
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Hi, an MRI will show any spinal problems, hopefully. It does sound like a trapped nerve.
Hope you find relief soon.
Pollyxx
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Hi im still waiting for MRI at the mo fingers crossed xx thank you so much for your reply x
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