PIP, DLA and AA
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Hi, my name is Mary1972! Does anyone know about PIP? I applied in Jan 2021 and haven't heard back

Mary1972Mary1972 Member Posts: 16 Listener
edited June 23 in PIP, DLA and AA
Hi
Just wondering the if anyone knows about PIp, I applied in Jan 2021, haven't had anything back but know they have my completed form. I feel so anxious as its been such a long wait

Replies

  • janer1967janer1967 Member Posts: 11,205 Disability Gamechanger
    Hi and welcome 

    You are not alone other members have said they applied in November and Dec but still waiting for an  assessment 

    Depends on area and backlogs

    Some people ring up to ask and get lucky and get a cancellation 

  • Mary1972Mary1972 Member Posts: 16 Listener
    Thank you for getting back to me, I totally understand the backlog and I guess I just have to wait and hear but I can't help thinking  I have I missed the letter,  constantly chevk emails or Im I not going to get it...that my anxiety 
    Thank you
  • chiariedschiarieds Community Co-Production Group Posts: 9,234 Disability Gamechanger
    Hi @Mary1972 - & welcome to the community. As Jane says, unfortunately some people are waiting quite a long time before they get a date for an assessment. Kindly let us know how you get on, & good luck. :)
  • Tori_ScopeTori_Scope Posts: 5,039

    Scope community team

    Welcome to the community @Mary1972 :) It can certainly be an anxious wait for many people, but hang in there. 

    Just to let you know, I've moved your post into our PIP category and renamed it slightly so that it's easier for other members to find.
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • groveheadgrovehead Member Posts: 5 Listener
    I applied in Feb and just received my pip decision and backpay going in Friday 
  • Mary1972Mary1972 Member Posts: 16 Listener
    That is great news, did you have an assessment over the phone?
  • karen1812karen1812 Member Posts: 49 Connected
    I completed a pip form late March had a phone call out the blue 8th June I think it was an assessment,  asked me lots of questions and she was really helpful saying think about my husbands worse day's.  She then said we should hear something in about 3/4 weeks and they might review brian again in another 12/18 months so not sure if we have been awarded PIP
  • NeryspowlesNeryspowles Member Posts: 5 Listener
    I have been waiting over 9 weeks for the decision regarding my p.i.p assessment and it is making me feel anxious and worried do you know how long it will take please 
  • Mary1972Mary1972 Member Posts: 16 Listener
    Im on week 21 since my form went in, I think its a waiting game, its in mt head everyday but have got used to the fact it will be a long time before you hear back. Some people are waiting between 6 to 8 months for the assessment 
  • xjamesxxjamesx Member Posts: 18 Listener
    Hi Mary, I applied on 18th January, and still not heard anything yet just a nightmare the waiting game
  • EKB2013EKB2013 Member Posts: 8 Listener
    Hi Mary 
    I applied back in the middle of January and received a cal out of the blue last Friday from assessor. I was only on the phone for 15 minutes and she was very nice 😊 
    hooing I don’t have to wait another 2 months but who knows really!!
  • MarkN88MarkN88 Member Posts: 1,314 Pioneering
    There is just a lot of backlogs at the moment which is evident from people posting on here. 

    People waiting for assessments that applied in November and December are just seeming to get their assessments now. 

    The assessor who said a decision would be made in 3/4 weeks time should not be saying that. It’s highly unlikely as they don’t know the workload of the case managers. 
  • Cher_ScopeCher_Scope Posts: 4,087

    Scope community team

    Hi @Mary1972

    I'm sorry to hear you still haven't heard anything.  As you can see from other members' responses, you aren't alone and delays are being experienced by lots of people across the country too  :(  I do hope it isn't long for you now, and you too @xjamesx

    @EKB2013 I'm glad you had a smooth assessment and have my fingers crossed for the outcome, please let us know how you get on.  
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Mary1972Mary1972 Member Posts: 16 Listener
    EKB2013 said:
    Hi Mary 
    I applied back in the middle of January and received a cal out of the blue last Friday from assessor. I was only on the phone for 15 minutes and she was very nice 😊 
    hooing I don’t have to wait another 2 months but who knows really!!
    That is good news, I hope its sorted quickly too for you. I'm expecting the same a call without any warning.  Not sure whats worse knowing a date for the call or just getting it out of the blue 
  • Ross_ScopeRoss_Scope Posts: 4,220

    Scope community team

    Welcome to the community Mary.

    I wish you the very best @Mary1972, I hope it goes well and make sure you keep us updated :) 
    Online Community Coordinator

    Talk to our chatbot and give us feedback on the community.
  • janer1967janer1967 Member Posts: 11,205 Disability Gamechanger
    It isn't normal to get a call without warning 

    If you di they have done a paper based assessment and are just asking few things to clarify 

    A full assessment will be arranged and you will be given notice of the date and time 
  • EKB2013EKB2013 Member Posts: 8 Listener
    janer1967 said:
    It isn't normal to get a call without warning 

    If you di they have done a paper based assessment and are just asking few things to clarify 

    A full assessment will be arranged and you will be given notice of the date and time 
    Hi
    yes I assumed I must have had a paper based assessment as she only asked a couple of questions and I was not on the phone for long.
  • Mary1972Mary1972 Member Posts: 16 Listener
    Just a quick update, its now been 22 weeks today from the start of my claim. I rang the assessment centre 3 days ago and got told my claim had been progressed up to - awaiting a assessment date....
    I asked if I could be considered for a cancellation but non were available.  Hopefully it won't be too much longer for the assessment date.
  • Ross_ScopeRoss_Scope Posts: 4,220

    Scope community team

    Thanks for the update @Mary1972, yes hopefully not much longer.
    Online Community Coordinator

    Talk to our chatbot and give us feedback on the community.
  • Mary1972Mary1972 Member Posts: 16 Listener
    Just an update on my new PIP claim for anyone wondering about waiting times - North East area.  Filled in paperwork in January and I'm having a telephone assessment on 19th July 2021 some 25 weeks after my first call to DWP. A little nervous for the call but happy to be eventually getting my assessment and hoping to hold it together so I can explain my daily struggles
  • Tori_ScopeTori_Scope Posts: 5,039

    Scope community team

    Very best of luck for Monday @Mary1972 :) Don't worry too much if you end up getting upset, or need some time to process what they've said. Are you feeling prepared (or as prepared as you can ever feel!)? 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • Freespirit47Freespirit47 Member Posts: 13 Listener
    And @Mary1972, May GOD be on your side, I went through one nightmare after another because of P.I.P as I have already told the welcome team, it was only because of 2 Friends, 1 Brother and my Parents that I never went into unsustainable debt and to my eventual death like some disabled people have, this is why they say, always have people with you, otherwise, there is a possibility of losing the claim (I had to suffer for over 6 years before I was finally able to successfully get P.I.P). Should you fail, get people who know you well, and ask for an extension to the appeal, and get friend's and family who know the conditions you suffer with, and focus on the part's where you fail badly, as well as injury's that do affect your ability to work. And if possible ask for a summary of your medical conditions from your GP or Local Hospital where your conditions were diagnosed.
  • Mary1972Mary1972 Member Posts: 16 Listener
    Thanks for the advice, I have a note pad and over the last week or so I've been making notes for myself. Things I'm likely to forget...things which feel normal actions to me but in reality to others aren't but I've learnt to live with certain behaviours and patterns. Things like no day is the same for me, I can wake from my sleep crying and then sit in one place for hours at a time just re thinking situation that have happened in my life, questioning why it happened,  could I have changed it, was it my fault....and not worry about anything else other than my thoughts.
    The next day my anxiety could be bad where I'm pulling every cupboard out in the house to try and organise myself but end up with all the cupboards pulled out because I cant work out what needs to be in what cupboard and then leave it all because I forgot why I was doing it in the first place!
    To others it probably  sound not too bad but when your frantically wracking your brain to try and organise a cupboard and cant complete a simple task as I'm in fear I get it wrong, its exhausting.  
  • Tori_ScopeTori_Scope Posts: 5,039

    Scope community team

    Making notes is a good idea @mary1972 :) 

    The challenges you face are absolutely valid, and I can imagine that would be really exhausting. Are you accessing any support for your anxiety at the moment? 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • Freespirit47Freespirit47 Member Posts: 13 Listener
    And @Mary1972, in these circumstances either get a Third Party Agreement or Power of Attorney (from friends or family) To be with you at the appeal (whether in the courts or Telephone Call) who can help you silently in the background giving you pointers on what you should be saying, instead of relying on your own words which could cause you to fail. I wrote down everything I wanted to say about the issues I had, with my third party authority (as my legal representative) who told them of other issues which I had not mentioned, this is what helped me win my P.I.P appeal. Just remember, do not use words that give them a reason to fail you.
  • chiariedschiarieds Community Co-Production Group Posts: 9,234 Disability Gamechanger
    @Freespirit47 - @Mary1972 is just at the stage of having a telephone assessment tomorrow, not a tribunal.
    Mary, my best wishes for tomorrow, as Tori says, making notes is a good idea.....we become so used to what we do, or how we cope, that writing it all down is so very helpful. Take your time in answering, & ask the assessor to repeat anything you're unsure about. Try & give a couple of examples of the difficulty you face for each applicable question. You can do this. :) Kindly let us know how you get on, thank you.
  • Freespirit47Freespirit47 Member Posts: 13 Listener
    Please forgive me, I was just trying to be helpful, being I have already gone through this and thought that the experience and knowledge I gained through my legal representative would help (due to having learning disabilities myself).
  • chiariedschiarieds Community Co-Production Group Posts: 9,234 Disability Gamechanger
    No worries @Freespirit47 - your personal experience may help others, & it's kind of you to offer your support.
  • jollyjoe2065jollyjoe2065 Member Posts: 17 Connected
    I waited for over  8 months to have a phone assessment from pip, and was told by the assessor that I would hear from DWP in about 3/4 weeks,. Actually it was only m1 week I had to wait to be told that I have  been awarded it  for 3 years, so does that mean after the 3 years are up  will I have to reply again or is it automatically ren.
  • calcotticalcotti Member Posts: 2,255 Pioneering
    I waited for over  8 months to have a phone assessment from pip, and was told by the assessor that I would hear from DWP in about 3/4 weeks,. Actually it was only m1 week I had to wait to be told that I have  been awarded it  for 3 years, so does that mean after the 3 years are up  will I have to reply again or is it automatically ren.
    You will be sent a renewal letter/form about six months before the end of the award.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • Mary1972Mary1972 Member Posts: 16 Listener
    So I had my assessment over the phone yesterday atv1.30pm, it lasted 1 hour 17 minutes. I think it went ok, the lady was nice and I think I was able to explain how my daily life is effected.  I've just had a text at 8.01 this morning to say DWP now have my written report already, so fingers crossed its good news
  • MarkN88MarkN88 Member Posts: 1,314 Pioneering
    Mary1972 said:
    So I had my assessment over the phone yesterday atv1.30pm, it lasted 1 hour 17 minutes. I think it went ok, the lady was nice and I think I was able to explain how my daily life is effected.  I've just had a text at 8.01 this morning to say DWP now have my written report already, so fingers crossed its good news
    That means if you would like a copy of the assessment report you can give them a call and request this. Usually arrives between 7 and 10 working days. 

    This will give an indication of what the HCP is recommending and usually the DWP decision maker goes with this, however sometimes  this isn’t always the case. 

    If you think this might make things worse or make you anxious etc, then I’d recommend not requesting the report and just waiting for the decision letter. 

    They tend to say 6 to 8 weeks for the decision but at the moment this is different area to area and you may find it quicker or even longer than this. 
  • Mary1972Mary1972 Member Posts: 16 Listener
    Thank you for the information, I think I'll give them a call this morning and ask for a copy. After such a long wait I feel I've done my best to explain my struggles and don't feel as anxious as the months leading up to the assessment. I'll shall keep you updated to see where we go from here.  Thank you for all the support and help x
  • effie678effie678 Member Posts: 14 Connected
    Good luck Mary1972
  • Mary1972Mary1972 Member Posts: 16 Listener
    Hello everyone,  so have my report, it includes everything I said regarding my daily living and activities and struggles. I only wish I had spoken more honestly about how my mental health does effect everything I do, however its taken me 18 months of councilors to be able to get to this point so if the assessor has down played things that my doing for not wanting to completely be open due to the shame of my self. I think she was very to the point and fair. However regarding the mobility element,  I feel that non of that at all has been taken into account, I will not go out on my own and yes I could plan a route because I would for days use Google and bus time tables and research and research and go back and forth for hours making list because that is what I do , I cant trust anyone or anything. But I couldn't do the journey on my own as if anything changed I'd have a panic attack, I cant approach people for help....well it won't happen.  I don't go shopping, I don't socialise. Anyway,I feel like I let myself down
    But I think I've got 13 points for daily activities and 0 for the mobility section. 
    This was my first claim for PIP - 28th Jan 21
    Assessment- 19th July 21
    Report recieved 23rd July 21
    Still awaiting an award

    Thought this may help people with a time scale , thank you for all the advice and support 
  • karen1812karen1812 Member Posts: 49 Connected
    Hi mary1972 may I ask who did you ask to get your assessment report. I started my claim for my husband on 10/3/21 I had a phone assessment 10/6 report sent back to DWP 13TH June I still haven't had award as yet still could be another 4/6 weeks I think 
  • karen1812karen1812 Member Posts: 49 Connected
    Sorry 13th July 
  • Mary1972Mary1972 Member Posts: 16 Listener
    I asked DWP and had it in 3 days, have you had a text to say DWP have the report x
  • chiariedschiarieds Community Co-Production Group Posts: 9,234 Disability Gamechanger
    Hi @Mary1972 - I'm pleased your assessment report was good in parts, but sorry you didn't get recommended the mobility component. Still you will have to wait for your decision letter. Please don't feel ashamed about having mental health problems; there is absolutely no shame in that at all. :)
  • karen1812karen1812 Member Posts: 49 Connected
    Mary1982 no I rang to ask if they had the hs back and she said that tey had just received it that morning I have never had a text at anytime since applying for pip
  • jollyjoe2065jollyjoe2065 Member Posts: 17 Connected
    Hi mary1972, it's no shame to say u suffer from metal health a few hrs back I also suffered from metal health and tried ending my life on many occasions, but with the right help I got through this ,  Don't be ashamed. Saying to someone who have. I also had a knock back about pip  every thing I sai in the assessment was turned around  by the assessor   even she said that I didn't suffer from metal health who can they say  that if they don't know you.  And to tell me that I would not be entitled to it as there was nothing wrong with me next time ask for the assessment to be recorded.
  • Mary1972Mary1972 Member Posts: 16 Listener
    Mental health is a very complex thing...
    I have searched my head but at the end of the day I need to be able to be open and honest but I cant, Ive had someone tell me for years I've done things wrong anyway good luck x
  • Freespirit47Freespirit47 Member Posts: 13 Listener
    Hi Mary. I have Mental Health Issues myself due to brain damage, and they are many other reasons, like most have said there is no shame in that, just find ways to keep your mind happy.
  • Freespirit47Freespirit47 Member Posts: 13 Listener
    edited July 24
    Hi JollyJoe, <moderator removed - misinformation about PIP process> What I have typed above describes all my problems, this was why my claim was successful for Care and Mobility.
  • janer1967janer1967 Member Posts: 11,205 Disability Gamechanger
    @Freespirit47

    Lots of people have been awarded pip solely for mental health issues 

    You only have to read on here the number that have been awarded and not related to brain injuries 

    Please be mindful of such sweeping statements that could affect other members 
  • chiariedschiarieds Community Co-Production Group Posts: 9,234 Disability Gamechanger
    @Freespirit47 - I agree with Jane, in that many people get awarded PIP solely on their mental health. The latest statistics that I can find say that 52% of assessment award rates to April 2021 by main disabling condition were for 'psychiatric disorders.' Please see: https://www.gov.uk/government/statistics/personal-independence-payment-statistics-to-april-2021/personal-independence-payment-statistics-to-april-2021   tho these seem to be for a short term (as the majority are whatever the condition).
    Just to add, when you go to a tribunal any medical condition would rarely be disputed as far as PIP goes. The tribunal want to hear how your condition affects you in certain activities of daily living &/mobility as regards the descriptors.
  • calcotticalcotti Member Posts: 2,255 Pioneering
    edited July 24
    Freespirit47 said: The DWP has been made clear that those purely with Mental Health Conditions will not get PIP if it's not related to Brain Damage, 
    As others have said this is not correct.
    From the PIP Assessment guide
    https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/655612/pip-assessment-guide-part-2-assessment-criteria.pdf
    2.1.1 A health condition or impairment may be physical, sensory, mental, intellectual or cognitive, or any combination of these. The impact of all impairment types must be taken into account across the activities, where they affect a claimant’s ability to complete the activity and achieve the stated outcome. For example, a claimant with a severe depressive illness may physically be able to prepare food and feed himself, but may lack the motivation to do so, to the extent of needing prompting from another person to carry out the task. However, some activities focus on specific elements of function. For example, ‘moving around’ relates to the physical aspects of walking.

    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • Cher_ScopeCher_Scope Posts: 4,087

    Scope community team

    edited July 24
    @Freespirit47

    Hello there :)  I've edited your post as it contained misinformation about eligibility for PIP in groups who have mental health conditions.  The governmental guidance cited above by @calcotti and award rate statistics for those in the 'psychiatric disorders' category, included by @chiarieds, validate that mental health conditions (other than and including brain damage) are eligible for PIP where they "affect a claimant’s ability to complete the activity and achieve the stated outcome".  

    Indeed, PIP doesn't focus on how a condition impacts a person's ability to work but rather carry out the mobility and daily living components listed on this Citizens Advice webpage.

    As per our house rules, and to prevent anyone reading from being misinformed, I'd ask you to include only factually correct information in future posts (using reliable evidence to back up statements where possible).  However, I do appreciate your intention was to help the OP.

    Lastly, I'm pleased to hear your claim was successful.  

    @Mary1972 Please keep us informed with how you get on once you receive your decision letter.  I have my fingers crossed for you.
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • daisy1838daisy1838 Member Posts: 12 Connected
    Mary I’m so sorry you’re feeling the way you do. You’re so much stronger than you think, you got here with your decisions and none of it was wrong. 

    It resonates with me and if you ever need to have a chat send me a message anytime! 
Sign in or join us to comment.