Just saying Hi — Scope | Disability forum
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Just saying Hi

Mikka
Mikka Member Posts: 12 Listener
in Disability rights and campaigning
Hi guys

Well, I took the plunge after many years of wondering whether to join one of these online thingies!

Had an accident and had above-knee amputation. Haven't been able to tolerate a prosthesis due to damn phantom pain that drives me insane! Been on high dose morphine for 12 years and currently trying to taper the dose without much success.

Well, that's a start isn't it!? 
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  • leeCal
    leeCal Member Posts: 6,449 Disability Gamechanger
    Hi @Mikka, just to say welcome to the community and best wishes ?

    “This is my simple religion. No need for temples. No need for complicated philosophy. Your own mind, your own heart is the temple. Your philosophy is simple kindness.” 
    ― Dalai Lama XIV

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  • janer1967
    janer1967 Member Posts: 16,372 Disability Gamechanger
    Hi there and welcome 

    I am a below knee amputee nearly 4 years now 

    I too can't get on with prosthetic leg my knee can't support me and dislocates and since my amputation have become partially sighted too 

    I have no feeling in my good leg below knee so I can't feel or see uneven surface making it very high risk of falls 

    Glad to meet another person in same situation but for different reasons 

    My nerve pain is under control 
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  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,478 Disability Gamechanger
    Hi @Mikka - & welcome to the community. Pleased you've joined us all. All I can personally say is, you can very carefully taper off morphine, but usually with your GP or prescribing consultants help. I tapered off incredibly slowly, but have got there, so hope you are able to do so with your Drs help. My best wishes.
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