Looking for advice for children with mental health conditions - UC, EHCP + getting CAMHS re-referral

blue63

Hi everyone  I have not been on for a while but would like to skip if others have been through the problems as us my son had to leave college  in February  2021 due to him not coping with 2020 he has autism sleep disorders health anxiety migranes and I feel ocd too but they say it's to do with his autism he is really struggling with ocd he hs not been out since this  terrible virus  first started we are waiting  to chat to talking heads in July he is on pip and universal credit  they have now seed for us to fill an health assessment form in I would like to ask for advice and how others got on my 16yr daughter  has been suffering from low mood and anxiety since 2017 January  we had to fight to get camhs to take us on she had cyps intensive care team come out to the house in October 2017 we worked with  them for months as my daughter  was struggling to talk to us her family and stopped doing things a 11yr should stopped going to school in may 2017  in 2018 she started to try home tutoring  which took  from may 2018 still not leaving the house she HD to do it through her bedroom door for a while  things where a lot better but she was still struggling  she has always HD home tutoring  from  a tutor  the virus  came in 2020 things got real bad in august 2020 she took an overdose  while she was at her friends house  she only went out now and again thankfully she was ok but camhs didn't help her  they said in September  if she could not engage with them  more  they will discharge  her  they stopped her medication in October by January  they discharged  her I have been trying to get her some  help school rerefferal  us back  to early help who finally took us back on in March 3021 I am now trying to get camhs to  get back involved and also an ehcp  but have been told she will not get one  anyway help would be appreciated thanks for listening. 

Cher_Alumni

Hi @blue63 It's nice to hear from you

I'm sorry you're family is dealing with so much at the moment.  First of all, how are you coping?  Being both mum and carer can be difficult so don't overlook your own needs throughout this.

In relation to your son, is the health assessment form you've received, a UC50 form?  And, what support is he getting to help with his autism and health anxiety?  Is the GP involved?

While, as your daughter had her medication stopped, I'd suggest contacting your GP so they can review this and give advice about how to get a re-referral to CAMHS.  Also, does she have a support worker or social worker?  Has a referral ever been made to children's services? (Apologies for all the questions, it's just so I can get a better idea of where you're at).

EHCP wise, Scope have some advice pages about how to go about navigating this process.  Plus, Irwin Mitchell have a Youtube video explaining more about EHCP's that could be handy. 

If you'd prefer to speak to someone about getting an EHCP, you can contact the following specialist Special Educational Needs and Disabilities (SEND) organisations:

• IPSEA who have a free advice line through which you can book a 30 minute appointment to speak with an advisor.  
• SENDIASS
• SOS!SEN

I'm going to send you an email now to see if we at Scope can do anything to help too, so please keep an eye on your inbox

Katharine_Alumni

Hi there @blue63 It sounds like things have been incredibly difficilt for you all and wanted to check how you are doing? I am a Careers Advisor for Career Pathways so if we are ever able to support your daughter with confidence building or hobbies etc please don't hesitate to get in touch Career Pathways | Disability charity Scope UK
Of course, this might not be the right time at the moment but do reach out if you need to in the future.