PIP, DLA and AA
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What evidence is good to send in to PIP?

charlotte84charlotte84 Member Posts: 41 Connected
edited June 30 in PIP, DLA and AA
Hello all, I’ve seen a few posts regarding gps letters are no good. My question is what actual evidence is good to send in to pip then as my mri results came back yesterday and it was confirmed I have degenerative and bulging discs and also arthritis in the facet joints. Thankyou x

Replies

  • janer1967janer1967 Member Posts: 11,008 Disability Gamechanger
    Hi and welcome 

    The best evidence is your own giving examples of what happens when you try to do the tasks 

    Or reports front people who see you doing the tasks like family or carers also reports from ot or physio 

    You can send mri results but all they do is confirm diagnosis which isn't really in debate 
  • charlotte84charlotte84 Member Posts: 41 Connected
    @janer1967 but don’t the dwp need some sort of evidence of my illness as they can’t just go on family and friends support letters I’m sure. Thankyou for your reply 
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    Basically doctors letters can only confirm diagnosis? They don't spend enough time with you to see you struggling with the descriptors? So a letter is better from people who actually see you on a regular basis and help you to do those things? And examples of how you can't do them safely etc? Have you seen the document about it all? The things they look at? (pip I mean?)
    Because pip isn't given based on what illness we have it's for people who can't do the descriptors or struggle to do them? So someone can have a list as long as they like of confirmed illnesses but still may not get pip? And someone can have say asthma like me and they have never had an attack they just struggle to breathe in certain situations? Where as I can't walk 2 meters because I have asthma? So they can't go on the actual illness because they affect different people differently? Hope that's not confused you further! Xx
  • mikehughescqmikehughescq Member Posts: 6,533 Disability Gamechanger
    Diagnosis is not a requirement for any disability benefit and never has been. That would exclude people with very clear accepted symptoms for whom the final diagnosis is a long road. So, no, DWP do not require anything around diagnosis for that reason and also because they do not generally “require” anything as evidence. When you claim the onus is on you to show that you’re entitled and the evidence you put in to support that is your choice. Evidence which supports a diagnosis is utterly irrelevant if the diagnosis is not in dispute.

    PIP is awarded based on the consequences of your condition rather than the name of it.

    Anecdotal evidence i.e. recent detailed examples of why you can’t reliably perform specific points scoring activities. Two per descriptor is sufficient and detail is your friend. 

    There is nothing wrong with putting your MRI in as evidence but it’s not going to tell anyone a single thing about your ability to prepare food, toilet, dress, bathe, read, budget, mobilise etc. because someone else with a scan which looks exactly like yours may have a completely different experience of pain and stamina and mobility. I have disc degeneration at L3 to L5 plus a small benign tumour in there. Currently I am pain free and fully mobile. I walk 4 miles plus per day before work and can work in the garden for a full day. I know someone with the same as me and indeed their MRI is indistinguishable from mine. They’re on crutches. What use would putting in an MRI be for the two of us? 
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    Basically they need evidence from people who have seen you try and fail to do those things? Or that have helped you? Because it's not about what we have it's about what we can or can't do? 👍😊
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    Have you seen descriptors hun? 
  • charlotte84charlotte84 Member Posts: 41 Connected
    Thankyou so much @Emilyb81 for your message yes it does make sense you really explained it to me well, I’m not very good see at understanding things but your message was fab. Thankyou so much x
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    It took me weeks to get my head around this stuff @charlotte84 it made no sense at first but once I saw what they are actually looking at I saw what they would find helpful to see evidence wise? So il post it so you then have it if you haven't seen it before.... Sorry if you have xx
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    It took me weeks to get my head around this stuff @charlotte84 it made no sense at first but once I saw what they are actually looking at I saw what they would find helpful to see evidence wise?
    I tried to upload it but it's saying I'm not allowed to in this category? So not sure if someone else is able to help please? 
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    Il try again 
  • mikehughescqmikehughescq Member Posts: 6,533 Disability Gamechanger
    Emilyb81 said:
    Basically they need evidence from people who have seen you try and fail to do those things? Or that have helped you? Because it's not about what we have it's about what we can or can't do? 👍😊
    Actually they don’t. Evidence from other people can be useful if directed to the descriptors but often it can do more harm than good. That’s because people often have help from others which is limited by the availability or ability of that person. The care you get may not reflect the care you need and in fact might fall well below it. So,relying on what other people say risks underplaying your needs. 

    Same issue with care plans. They say what you get but that isn’t always the full range of what you need so only a partial picture is painted. Your own anecdotal evidence done properly is always going to be better.
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    Oh no sorry I knew I should not of said anything sorry if I have made things worse now! 🤦🏻‍♀️😔 
    I do think that our own examples are what's needed I just thought getting support letters from people who help us was good too! Turns out I still don't understand this stuff lol sorry 👍
    I didn't mean to say the wrong thing don't want people sending letters in because I said so? It's very hard to know what to do on here as honestly I reply to things if I have been through them myself and offer advice based on what I have done but it has been wrong so maybe I should just stick to asking for help rather than trying to give it 👍🤷🏻‍♀️
    Anyway hope my comment can be taken down somehow? And sorry for giving wrong information...  Intentions were good honest! 
  • calcotticalcotti Member Posts: 2,125 Pioneering
    Emilyb81 said:
    Oh no sorry I knew I should not of said anything sorry if I have made things worse now! 🤦🏻‍♀️😔 
    You haven’t. Mike is simply pointing out that, as with all evidence, you need to look closely at what ‘support letters’ say in relation to your actual needs before you can tell how useful they are.

    So, for example, if you have a support letter from your mum saying she cooks an evening meal for you three tomes a week you need to explain whether on the other four nights you cook your own meal or whether you are unable to cook and only have, say, a bag of crisps. Saying do not rely on evidence from others is not the same as saying it is never useful.

    All evidence needs to be looked at in the round.
    mikehughescq said: Evidence from other people can be useful if directed to the descriptors but often it can do more harm than good. That’s because people often have help from others which is limited by the availability or ability of that person. The care you get may not reflect the care you need and in fact might fall well below it. So, relying on what other people say risks underplaying your needs. 

    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • janer1967janer1967 Member Posts: 11,008 Disability Gamechanger
    @Emilyb81

    We know your intentions are good and you are trying to help 

    Everybody's personal experience and opinions are welcome
    Some members are more experienced in  certain areas that's all 

    Myself and others have learnt so much being here and still learning 

    The importance is that members get information to help them 




  • charlotte84charlotte84 Member Posts: 41 Connected
    @Emilyb81 no I can’t see it hun but Thankyou so much for trying. You no when I get my daughter and dad to write a letter how should I tell them to like write it and who is the letter addressed for xx
  • Ross_ScopeRoss_Scope Posts: 4,097

    Scope community team

    There's nothing wrong with what you said @Emilyb81, there's no need to feel bad about it at all and I hope the comments from other members have reassured you :) 

    As mentioned, sending in a supporting letter written by a health professional or other individual is absolutely fine, as long as the information contained is useful and of relevance to the descriptors. 
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    Talk to our chatbot and give us feedback on the community.
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    Thank you @calcotti I understand what Mike is saying and I know its right 👍
    I just don't mean to give wrong advice  I tend to march ahead and say things meaning well but in this situation for example I have maybe not thought it through fully? I would just hate to think someone has been steered in wrong direction even partly because of something I've commented? So for that I'm sorry? Also it (my phone I think?) keeps telling me nobody has replied to a post so il say something because don't want them sat thinking they're being ignored and then it turns out other more knowledgeable people have in fact already given advice so I look as though I'm speaking over them lol I think it's all taking some getting used to in general? I have a rubbish phone and that's getting fixed today so hopefully some of my problems will be sorted! I have very low self esteem as you can probably tell from my reaction? I tend to take things extra personally! What I really mean by my post before that's came out wrong due to me being an emotional wally is I need to hold back more and let other more experienced people help not saying I won't reply to people etc but I am going to try and not jump in so quick 👍😎😊 so all good! Thanks peeps xx
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    Thankyou @janer1967 😊 and @Ross_Scope 👍😊 as I said above I am learning its amazing how much since being on this forum! About benefits etc and about myself! Pretty cool 😎 and @charlotte84 have you Seen the descriptors so you know what kind of thing is helpful and not? I don't know why I can't post it I've tried several times 🤦🏻‍♀️ I know the people above have the list and explanation of it all? It was probably the most important thing I've got from the forum so far I had never heard of them before! Unfortunately I found out about it all too late after I'd already been told no :disappointed: but I know now so it helped loads with my MR application! Wish I had found out before! 👍😊 Xx
  • Emilyb81Emilyb81 Member Posts: 394 Pioneering
    God I cringe at myself sometimes I am so over emotional! Reading my post again is another example of what I'm saying? I should hang back a bit before I type 😂🤦🏻‍♀️🤷🏻‍♀️👍 oh and I say sorry too much see? Always learning 😎
  • charlotte84charlotte84 Member Posts: 41 Connected
    Aww @Emilyb81 you haven’t said anything wrong hun it actually helped me understand. Don’t put yourself down 😥 im thankful for your advice xx
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