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I've just had a new diagnosis and new sicknote. Do I need to inform Uc / pip/ iidb?

boristheblondeboristheblonde Posts: 65 Listener
edited July 18 in Universal Credit
so so I’ve been in a long battle for the above benefits 
iidb tribunal adjourned yesterday again.
pip is in payment low rate both(maybe should be high rate mobility).
Uc lcw was awarded by tribunal 2 months ago still no reply from dwp(did apply for sor possibly delaying)



ive just had a diagnosis and new sicknote given for fibromyalgia/chronic fatigue/ multiple joint pain.
I think it’s been going on since I fell from a ladder in 2017 which I was compensated by my employers insurer.
do I need to inform uc/pip/iidb?

Replies

  • janer1967janer1967 Member Posts: 11,205 Disability Gamechanger
    Hi there 

    You can report a change in circumstances but would only suggest you do so after getting expert advice 
    .also only if it significantly changes your functionality to complete the tasks 

    Reporting a change will start the whole assessment process off again 
  • mikehughescqmikehughescq Member Posts: 6,646 Disability Gamechanger
    A new diagnosis or fit note is not relevant for any of those three benefits.

    UC? Why unless you're not already getting LCWRA element.
    PIP? Only if the change results would be likely to result extra points. Unlikely if there's been no change in your functionality. It just has a different name.
    IIDB? Not the brightest idea to tell them you have new conditions unrelated to any kind of industrial injury. 
  • boristheblondeboristheblonde Posts: 65 Listener
    A would it be classed as a change if it’s deemed it’s not really a new condition, more of a late diagnosis?
  • mikehughescqmikehughescq Member Posts: 6,646 Disability Gamechanger
    It does not matter whether it's a new condition; a late diagnosis or whatever. What matters - the thing which makes it a relevant changes of circumstances which would have to be declared - is whether a reasonable person would conclude in all the circumstances that it would be likely to result in a change in entitlement. Thus, my answer remains as previous. 
  • boristheblondeboristheblonde Posts: 65 Listener

    So fibromyalgia your saying is unrelated to my fall from height?

    I wouldn’t have said it was new condition more like it came about months after my fall just a late diagnosis.


  • mikehughescqmikehughescq Member Posts: 6,646 Disability Gamechanger
    Back to the same old same old. It's not for me or anyone else to say what is related to what. If you want to say it's related then you will need crystal clear medical evidence to that effect or you're going nowhere fast and possibly dangerously so. 

    However, it makes no difference, and does not need to be declared, if it would likely not change the amount of benefit awarded.

    As it's just a diagnosis it will definitely make no difference to PIP or UC.

    It may impact IIDB but that could be positive or negative. Declare without clear medical evidence and you risk a reduction of your existing award. Declare with clear medical evidence and there may be a change in your favour but only if there has been a change in your loss of faculty. As you're not saying there has been - you're just saying you have a new diagnosis - then there appears to be zero to declare on all fronts. 

    Previous experience suggests you will ignore and declare anyway. Good luck with that. 
  • boristheblondeboristheblonde Posts: 65 Listener
    I do not receive iidb.

    It may impact IIDB but that could be positive or negative.
  • boristheblondeboristheblonde Posts: 65 Listener
    Whilst I do not currently receive iidb, I have I think been placed in lcw group if so maybe it’s worth informing of this discovery and possibility of being placed in the lcwra group. And possibly the low rate pip I get would have amounted to high so maybe it’s worth changing circumstances with pip, I can’t see why it would be lost all together unless I had another bad hcp assessor like I have done in the past.
    maybe j should wait on the results from my recent referral to see a reumatologist.
    thanks for the input btw.
  • mikehughescqmikehughescq Member Posts: 6,646 Disability Gamechanger
    Back to the same old same old. It's not for me or anyone else to say what is related to what. If you want to say it's related then you will need crystal clear medical evidence to that effect or you're going nowhere fast and possibly dangerously so. 

    However, it makes no difference, and does not need to be declared, if it would likely not change the amount of benefit awarded.

    As it's just a diagnosis it will definitely make no difference to PIP or UC.

    It may impact IIDB but that could be positive or negative. Declare without clear medical evidence and you risk a reduction of your existing award. Declare with clear medical evidence and there may be a change in your favour but only if there has been a change in your loss of faculty. As you're not saying there has been - you're just saying you have a new diagnosis - then there appears to be zero to declare on all fronts. 

    Previous experience suggests you will ignore and declare anyway. Good luck with that. 
    Already been answered in full. 

    When I talk of “clear medical evidence” I do not mean evidence of diagnosis. I mean evidence of impact. You have none so… nothing to declare.
  • boristheblondeboristheblonde Posts: 65 Listener
    Evidence of impact I take it this is down to medical professionals supporting this?
    and if they don’t where do you go from there or that be the end of the line?
    does anything I say have a impact on the decision?
    medical evidence is there but it is only that being:
    injury described by orthopaedic consultant from medical legal claim directly referencing injury sustained yet not finalised, then nhs ankle/knee consultants not really suppprting suggesting I already had these problem prior to injury, adding insult 
    annoyed is an understatement!
    couldn’t believe it when the ankle consultant laughed  & suggested i had these problems prior to work injury or that it was incidental from diagnostic scans
  • boristheblondeboristheblonde Posts: 65 Listener
    So who helps with this if medical professional do not see the following,
    if I could walk on average 12to15k steps per day at work symptom free and after an injury 2k steps causes significant pain (with strong medications) to force non weight bearing. 
    Is that not a deteriation which now is more like a couple of hundred steps.
    is the burden of proof on my anecdotal evidence? Close family members? Or consultants/gp?

    as some say I apparently have no evidence…
    . I’d say this is evidence that’s relevant but. No doubt I’m incorrect or have ignored advice or have nothing nada zip and that my solution is to get a citizens advice rep onboard….. who will undoubtedly have multiple cases and my ability to communicate verbally is somewhat inadequate 



  • mikehughescqmikehughescq Member Posts: 6,646 Disability Gamechanger
    You have no case here without a consultants report to say you have a case here. 

    As you're dismissive of what an actual ankle consultant said because, presumably, you have some better medical evidence from an equivalent expert then I suggest you go with that. However, what I am reading here is that you very much don't have a shred of evidence to support your case it's not so much that the matter is at an end and more that you have nothing to get it started with in the first place. 

    Useful to remind ourselves that you have a new diagnosis and that is it. Nothing else. It is meaningless. 
  • mikehughescqmikehughescq Member Posts: 6,646 Disability Gamechanger
    Let's be clear that "some" is me. I don't welcome the passive aggression. If you have something to say then say it and say it to me. 

    You have started another pointless thread in an attempt to do what exactly? You haven't even laid out the full scenario here for others to comment. Bottom line? You have had a new diagnosis. You have no consultants report to support a deterioration and for IIDB that's the minimum you would need. If you don't have it then that matter is at an end. 

    For PIP and ESA, as already stated multiple times, a change of diagnosis is not a change of circumstance. There is nothing to report unless it has been accompanied by a deterioration of such an extent you would score more points.

    Some random deterioration you assert by anecdote is fine but not really the point. The point being what specific points would you then score which you did not previously. If you submit anecdote with no idea as to what it is you're aiming for and just some random fairly forlorn hope it will magically change a "no change" outcome then you are dreaming. 

    I do apologise for being so blunt but you keep asking questions and simply will not accept the answers. If you keep doing the same thing you get the same outcome. 

    Frankly anyone who can do 2,000 steps is going nowhere as regards PIP mobility. 
  • Cher_ScopeCher_Scope Posts: 4,087

    Scope community team

    edited July 19
    Hi @boristheblonde

    I've merged the new thread you posted as it appears to be on the same lines as this existing one, and for ease of replying/having a whole picture it makes sense for all information to be in one place.  

    You mention that you struggle to communicate verbally and this is one barrier to accessing the welfare advice you need.  Have you tried searching for an organisation close to you via the Advice Local website?  If you email an organisation to explain your communication difficulties, then the provision of email support could be explored.  How do you feel about that?
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • boristheblondeboristheblonde Posts: 65 Listener
    It’s all good advice, I’ve had nothing but good advice.
    I find this Mike guy fascinating and agree with most of statements. 
    I’ve had some support from advice local.
    But they only take ppl on with new forms.
    iidb seems to me you need legal advice 
    Have found no one supports iidb claims…,

    blunt should be your middle name Mike that’s just how I perceive some of your comments helpful non the less and I appreciate your time.

    thanks

  • boristheblondeboristheblonde Posts: 65 Listener
    2000 steps was 8 days after my injuries or the undiagnosed ones when I returned to work.
     Months later without resolving diagnostic scans revealed knee meniscus damage & OA and 2 years later another diagnostic scan revealed a fracture which an ankle specialist from legal claim linked, yet when I seen an Nhs ankle specialist he stated it’s just a bruise like what you see on an apple and lost of ppl have them & that it’s incidental due to other symptoms (I should have argued at the time that symptoms were not ) yet here I am 2 damaged knees & ankles yet medical reports only reference one leg I’m adamant it’s both.
    My symptoms are stiffness sharp pain/aching instability in these weight bearing joints which worsens with the instability or inflammation or prolonged use without some serious physio/ weight loss now accompanied by weakness these symptoms are exacerbated with use.
    at least now that I’ve been backheeled from knee & ankle surgeons with suggestions will make me worse if I even have anthrscopy due to all three knee compartments joint space narrowing, I will see a reumatologist maybe I can get somewhere with all my other problems not included in the injury’s sustained or undiagnosed injuries 
    whiplash neck pain sustained in works van, long term lower back pain, or more recently developing hand pain

    are the mobilising criteria’s of pip or lcw distances only considered on flat ground and straight lines without turns ?


  • mikehughescqmikehughescq Member Posts: 6,646 Disability Gamechanger
    edited July 20
    are the mobilising criteria’s of pip or lcw distances only considered on flat ground and straight lines without turns ?

    I've deleted the history from the quote as it's not relevant. If you want evidence which disagrees with the medical evidence you have already then you need to go get it. However, it will need to be absolutely compellingly in opposition to what you have. I'm struggling to see why it would be. You can repeat the history here forever and try to come at this from as many different angles as you wish. It really doesn't matter. You need medical evidence and if you don't get or have it then the discussion has no purpose. The matter is at an end. 

    The mobility test is outdoors on flat ground. You don't have to walk in a straight line as that's near impossible. Moving should be given a plain English meaning. However, the activity is measuring mobility rather than walking and that would undoubtedly involve some turning. In the end though, so what? It's the same issue. Can you move distance x reliably? If not then you score the points. 

    However, "fascinating" you find me I'm afraid my conclusion at present is that I'm clearly not being clear or blunt enough.   
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