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Hi, my name is stevearfa! I've had MS since around 2000

stevearfastevearfa Member Posts: 4 Listener
Hi there I’m Steve in Birmingham a d have had MS since 2000, although my nurse feels I’ve had it since college.

Replies

  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    Hi and welcome to the community Feel free to join in or ask any questions 

    I hope to see you around 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,751 Disability Gamechanger
    Welcome to the community @stevearfa how are you doing today? :)
    Disability Gamechanger - 2019
  • stevearfastevearfa Member Posts: 4 Listener
    Ami2301 said:
    Welcome to the community @stevearfa how are you doing today? :)
    Hi Ami not doing well in this heat. Pretty much worn out!😒
  • stevearfastevearfa Member Posts: 4 Listener
    janer1967 said:
    Hi and welcome to the community Feel free to join in or ask any questions 

    I hope to see you around 
    Thank you Jane 😊
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,751 Disability Gamechanger
    I know what you mean, fans are my best friends at the moment!
    Disability Gamechanger - 2019
  • Cher_ScopeCher_Scope Posts: 4,038

    Scope community team

    Hello @stevearfa and a warm (sticky) welcome from me too  :)  It's great to meet you.

    My nan had multiple sclerosis so I have some insight into the condition and know how challenging it can be.  How are you managing?  Did the diagnosis come as a relief at the time?  I remember my nan had lots of support from the MS Society - have you had a look at their website too? 

    If there's any questions you have that we might be able to help with, then please just give us a shout.  Otherwise, feel free to have a mosey around the community, perhaps looking at our various chat categories and stopping by our friendly virtual coffee lounge.

    Take it easy and I hope to speak again in the near future! 
    Online Community Co-ordinator

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  • stevearfastevearfa Member Posts: 4 Listener
    Hi Cher yes I cared for my Dad who had Alzheimer’s and my Mum had MS and breast cancer. Both are now long gone and at rest. 
    I used to be in my local MS society group and did a little voluntary work for them, but as with any group of people can do, I clashed with someone so left the group. I’m still in touch with a few of the members and meet now and again for a coffee.
  • Ross_ScopeRoss_Scope Posts: 4,173

    Scope community team

    Welcome to the community @stevearfa

    Rest in piece to your parents, I imagine they were very grateful for your care. I'm sorry to hear that things didn't work out with the local MS group, but good to hear that you remain in contact with some of them.
    Online Community Coordinator

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