Hi, my name is stevearfa! I've had MS since around 2000

stevearfa
stevearfa Online Community Member Posts: 4 Listener
edited July 2021 in Start here and say hello!
Hi there I’m Steve in Birmingham a d have had MS since 2000, although my nurse feels I’ve had it since college.

Comments

  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community Feel free to join in or ask any questions 

    I hope to see you around 
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Welcome to the community @stevearfa how are you doing today? :)
  • stevearfa
    stevearfa Online Community Member Posts: 4 Listener
    Ami2301 said:
    Welcome to the community @stevearfa how are you doing today? :)
    Hi Ami not doing well in this heat. Pretty much worn out!?
  • stevearfa
    stevearfa Online Community Member Posts: 4 Listener
    janer1967 said:
    Hi and welcome to the community Feel free to join in or ask any questions 

    I hope to see you around 
    Thank you Jane ?
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    I know what you mean, fans are my best friends at the moment!
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    Hello @stevearfa and a warm (sticky) welcome from me too  :)  It's great to meet you.

    My nan had multiple sclerosis so I have some insight into the condition and know how challenging it can be.  How are you managing?  Did the diagnosis come as a relief at the time?  I remember my nan had lots of support from the MS Society - have you had a look at their website too? 

    If there's any questions you have that we might be able to help with, then please just give us a shout.  Otherwise, feel free to have a mosey around the community, perhaps looking at our various chat categories and stopping by our friendly virtual coffee lounge.

    Take it easy and I hope to speak again in the near future! 
  • stevearfa
    stevearfa Online Community Member Posts: 4 Listener
    Hi Cher yes I cared for my Dad who had Alzheimer’s and my Mum had MS and breast cancer. Both are now long gone and at rest. 
    I used to be in my local MS society group and did a little voluntary work for them, but as with any group of people can do, I clashed with someone so left the group. I’m still in touch with a few of the members and meet now and again for a coffee.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Welcome to the community @stevearfa

    Rest in piece to your parents, I imagine they were very grateful for your care. I'm sorry to hear that things didn't work out with the local MS group, but good to hear that you remain in contact with some of them.