Hi, my name is cloe! My daughter has been diagnosed with Cerebral Palsy — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Hi, my name is cloe! My daughter has been diagnosed with Cerebral Palsy

cloe
cloe Member Posts: 1 Listener
edited July 2021 in Cerebral palsy
Hello, 
my daughter has been diagnosed with cerebral palsy today and just wanted to reach out to anyone with knowledge on what we can do to help her?

Comments

  • janer1967
    janer1967 Member Posts: 16,417 Disability Gamechanger
    Hi and welcome to the community Sorry to hear about your daughter I can imagine you will be feeling quite concerned at present 

    We have lots of members who have cp there is also a section on here 

    We also have a dedicated cp adviser who I will tag in and he will be in touch when he is on the community 

    @Richard_Scope
  • Ross_Scope
    Ross_Scope Posts: 7,487 Scope online community team
    Hello @cloe and welcome to the community, good to see you join us. 

    It's normal to sometimes feel uncertain about things after your child receives a diagnosis, and I imagine this is quite an emotional time for your family, but you've done the right thing in reaching out for help.

    As mentioned by Janer1967, hopefully Richard will get in touch with you through this thread, but otherwise is your child receiving all the support they require from their GP? Have you had conversations with them about how you could best support your child?
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it.
  • Richard_Scope
    Richard_Scope Posts: 3,176 Scope online community team
    Hi @cloe
    It's really good to virtually meet you. Receiving a diagnosis can bring up a mix of emotions and it is very important for you to remember that there is no set way that you should feel. 
    Your daughter should be under the care of a paediatrician and should be given access to regular physiotherapy this will help with her mobility and coordination. We have lots of information about Cerebral Palsy and services such as Navigate and Parents Connect for families that have received a recent diagnosis. 
    I live with CP too and I'd be more than happy to talk to you over email about your thoughts and concerns. Please remember that you are not alone in your journey.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • WestHam06
    WestHam06 Member, Scope Volunteer Posts: 1,396 Pioneering
    Hi @cloe
                    Welcome to the community and thank you for joining us. How are you? Receiving a diagnosis can bring an array of emotions and as @Richard_Scope has said there is no set way as to how you should feel. You may find you feel different emotions at different times. Thank you for reaching out, I can see you have had some great advice already and I just wanted to say that I also live with CP and would be happy to try and answer any questions you may have. We are a friendly and supportive community. Best wishes, thanks. 

Brightness

Complete our feedback form and tell us how we can make the community better.