Hi, my name is Lemony! My son has CP and I'm looking for advice

Lemony

My son has CP and I want to know everything I can about it and about what I can do to be a good mum to him. 

janer1967

Hi and welcome to the community 

I hope you are your son are doing well 

There is a section on here for cp and lots of members here with it so have a look around 

We also have a cp adviser who will help 

@Richard_Scope

Richard_Scope

Hi @Lemony
It's really good to virtually meet you. Lots of love and support is always important and wanting to learn more shows that you are already doing great! Receiving a diagnosis can bring up a mix of emotions and it is very important for you to remember that there is no set way that you should feel. 
Your daughter should be under the care of a paediatrician and should be given access to regular physiotherapy this will help with her mobility and coordination. We have lots of information about Cerebral Palsy and services such as Navigate and Parents Connect for families that have received a recent diagnosis. 
I live with CP too and I'd be more than happy to talk to you over email about your thoughts and concerns. Please remember that you are not alone in your journey.

Ross_Alumni

Hello @Lemony

Welcome to the community, good to see you join us and it's great that you are seeking advice to help you with your son. It can often be a worrying time when you receive a diagnosis about your child but getting the diagnosis is a positive step in that it enables you to receive further support.

How is your son coping at the minute?

Lemony

Thanks so much for your replies!

Please could I have your email address, Richard?

At the moment, I'm just trying to find out everything I can about CP and wondered if there are any experiences here that I should read about or blogs or things parents of children with CP should know? 

Richard_Scope

Hi @Lemony
If you click on my name you will see my email address

forgoodnesssake

I think the other thing to bear in mind is that CP is not just one thing: there are a few different types, depending on which bits of the brain have been affected, and the different type of CP do bring with them different (possible) issues. And of course people are affected by CP right from virtually no impairment to being quite complexly (is that a word?!) disabled.  I think the Scope info does describe the broadly different types. 

WestHam06

Hi @Lemony, 
                     How are you? Welcome to the community and thank you for joining us. By wanting to find out as much information as possible already shows what a brilliant Mum you are being though love, support and understanding are also key elements in supporting a child with CP as they are with any child. The important thing to remember about CP is that it affects no two people in exactly the same way. Scope has some fantastic advice and our brilliant CP Specialist Officer @Richard_Scope can support. I have CP and would be happy to try to answer any questions you may have. We are a friendly and supportive community. Best wishes, thanks

Lemony

Thank you so much for your lovely reply! I've just spoken to a lady at Scope about a 6 week course I can go on with my husband, which seems ideal, so I'm really grateful for that. 

It's so good to know I have people like you as a contact for when questions crop up as I know they will do! 

WestHam06

Hi @Lemony, 
                      I hope that you have had a good week. I'm really pleased that you have spoken to someone at Scope and that there is a course available which may help yourself and your husband. Please do just ask any questions you may have and we will do our best to answer. Best wishes, thanks.

Lemony

This is wonderful - thank you! I know lots more questions will come up and I'll know where to come to ask them ?