Cerebral Palsy
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Hi, my name is Lemony! My son has CP and I'm looking for advice

LemonyLemony Member Posts: 3 Listener
edited July 21 in Cerebral Palsy
My son has CP and I want to know everything I can about it and about what I can do to be a good mum to him. 
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Replies

  • janer1967janer1967 Member Posts: 11,008 Disability Gamechanger
    Hi and welcome to the community 

    I hope you are your son are doing well 

    There is a section on here for cp and lots of members here with it so have a look around 

    We also have a cp adviser who will help 

    @Richard_Scope
  • Richard_ScopeRichard_Scope Posts: 2,829

    Scope community team

    Hi @Lemony
    It's really good to virtually meet you. Lots of love and support is always important and wanting to learn more shows that you are already doing great! Receiving a diagnosis can bring up a mix of emotions and it is very important for you to remember that there is no set way that you should feel. 
    Your daughter should be under the care of a paediatrician and should be given access to regular physiotherapy this will help with her mobility and coordination. We have lots of information about Cerebral Palsy and services such as Navigate and Parents Connect for families that have received a recent diagnosis. 
    I live with CP too and I'd be more than happy to talk to you over email about your thoughts and concerns. Please remember that you are not alone in your journey.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Ross_ScopeRoss_Scope Posts: 4,097

    Scope community team

    Hello @Lemony

    Welcome to the community, good to see you join us and it's great that you are seeking advice to help you with your son. It can often be a worrying time when you receive a diagnosis about your child but getting the diagnosis is a positive step in that it enables you to receive further support.

    How is your son coping at the minute?
    Online Community Coordinator

    Talk to our chatbot and give us feedback on the community.
  • LemonyLemony Member Posts: 3 Listener
    Thanks so much for your replies!

    Please could I have your email address, Richard?

    At the moment, I'm just trying to find out everything I can about CP and wondered if there are any experiences here that I should read about or blogs or things parents of children with CP should know? 
  • Richard_ScopeRichard_Scope Posts: 2,829

    Scope community team

    Hi @Lemony
    If you click on my name you will see my email address :)
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • forgoodnesssakeforgoodnesssake Member Posts: 367 Pioneering
    I think the other thing to bear in mind is that CP is not just one thing: there are a few different types, depending on which bits of the brain have been affected, and the different type of CP do bring with them different (possible) issues. And of course people are affected by CP right from virtually no impairment to being quite complexly (is that a word?!) disabled.  I think the Scope info does describe the broadly different types. 
  • WestHam06WestHam06 Member, Scope Volunteer Posts: 1,354 Pioneering
    Hi @Lemony
                         How are you? Welcome to the community and thank you for joining us. By wanting to find out as much information as possible already shows what a brilliant Mum you are being though love, support and understanding are also key elements in supporting a child with CP as they are with any child. The important thing to remember about CP is that it affects no two people in exactly the same way. Scope has some fantastic advice and our brilliant CP Specialist Officer @Richard_Scope can support. I have CP and would be happy to try to answer any questions you may have. We are a friendly and supportive community. Best wishes, thanks
  • LemonyLemony Member Posts: 3 Listener
    Thank you so much for your lovely reply! I've just spoken to a lady at Scope about a 6 week course I can go on with my husband, which seems ideal, so I'm really grateful for that. 

    It's so good to know I have people like you as a contact for when questions crop up as I know they will do! 
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