The worst pain ever has to be…

cat_hug

@Username_removed I can completely sympathise. I had surgery on my eyelid a few weeks ago. It still gives me pain sometimes.

That said, the worst pain I ever had, (worse than brain aneurysm, giving birth and the worst toothache all combined!) Has got to be getting my big toe-nail ripped out of the nailbed and breaking the toe at the same time. (Took A and E around 3/4 hours to sort it and stich it back into the nail-bed)

A joint first with that, was having a tongue biopsy. The actual anaesthetic injection itself was brutal, but the stitches on the tip of my tongue afterwards was absolute torture! 

They were supposed to dissolve but didn't and kept getting snagged on a lower tooth the surgeon chipped during the procedure.

I also had a biopsy at the same time where the cut into the back lower gumming and cut a piece out and stitched it. Couldn't eat for a month, except like warm tomato soup.

That surgery on my tongue and the toe-nail were horrific!  ( I also have a very high pain thresh hold and have walked on broken bones, used my hands with broken fingers and even had ribs broken without realising they were broken)

Cress

Child birth...which made me think I wouldn't want to have another child!
Nurse said to me 'do they think you're going to give birth naturally?' Unnerved me to say the least, I think it was because I was only 6 1/2 stone at the start.
But I was quite pleased with myself because I managed to push my son out, face blotchy with burst blood vessels and the very fit sporty lady opposite me in the ward had, had to have forceps. Lol

Toothache, well an abcess, is evil. Was in agony few months ago...the abcess burst and the pain went immediately.
If I'd known that I'd have tried to burst it myself sooner. Still had to go the dentist though.

I once had what the hospital called a 'squeeze when I broke my wrist years ago.
It was fracture reduction, or something, in other words a doctor manipulated my broken wrist to realign the bones before putting a cast on.
I was given gas and air but the pain was still horrendous.

Topkitten

I am sure many people would state Toothache but that is nothing compared to an Abscess. Both revolve around nerve pain and some parts of childbirth do too which is why it feels so bad at times. However all 3 can be coped with, with appropriate pain relief. What I suffer is many times worse than any of the above. In the case of Toothache and Abcess only a handful of nerves are damaged and about 2 or 3 times that during birth. I get continuous Chronic Pain (as opposed to the intermittent alternative) from a whole leg full of nerves and now some in my hips and groin are joining in. Around 15% of my body is generating nerve pain damage with every movement I make. There is no pain relief strong enough to do anything else but reduce my pain. I have tried opiates up to Fentanyl at a level given to terminal Cancer patients. Not nerve pain killers and I have tried all 5 and currently use 2 but they wont let me go any higher as they supposedly become lethal. And not NSAID's (like Ibruprofen and Naproxen and I have tried both of those too). I haven't had a single moment pain free in a decade except when I came out of a coma a few years ago (it lasted 12 hours and was bliss). Oh yes I tried the gas and air that women use during childbirth too, it had no effect.

I have also broken both bones in my lower leg (Tibia and Fibula) simultaneously but that responded easily to an opiate and was still much less than I get now.

Cress

Sounds horrific @Topkitten
Ghoulish of me but would amputation be something they / you could look at?
Must be dreadful having that kind of pain 24/7..

Topkitten

Ty for your concern @Cress. The last 10 times I have spoken to a doctor or A&E I have asked them heatedly for 2 surgeries. Amputation of the leg to prevent contact pain (anything touching the skin, even trousers, sets off the permanently damaged nerves) and Scoliosis surgery to prevent further degeneration being a problem. Only 1 of those doctors has taken me seriously and listened (A&E doctor) and he went to his Consultant and came back apologizing. His Consultant recommended Mental Health instead because he was and is an idiot. I have been assessed 5 times by MH and all 5 reached the same conclusion "If I received better physical support I wouldn't be anything like as bad mentally". I am afraid that arrogance and stupidity runs rife throughout doctors in general.

Susanannr52

my son fell from his housetop roof 13 yrs ago and badly damaged his left foot, the hospital put nuts and bolts to try and mend the broken bones
after what seemed like an eternity to him, with trying all what meds were available, he pleaded with them to cut his foot off, they did, but who ever did it stretched the skin over the wound so tight it was causing nerve pain every time he put his leg into the prosethic foot, after heated discussions they finally cut more off his leg, the only thing now is the calcification of the bone is growing through the wound, because of Covid he’s been waiting for yet another operation to help get him relief from the pain

keep pestering the consultants. 

cat_hug

@Susanannr52 omg how awful! You wouldn't let a pet suffer in pain this way, I truly hope your son gets this sorted very soon. Xx

cat_hug

@Susanannr52
Maybe writing a complaint to your local PALS (patient liaison advisory service) will get things moving?

I had an elderly neighbour who was denied her one year post op breast cancer check up.

It turned out the hospital trust had made a policy change not to follow up with patients above a certain age.  This had been kept hush hush so nobody complained. Because nobody complained, it continued.

Luckily, my neighbour mentioned to me her appt was 5 months past due and she was being conflicting onfo whenever she rang.

Also very fortunately, she was meticulous at keeping records, which made it really easy for me to advocate on her behalf and I put in a vociferous complaint about discriminating against elderly vulnerable patients.

I mentioned a slightly barbed comment about the LHA employing the Liverpool pathway without patients informed consent.

Pretty shortly after, I received a call from the chief nurse who headed the breast cancer unit.

She thanked me for taking the time to initiate a formal complaint on behalf of my neighbour. She confided this new policy had troubled her greatly too but as nobody had complained, it remained in place until now.
Suffice to say, not only did PALS get my neighbour her post op care reinstated and promise of 5 year post cancer check ups, but the ageist policy secretly implemented, was also rescinded so all breast cancer patients, whatever their age, still got the follow up care given to younger patients.

It was a great result not just for my lovely neighbour ( nobody should be put on a scrap heap!)  All lives are sacred in my opinion. Knowing this helped future patients of the W.Yorks. Health authority and implemented change for elderly vulnerable cancer patients was a heartening result too.

Your local PALS are quite a powerful force to right any concerns or errors regarding your sons treatment. You can complain on his behalf with his informed consent or he can write himself.

I imaGine however, he mY not feel up to it if he's constantly in pain. So maybe could use his Mums help. Good luck to you both and  I pray for a swift resolution.

You can initiate this online BTW, and they're pretty prompt in investigati g and finding a resolution in my experience. Good luck Xx

Waylay

@cat_hug Ooh, yes, had a core taken out of my tongue once, and it was.... Unspeakable. They said paracetamol would take care of it. Hah! I was in agony w/ paracetamol, naproxen, bonjela and orajel. Thankfully I had tramadol for my chronic pain, and that took enough of the edge off to make it bearable. 

Waylay

My worst pain was when I had a radiofrequency denervation of the nerves around my L5/S1 disc. Had to be awake to tell them they were in the right place. They place a needle on the nerve, conect it to a pad on your thigh and a source of electricity, and "lesion" the nerve. Yeah. Basically iy means that it heats up until it dies. OMG. I was given medazolam and fentanyl, so my memory of it is fuzzy, but not fuzzy enough. 

Waylay

My other worst pain (huh, maybe I shouldn't write another - delete if too much) is the worst back spasm I ever had. 

I have chronic pain, sciatica and nerve damage from lumbar spinal surgery. I can handle the usual pain a lot of the time (with a bit of naproxen, heat, cold, TENS, tramadol, etc.) The worst part is that I get muscle spasms. They start in my left lower back, spread down through my upper butt and hip, and usually to the back of my thigh. They can last 10 minutes or up to 9 days; make it difficult to walk up to making it difficult to roll over; and go from a 6/10 pain to a 9.5/10. I have all kinds of non-pharmaceutical and pharmaceutical ways of coping with them, including oral morphine (which I take very rarely), but about 5 years ago I had 1 that was just... evil. After 3 days of not sleeping, I went to A&E. They tried some things, but eventually admitted me for 5 days of IV morphine. That did it.

andyk

i sure know how you feel ,iam the same  19 hours for my back to stay in a spasm it popped another dic this time 
leaving me with no feeling in my top right thigh oramoph liquid plus two slow realise tablets gould not even breath propely if i did to deep it would set it off again,plus not even being able to get off the bed to use the toilet not a nice thing for your partner to have to deal with so my thoughts to you my friend i share some the same pain 

cat_hug

@andyk
Sounds horrendous Andy. Think that's what they do with my cardio ablation? Basically thread a catheter through femoral artery up to the heart valves, then burn the connections that cause the dodgy heart rhythms and hope it stops or improves the arrhythmia.

I'm not sure what 'happy juice' the give intravenously, but whatever it is, despite laying supine for hours and awake and getting nerves in my ticker burnt away, it actually sounds worse than it was.

But your spine...eek no way, couldn't cope with that. Spinal tap for meningitis was bad enough!!

Feel a little of your pain too. Hope things better now? Hugs Xx

gaz1960

Worst pain ever? 

Don't even mention cutting off hemmoeroids!    That's pain! That was 30 years ago, and i still have the hebbie jebbies! 

Cardio ablation, offered,many times, when they can actually do better than 10% possibility of success? 

Last nurse doing ECG,her last patient,had ablation, 25 times,without success! 

I still say to my doctor,when you can guarantee it'll work,let me know! 

Biggest pain at the moment, getting a face to face appointment with a doctor! Lol 

Lee39

Stepping on Lego Bare Foot...... 

After that 100% Toothache!! 

Shastus

Crohns is the worst pain I’ve ever had

oldngrumpy

For me its got ro be Gout.

It reduces me to tears

Cress

Lee39 said:

Stepping on Lego Bare Foot...... 

After that 100% Toothache!! 

Got to agree with the lego and would add stickle bricks...

tru88le

Having a perianal abscess  popped by a doctor was high on my list,  ive never screamed like that before, not on a ward anyway..

Im intrigued by toothache i got watching derren brown give someone toothache on tv., i got it as he induced it by hypnotism  and it went when he made it go on tv, unbelievable that someone can induce real toothache just like that...