Hi, I'm Monsoon55! Despairing of getting SDS to help pay for my 11yo son's respite.

Monsoon55

Despairing of ever getting SDS to help pay for respite care for my 11 year son with GDD. Council are saying there's no funding and I should apply again when he's 12 years old as he's entitled to more funding. Am widowed parent of two disabled kids, oldest is Aspergers. Not sure exactly who's getting the respite care, to be honest.

Cher_Alumni

Hi @Monsoon55 and a warm welcome to our online community.  How are you today?

I'm sorry it's been a struggle up to press to get SDS - can I just check you mean self-directed support?  Do you live in England?  If you could give us those details it would help us think about what else you might be entitled to.  

Being a widowed parent too must come with it's own challenges, I'm very sorry about the loss of your other half.  Are you managing ok day to day?  Do you get much support?  Yep, I'm afraid more questions but fingers crossed we can help in terms of thinking about emotional/practical support out there for you.

I've moved your thread to our Parents, carers and disabled parents category and amended the title to make it more visible to other members   I hope today's a good one for you and your children.  Take care and I hope to speak again soon.

Monsoon55

Hi thanks for moving my query to the right spot. We live in Scotland. I have been seeking Self Directed Support to help pay for respite care for almost two years now. 

Monsoon55

Can anyone give me a rough idea of how much residential respite care is for 11 year old with GDD. No physical disabilities but has significant learning difficulties which means he needs constant supervision. Just trying to get idea of costs.

chiarieds

Hi @Monsoon55 - & welcome to the community. I'm hoping the following links may help you:

I found that,'SDS has been implemented partially and inconsistently across Scotland. Evidence shows that some local areas have embedded SDS well, while others are challenged to make the changes required for successful SDS implementation.'See: https://www.gov.scot/publications/self-directed-support-framework-standards-including-practice-statements-core-components/

Perhaps this charity may be helpful: https://www.enable.org.uk/get-support-information/self-directed-support/ & there's:

https://careinfoscotland.scot/topics/how-to-get-care-services/self-directed-support/

Depending on your location: https://www.phewrespite.org.uk/   (they charge just less than £200 a night)

Ross_Alumni

Hello @Monsoon55

Welcome to the community, good to see you join us. 

I am not sure of the costs myself, but you might find this resource on the NHS website helpful, which gives an overview of respite care and includes some information about what you may expect to pay.

Monsoon55

Thank you I'll check it out