Hi, my name is debbieproctor42!

debbieproctor42
debbieproctor42 Community member Posts: 2 Listener
in Start here and say hello!
I am blind in left eye and having eye removed I also suffer with thyroid and high blood pressure iwork full time never considered it as a disability until I saw the advert on itv

Comments

  • cozyplants
    cozyplants Scope Member Posts: 44 Contributor
    Hi Debbie!! Welcome to the community. I'm new here too :) how's your day going?
  • Katharine_Alumni
    Katharine_Alumni Community member, Scope Member Posts: 66 Contributor
    Welcome to both of you :) Glad the advert was supportive and helpful to you @debbieproctor42
    How are you both doing this evening?

  • debbieproctor42
    debbieproctor42 Community member Posts: 2 Listener
    Not bad didn't realise I had a hidden disability have my eye removed in 12 weeks how are you
  • cozyplants
    cozyplants Scope Member Posts: 44 Contributor
    Sometimes people don't realise they have something that can be considered a disability for a long time! I'm glad that advert helped you realise. I can't imagine how scary it might be to have your eye removed, I hope you're coping okay and treating yourself with kindness! How are you feeling about it?
    As for me, I'm hanging in there. Not a great day today but hoping I'll feel a little better tomorrow :blush:
  • Katharine_Alumni
    Katharine_Alumni Community member, Scope Member Posts: 66 Contributor
    I'm doing ok thank you. That must have been a frightening experience for you @debbieproctor42
    Sorry to hear you have had a bad day today, @cozyplants - take it one step at a time tomorrow and take care of you :) 
  • cozyplants
    cozyplants Scope Member Posts: 44 Contributor
    @Katharine_Scope, thank you! I'm trying my best. Just laying in bed and waiting for it to pass at the moment. Still trying to work out if it's a flare up or if I have an infection/virus, haha. Never a dull moment with chronic illness.
  • chiarieds
    chiarieds Community member Posts: 16,331 Championing
    Hi @debbieproctor42 - & welcome to the community. It's so good to see people joining after seeing the TV advert.....something so positive. We'll all be here to offer support as & when you may need it. My best wishes. :)
    @cozyplants - I hope tomorrow is a better day for you, & it's so nice to see you joining in & offering your support. :)
  • Tori_Scope
    Tori_Scope Scope Posts: 12,443 Championing
    Welcome to the community @debbieproctor42 :) It's great that you found us through the ITV advert!

    How are you feeling about the operation? Have you been able to cope okay at work? 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,443 Championing
    How are you feeling today @cozyplants? 
  • cozyplants
    cozyplants Scope Member Posts: 44 Contributor
    @Tori_Scope, I'm feeling a little better today! I managed to make it to an online chronic fatigue support group, which was lovely. Just spending a few hours recouperating now :) How are you?

  • Tori_Scope
    Tori_Scope Scope Posts: 12,443 Championing
    Oh that sounds great @cozyplants :) What kind of things do you do during the session?

    I'm well- thanks for asking! 


  • cozyplants
    cozyplants Scope Member Posts: 44 Contributor
    Glad you're well @Tori_Scope. The sessions are run by ActionForME, and funded by children in need, which is amazing. It's one workshop split into three to get to know other C+YP with ME/CFS, talk about things that are difficult and what makes it easier, some little games and ice-brerakers etc. Mostly just a way to meet people and discuss things that others our age might not understand. Next week is the last session, I believe we'll be focusing on representing our illness though art and writing; which is an amazing coping skill in itself. I might write a little post on here about my experience after the last session, it might be really helpful for other young people in the future :smile:
  • Tori_Scope
    Tori_Scope Scope Posts: 12,443 Championing
    Oh that sounds fantastic @cozyplants! The sessions sound really good, I'm glad they've been helpful. 

    A post sounds great. Would you be interested in writing this as a guest blog? 
  • cozyplants
    cozyplants Scope Member Posts: 44 Contributor
    @Tori_Scope, that sounds like a great idea, yes :smile:
  • Tori_Scope
    Tori_Scope Scope Posts: 12,443 Championing
    Fab. I've left a note for Cher, who coordinates our content @cozyplants :) 
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,715 Championing
    Hi @cozyplants

    I've just sent you an email with a little more information.  Please do give it a read and get back to me whenever you like :)

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