If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, I'm Lola1966! I have spondylosis, awaiting urgent referral to neuro. Can anyone offer advice?
Options
Lola1966
Community member Posts: 1 Listener
Hi I’m totally new to this forum! I’ve recently had an mri which shows significant spodylitic changes c5/c6 with narrowing of central canal and myelomalacia. I also have prolapsed disc l5/s1 which was diagnosed 2018. I’m due for urgent referral to neuro team but on my recent discharge letter it says once the patient has passed pt assessment can be discharged???? I’ve been suffering for a long time and feel like I may now be fobbed of with physio and pain meds-bearing in mind I’ve already tried pregabalin,naproxen,amitriptyline,codeine ect ect in the past……is the anyone in same or have been in similar situation that can shed any little bit of advice???? Tia….sorry for the long post
Comments
-
Hi @Lola1966 and a warm welcome to our community, it's great that you found us but I'm sorry you're in such a lot of pain.
In terms of advice, as we aren't medically trained we'd be unable to offer reliable input into what might/might not happen as a result of the neuro referral I'm afraid. However, I completely understand your apprehension about being left in a similar position and I'd encourage you to share with the neuro team your fears about this in detail, including the medications you've listed and any other self-help exercise you might have tried.
In the mean-time, I've moved your thread to our 'Physical impairments and mobility issues' category and amended the title to make your question more visible to others who have spondylosis and wish to share their stories.
I hope your appointment isn't too far off and please keep us updated with how you get on. Take care.Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
Hi and welcome to the community from me too
Sorry about what you have been suffering and wishing you all the best
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.