Hello, my name is claudiiewilson and I have been recently dianogsed with Fibromyalgia. — Scope | Disability forum
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Hello, my name is claudiiewilson and I have been recently dianogsed with Fibromyalgia.

Hello all, thought I would introduce myself :smile: been doing some research and found this website so thought I would join 

Comments

  • Ross_Scope
    Ross_Scope Posts: 4,989

    Scope community team

    Hello @claudiiewilson

    Welcome to the community, I'm glad you found us :) 

    This is a very supportive and welcoming community so I'm sure you'll enjoy getting involved, do feel free to have a look around and familiarise yourself with the community :) 

    You mentioned in your post title that you were recently diagnosed with fibromyalgia. How do you feel about the diagnosis? Are you managing okay?
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  • claudiiewilson
    claudiiewilson Member Posts: 7 Listener
    Thank you for the warm welcome @Ross_Scope :smile: 

    I'm feeling okay at the moment, I think its more that now I know what it is I no longer feel like I'm going mad/crazy with my symptoms and hopefully find a way to help myself. Currently going through quite a painful time at the moment, but trying to stay positive.
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,579 Disability Gamechanger
    Hi @claudiiewilson - & welcome to this friendly & supportive community, I'm very pleased you found us all. I'm sorry that you're having a painful time, have your Drs suggested anything that may help? :)
  • Teddybear12
    Teddybear12 Member Posts: 765 Pioneering
    Hi @claudiiewilson I hope you enjoy your time on the community and please ask if you have any questions.
  • janer1967
    janer1967 Member Posts: 12,311 Disability Gamechanger
    Hi and welcome to the community from me too 
    Here to help with my experience in hunan resources and employment rights 
  • claudiiewilson
    claudiiewilson Member Posts: 7 Listener
    Thank you, @janer1967, @Teddybear12 and @chiarieds. I have seen my doctor last week and they advised exercise, and of course pain killers, got a online seminar I am joining soon with regards to Fibromyalgia so looking forward to that :smile:
  • janer1967
    janer1967 Member Posts: 12,311 Disability Gamechanger
    That's great hope you get some good advice from the seminar to help 
    Here to help with my experience in hunan resources and employment rights 
  • poppy123456
    poppy123456 Member Posts: 23,844 Disability Gamechanger
    HI,

    I've had fibromyalgia for 10 years but diagnosed in 2013. All doctors and GP's will tell you to exercise because it helps but this will depend on you. Some people find exercise makes the pain worse, i'm one of those. Pain killers for me just take the edge of the pain but never make me pain free.
    If you haven't already, you will eventually find what's right for you. You will know where that line is and you may feel that you shouldn't cross that line otherwise it may make you feel worse.
    Heat helps my pain so Spring and Summer are much better for me. Winter is the worst time as the pain is much higher because of the cold. Hot baths always help me and finding other ways of keeping warm, especially my legs, which affect me the worst of all.
    Unfortunately, it's something you have to learn to live with and do what's best for you.

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