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We want to hear from you: please tell us about your experience of the online community.

PIP decision and waiting time.

Faith2008

Hi everyone,
I will be quick, I got covid in 2020 which triggered off my fibromyalgia and I went from healthy walking jogging to bed bound to house bound for nine months. I was able to work from home and awful as it sounds worked everyday from my bed. I did improve and now I was forced back to the office I’m using a walking stick and taking a lot of testing breaks as I can’t stand for very long without suffering for days after.

When I did the assessment the nurse seemed to be implying that if you are going to work it can’t be that bad. I have more or less been told by my employer if you don’t get in we will get you out so I don’t have a choice but to struggle and spent every bit of time sleeping or in bed to recover when I’m home and weekends.

Is there anyone who has heard of people claiming PIP still working?

Sorry I’m very new to this. I was hoping for pip payments to pay for a electric wheelchair to keep my independent but I’m feeling as if maybe fibromyalgia and chronic pain is not as serious as it feels to me.

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Comments

poppy123456

Plenty of people claim PIP and work. As long as the work you do doesn’t contradict the reasons why you’re claiming PIP.

As you’re still waiting for the decision it would be impossible to predict anything at this point.

Ross_Alumni

Hi @Faith2008

Good to see you posting, and sorry to hear of what you've had to go through.

Regarding your employment, have you discussed reasonable adjustments with your employer? Or the Access to Work scheme? Both of these avenues could provide you with some support in your workplace so that you can make performing your role more manageable.

Faith2008

Hello, thank you. The company I work for have said back in March they would put these things in place but never did. The place I work have no time for people with disabilities. It’s said as I have never been out of work but they are I believe trying to make things more difficult.

Ross_Alumni

Hi @Faith2008

In the he Equality Act 2010 (GOV.UK) which replaced the Disability Discrimination Act 1995. It says that disabled people have the right to reasonable adjustments that make jobs, education and services accessible to them. Therefore, your employer should be able to provide you with reasonable adjustments at work.

Read more on this here.