Finished Kemo — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Finished Kemo

Dragonslayer
Dragonslayer Community Co-Production Group Posts: 1,540 Pioneering
Yesterday I had my last Kemo therapy session.
It started in March while in the hospital and has been going on now for the last seven months. Now at last no more going to the hospital every few weeks to have a two hour long infusion and just one more blood sample to give at the doctor's next week to check all is OK. I have no idea what will follow. I just hope the last consultation will see me all clear.  
That's one thing out of the way at least, that only leaves all the other problems I have to sort out. Starting hopefully with my hip operation later this year, or early the next. 
All the staff looking after me at the clinic have been great. So I left a thank you card along with a big tin of celebration chocolates. It was the least I could do.    

Comments

  • Sandy_123
    Sandy_123 Member Posts: 1,991 Pioneering
    @Dragonslayer fingers crossed for last consultation.  You can sit back for awhile now, I know its been hard journey I've someone in family going though it all.  I'm sure the chocolates be a  grateful gift received. 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,579 Disability Gamechanger
    That's great to hear @Dragonslayer - I bet you're glad it's finished with! Hoping everything becomes a bit easier for you. Is it a hip replacement you're having? :)
  • janer1967
    janer1967 Member Posts: 12,311 Disability Gamechanger
    Glad it's over and you have got through the treatment fingers crossed for the all clear
    Here to help with my experience in hunan resources and employment rights 
  • OverlyAnxious
    OverlyAnxious Member Posts: 1,649 Disability Gamechanger
    Glad you've completed the main story, just the side missions to complete now! :smiley:
  • Tori_Scope
    Tori_Scope Posts: 6,030

    Scope community team

    That's wonderful news @Dragonslayer :) And it's lovely that you bought them a gift, I'm sure they're very grateful. 

    Best of luck with the other treatments! We'll be here for you the whole way.
    Online Community Coordinator, she/her

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to give us feedback? Complete our feedback form now.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser Posts: 334 Pioneering
    Hi @Dragonslayer

    Thanks for your post. Your update really made my day! What amazing news. It must have been a really tough time but as you have proven you are even tougher and are helping to conquer it one day at a time. I can just picture you ringing the hospital bell. Please know that it is understandable that you are worried about the next steps. You will get there though, just continue to put one foot in front of the other. Good luck with your next steps. If there is anything at all that we can do to support you, please just let us know. We are here for you and will support you throughout your journey  :)
    I have expertise in the following subjects, gained through professional settings such as high level education or employment: autism spectrum disorder, dyslexia, down's syndrome, social, emotional and mental health difficulties, assistive technology and education. Pronouns: She/her.
  • Dragonslayer
    Dragonslayer Community Co-Production Group Posts: 1,540 Pioneering
    Hi There
    Thanks to all for the kind words. Being on here really does help.
    Thanks again.
    @chiarieds. Yes it is a hip operation I am waiting for. 
  • Teddybear12
    Teddybear12 Member Posts: 765 Pioneering
    Good luck going forward.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser Posts: 334 Pioneering
    Hi @Dragonslayer

    No worries at all. We all mean the kind words we say. We are wishing you well. I am really glad to hear that the Scope forum helps. How are you today?  :)
    I have expertise in the following subjects, gained through professional settings such as high level education or employment: autism spectrum disorder, dyslexia, down's syndrome, social, emotional and mental health difficulties, assistive technology and education. Pronouns: She/her.
  • Dragonslayer
    Dragonslayer Community Co-Production Group Posts: 1,540 Pioneering
    Hi @L_Volunteer
    Thanks for asking.
    After a week of feeling good. (Inside anyway) I am back on the roller coaster and down at the bottom of the curve once more. I have to look ahead and wait to get back to the top. Meantime I hurt quite a lot. 

  • Grinchy
    Grinchy Member Posts: 432 Pioneering
    glad its finished good luck on getting your other ailments sorted out, take care 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser Posts: 334 Pioneering
    Hi @Dragonslayer

    You are welcome. I love your roller coaster analogy! I am sorry to hear you are feeling low at the moment. I hope you feel better soon. Have you got any self-care ideas for dealing with this tough time? Some of my favourite things to do when I need uplifting are listening to music, communicating about how I feel, going for walks and watching television. Is there anything specific we can do to support you?  :) We are here for you
    I have expertise in the following subjects, gained through professional settings such as high level education or employment: autism spectrum disorder, dyslexia, down's syndrome, social, emotional and mental health difficulties, assistive technology and education. Pronouns: She/her.
  • Dragonslayer
    Dragonslayer Community Co-Production Group Posts: 1,540 Pioneering
    I've given my last blood sample now and so I just have to wait for the end results.
    At last after many, many months, all the visits to the doctors and hospital are finally over. Now I am hoping to get my other issues looked at.
  • Ross_Scope
    Ross_Scope Posts: 4,989

    Scope community team

    You've done brilliantly @Dragonslayer, thanks for the update.
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Talk to our chatbot and give us feedback on the community.
  • 66Mustang
    66Mustang Community Co-Production Group Posts: 5,604 Disability Gamechanger
    Glad you've completed the main story, just the side missions to complete now! :smiley:
    Lol that’s funny.

    Sorry I missed this thread when it came out.

    Im glad it’s all over @Dragonslayer and that you can now focus on the other issues. Hopefully there will come a time when there are not any (major) issues to have to focus on at all.
  • Dragonslayer
    Dragonslayer Community Co-Production Group Posts: 1,540 Pioneering
    I now have another problem to add to my list. 
    I went for a second hearing test yesterday. The lady at Specsavers told me there is something going on in my head. Well DUH!! I knew that. So I am being sent back to the doctor, who will refer me back to ENT again. I feel like a ping pong ball.
    So, no help with the loud buzzing going on inside my head when I was told a hearing aid could help with the issue.
    The buzzing / hissing is 24 seven as well. I sometimes think there is a little devil inside me giving me another problem, just when I think one is being sorted. I also have blood marks on my face as well as my arms now to add to the hair loss from Kemo. 
    Not a good result for anything today.👎    
  • Ross_Scope
    Ross_Scope Posts: 4,989

    Scope community team

    Thanks for the update @Dragonslayer, hopefully you are able to get some answers soon :) 
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Talk to our chatbot and give us feedback on the community.

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.