Ongoing issue with CCG. My son's transport's been changed, and day centre hours are being shortened
paulthewatchmanA78
Online Community Member Posts: 1 Listener
I'm new to the community and I have an ongoing issue with my local CCG .
My son is 25 and has severe autism and global learning disabilities along with Epilepsy and complex medical needs.
He also displays challenging behaviour that is violent in nature.
He is fully funded for NHS Continuing healthcare.
Part of his package of care is funding for 5 days a week at a National Autistic society day centre with transport and a Passenger assistant.
In June the CCG refused to fund transport on the grounds of cost. I raised a formal complaint which concluded in September.
Transport was reinstated but with my son's day centre providing transport instead of the usual transport provider.
The Passenger assistant was removed from the package after a risk assessment was carried out by the CCG . I had no idea that this assesment was being carried out and no involvement in it.
I contacted the CCG to raise my concerns and was informed that the Chief Nurse had made this decision and her decision was final.
I contacted her later that day asking her to reconsider on the grounds of safety. She refused to revisit her decision.
My son returned to the day centre on Monday . We had a severe meltdown which resulted in injury to my son and damage to our home , caused by my son being upset about the new transport arrangements.
I predicted that this would happen to the CCG and was ignored.
Another issue is that the Day centre are going to cut an hour a day off of my son's day so that they can meet the Transport arrangements.
The result of this shortening of his day is that my wife cannot return to work .
The start and finish time at the day centre were originally in place to allow her to continue to work.
I am advised that I should contact the Ombudsman anyone any advice?
Thanks
My son is 25 and has severe autism and global learning disabilities along with Epilepsy and complex medical needs.
He also displays challenging behaviour that is violent in nature.
He is fully funded for NHS Continuing healthcare.
Part of his package of care is funding for 5 days a week at a National Autistic society day centre with transport and a Passenger assistant.
In June the CCG refused to fund transport on the grounds of cost. I raised a formal complaint which concluded in September.
Transport was reinstated but with my son's day centre providing transport instead of the usual transport provider.
The Passenger assistant was removed from the package after a risk assessment was carried out by the CCG . I had no idea that this assesment was being carried out and no involvement in it.
I contacted the CCG to raise my concerns and was informed that the Chief Nurse had made this decision and her decision was final.
I contacted her later that day asking her to reconsider on the grounds of safety. She refused to revisit her decision.
My son returned to the day centre on Monday . We had a severe meltdown which resulted in injury to my son and damage to our home , caused by my son being upset about the new transport arrangements.
I predicted that this would happen to the CCG and was ignored.
Another issue is that the Day centre are going to cut an hour a day off of my son's day so that they can meet the Transport arrangements.
The result of this shortening of his day is that my wife cannot return to work .
The start and finish time at the day centre were originally in place to allow her to continue to work.
I am advised that I should contact the Ombudsman anyone any advice?
Thanks
0
Categories
- All Categories
- 14.2K Start here and say hello!
- 6.8K Coffee lounge
- 69 Games den
- 1.6K People power
- 100 Community noticeboard
- 22K Talk about life
- 5.1K Everyday life
- 59 Current affairs
- 2.2K Families and carers
- 825 Education and skills
- 1.8K Work
- 438 Money and bills
- 3.4K Housing and independent living
- 895 Transport and travel
- 659 Relationships
- 64 Sex and intimacy
- 1.4K Mental health and wellbeing
- 2.3K Talk about your impairment
- 845 Rare, invisible, and undiagnosed conditions
- 893 Neurological impairments and pain
- 1.9K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 35.8K Talk about your benefits
- 5.6K Employment and Support Allowance (ESA)
- 18.5K PIP, DLA, and AA
- 6.6K Universal Credit (UC)
- 5.1K Benefits and income