do you have down days with your disability?

strawberrysherbet11

yes

I definitely have down days, both mentally and physically. Especially in a pain flare or where I don’t have a lot of energy, I just get so fed up. The past few days I’ve been struggling a bit mentally, so just been in bed watching TV mostly. I just always try to take it easy when I’m like this  

ellieflower3

yes

strawberrysherbet11 said:

I definitely have down days, both mentally and physically. Especially in a pain flare or where I don’t have a lot of energy, I just get so fed up. The past few days I’ve been struggling a bit mentally, so just been in bed watching TV mostly. I just always try to take it easy when I’m like this  

im in bed but down today you okay?

strawberrysherbet11

yes

@ellieflower3 I’m struggling a little bit but not too bad at the moment, thank you. How about you?

ellieflower3

yes

strawberrysherbet11 said:

@ellieflower3 I’m struggling a little bit but not too bad at the moment, thank you. How about you?

not great glad your okay

ballkeeper

not just days but weeks then a day when not so bad

ellieflower3

yes

ballkeeper said:

not just days but weeks then a day when not so bad

yeah i agree

ellieflower3

yes

ballkeeper said:

not just days but weeks then a day when not so bad

u ok

ballkeeper

yup today a good day ,find listening to music.
thank you for asking,

ellieflower3

yes

ballkeeper said:

yup today a good day ,find listening to music.
thank you for asking,

gd gd

ellieflower3

yes

ballkeeper said:

yup today a good day ,find listening to music.
thank you for asking,

   

Glen1981

yes

Today has been one, but it’s more an exhaustion day, I already sleep 10-12 hours a day or can’t function properly, last night and today I’ve slept about 18 hours of broken sleep, except to nibble and top up my hot water bottles.

But I prefer to call it a recharge day not a down day. I haven’t been able to even read or enjoy music or watch tv, just want to sleep and be numb. If I feel it’s a negative day then I get in a trap of anxiety and depression rather than giving myself permission to have rest days when I need them. 

nannymaroon

yes

I do have down days esp when I am in pain. Mostly my down days are caused by having to deal with other people and their behaviour.
I can cope with isolation and having a chronic illness. But other people's behavior still can upset me.

I can avoid other people but not my pain so I have to to ration my energy if I have appointments or things I have to do. It's very frustrating and like many of us, I have to monitor my mood myself to stop from slipping into depression because of being exhausted and in pain.

ellieflower3

yes

GlenCornhill said:

Today has been one, but it’s more an exhaustion day, I already sleep 10-12 hours a day or can’t function properly, last night and today I’ve slept about 18 hours of broken sleep, except to nibble and top up my hot water bottles.

But I prefer to call it a recharge day not a down day. I haven’t been able to even read or enjoy music or watch tv, just want to sleep and be numb. If I feel it’s a negative day then I get in a trap of anxiety and depression rather than giving myself permission to have rest days when I need them. 

oh so sorry. hugs

ellieflower3

yes

nannymaroon said:

I do have down days esp when I am in pain. Mostly my down days are caused by having to deal with other people and their behaviour.
I can cope with isolation and having a chronic illness. But other people's behavior still can upset me.

I can avoid other people but not my pain so I have to to ration my energy if I have appointments or things I have to do. It's very frustrating and like many of us, I have to monitor my mood myself to stop from slipping into depression because of being exhausted and in pain.

i feel like that today. feel like i cant move a muscle i feel weak

natz2009

yes

Yes certainly one of those days today i dont have any social life anymore had 2 friends but got ditched not long after i was dignoised with fibromyalgia now only person that visits is my dad and my ex partner to see the kids also have mental health issues and yeah 90% of the time it gets me down i dont really know anyone where i live so its isolation all the time wouldnt matter about a pandemic hope everyone is doing ok x

Tori_Scope

I'm sorry to hear that @natz2009. I hope that the community can be a good source of support for you, and keep you company if you feel a bit lonely  

Have you considered joining any social groups in your area?

ellieflower3

yes

hey, I do! natz2009 said:

Yes certainly one of those days today i dont have any social life anymore had 2 friends but got ditched not long after i was dignoised with fibromyalgia now only person that visits is my dad and my ex partner to see the kids also have mental health issues and yeah 90% of the time it gets me down i dont really know anyone where i live so its isolation all the time wouldnt matter about a pandemic hope everyone is doing ok x

hello, how are you?

Glen1981

yes

I think anxiety and depression go hand in hand with disabilities. I also get tired really easy (worse the last few years) and that gets me down. 

Grinchy

yes

great thread, i sometimes have bad days, i've finally been diagnosed with non epileptic attack disorder, after years thinking i was epileptic, sounds fake to me but feels very real, at least i know for sure, anyway i hope everyone here has better days stay strong folks