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do you have down days with your disability?
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yesI definitely have down days, both mentally and physically. Especially in a pain flare or where I don’t have a lot of energy, I just get so fed up. The past few days I’ve been struggling a bit mentally, so just been in bed watching TV mostly. I just always try to take it easy when I’m like this
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yesstrawberrysherbet11 said:I definitely have down days, both mentally and physically. Especially in a pain flare or where I don’t have a lot of energy, I just get so fed up. The past few days I’ve been struggling a bit mentally, so just been in bed watching TV mostly. I just always try to take it easy when I’m like thisLilly Josh
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yes@ellieflower3 I’m struggling a little bit but not too bad at the moment, thank you. How about you?
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yesstrawberrysherbet11 said:@ellieflower3 I’m struggling a little bit but not too bad at the moment, thank you. How about you?Lilly Josh
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not just days but weeks then a day when not so bad
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yesballkeeper said:not just days but weeks then a day when not so badLilly Josh
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yesballkeeper said:not just days but weeks then a day when not so badLilly Josh
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yup today a good day ,find listening to music.
thank you for asking,
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yesballkeeper said:yup today a good day ,find listening to music.
thank you for asking,Lilly Josh -
Lilly Josh
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yesToday has been one, but it’s more an exhaustion day, I already sleep 10-12 hours a day or can’t function properly, last night and today I’ve slept about 18 hours of broken sleep, except to nibble and top up my hot water bottles.
But I prefer to call it a recharge day not a down day. I haven’t been able to even read or enjoy music or watch tv, just want to sleep and be numb. If I feel it’s a negative day then I get in a trap of anxiety and depression rather than giving myself permission to have rest days when I need them. -
yesI do have down days esp when I am in pain. Mostly my down days are caused by having to deal with other people and their behaviour.
I can cope with isolation and having a chronic illness. But other people's behavior still can upset me.
I can avoid other people but not my pain so I have to to ration my energy if I have appointments or things I have to do. It's very frustrating and like many of us, I have to monitor my mood myself to stop from slipping into depression because of being exhausted and in pain.It's easier to be nice🙂 -
yesGlenCornhill said:Today has been one, but it’s more an exhaustion day, I already sleep 10-12 hours a day or can’t function properly, last night and today I’ve slept about 18 hours of broken sleep, except to nibble and top up my hot water bottles.
But I prefer to call it a recharge day not a down day. I haven’t been able to even read or enjoy music or watch tv, just want to sleep and be numb. If I feel it’s a negative day then I get in a trap of anxiety and depression rather than giving myself permission to have rest days when I need them.Lilly Josh -
yesnannymaroon said:I do have down days esp when I am in pain. Mostly my down days are caused by having to deal with other people and their behaviour.
I can cope with isolation and having a chronic illness. But other people's behavior still can upset me.
I can avoid other people but not my pain so I have to to ration my energy if I have appointments or things I have to do. It's very frustrating and like many of us, I have to monitor my mood myself to stop from slipping into depression because of being exhausted and in pain.Lilly Josh -
yesYes certainly one of those days today i dont have any social life anymore had 2 friends but got ditched not long after i was dignoised with fibromyalgia now only person that visits is my dad and my ex partner to see the kids also have mental health issues and yeah 90% of the time it gets me down i dont really know anyone where i live so its isolation all the time wouldnt matter about a pandemic hope everyone is doing ok x
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I'm sorry to hear that @natz2009. I hope that the community can be a good source of support for you, and keep you company if you feel a bit lonely
Have you considered joining any social groups in your area? -
yeshey, I do! natz2009 said:Yes certainly one of those days today i dont have any social life anymore had 2 friends but got ditched not long after i was dignoised with fibromyalgia now only person that visits is my dad and my ex partner to see the kids also have mental health issues and yeah 90% of the time it gets me down i dont really know anyone where i live so its isolation all the time wouldnt matter about a pandemic hope everyone is doing ok xLilly Josh
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yesI think anxiety and depression go hand in hand with disabilities. I also get tired really easy (worse the last few years) and that gets me down.
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yesgreat thread, i sometimes have bad days, i've finally been diagnosed with non epileptic attack disorder, after years thinking i was epileptic, sounds fake to me but feels very real, at least i know for sure, anyway i hope everyone here has better days stay strong folks
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