Hi, my name is yvojo28! I've just been diagnosed with peripheral neuropathy — Scope | Disability forum
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Hi, my name is yvojo28! I've just been diagnosed with peripheral neuropathy

yvojo28
yvojo28 Member Posts: 3 Listener
Newby here. Just been diagnosed with peripheral neuropathy. Still learning what to expect 

Comments

  • chiarieds
    chiarieds Community Co-Production Group Posts: 11,025 Disability Gamechanger
    Hi @yvojo28 - welcome to the community, & thank you for joining us all. How are you getting on with just getting a diagnosis? :)
  • Ross_Scope
    Ross_Scope Posts: 5,416

    Scope community team

    Hello @yvojo28

    Welcome to the community, how are you? 

    I'm sure that you will get there gradually with coming to terms with your diagnosis, it can take a while and feel a bit overwhelming but you'll be okay I'm sure. Ensure you access the specialists that you're dealing with if you ever need to know anything, and of course the members on the community will be as supportive as we can.
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  • janer1967
    janer1967 Member Posts: 12,827 Disability Gamechanger
    Hi and welcome to the community Feel free to join in or ask any questions 

    I also have peripheral neuropathy related to diabetes 
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • Ami_Host
    Ami_Host Community Volunteer Host Posts: 64 Connected
    Welcome to the community @yvojo28 I have had peripheral neuropathy for 12 years now. I found it really difficult to adjust to for quite a while, but over the years I've realised that I've gotten used to it.
  • yvojo28
    yvojo28 Member Posts: 3 Listener
    Hi everyone and thanks for the warm welcome. Iv just had my diagnosis tge neurologist said it has occurred due to having chemotherapy as I had breast cancer. I'm not sure what to expect will happen with this. At the moment it's my feet which feel like lead weights and my legs which are swollen and knees are very painful. Any information would be greatly appreciated.

  • chiarieds
    chiarieds Community Co-Production Group Posts: 11,025 Disability Gamechanger
    edited October 20
    Hi @yvojo28 - I'm sorry about the symptoms you're suffering. I'm wondering if putting your feet up may help with the swelling in your legs. By this I mean put your feet up higher than your heart, then pull your feet up (which helps your calf muscles pump the blood back to the heart), & also circle your feet around, one way, then the other. Please see: https://totalityok.com/walking-and-the-importance-of-ankle-mobility-for-priming-the-calf-muscle-pump-for-venous-health/
    I know this helped me enormously after I fractured my hip, & my whole leg became swollen; it did take 3 weeks to improve.
    There's some info in the following link about the type of peripheral neuropathy you have. As with many disorders, people are affected differently, so I'd just view it as general information. Please see: https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/peripheral-neuropathy
    Hope this may help, & kindly let us know how you get on.

  • yvojo28
    yvojo28 Member Posts: 3 Listener
    Thank you very much for the information  🙂 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 11,025 Disability Gamechanger
    You're very welcome @yvojo28 -  I hope it helps. I knew what to do about swollen legs due to my physio background; I don't know if it will help, but hope so. The above exercise won't harm, but if it doesn't help, please do also go back to your GP about this, or any other concerns.

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