Type of sub-condition

Alex2021
Alex2021 Online Community Member, CP Network Posts: 3 Listener
edited October 2021 in Cerebral Palsy Network
I hope it’s ok to ask this, but I’m interested in the type of sub-condition you have, in regards to cerebral palsy, and how it effects you on a daily basis.

I have 

Spastic diplegia


And it effects me, moving around and I have limited energy at times, so it might take me longer to complete tasks and/or move around.

Comments

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Thanks for sharing @Alex2021, hopefully others will feel comfortable enough to join in and share :) 
  • colet
    colet CP Network, Scope Member Posts: 101 Empowering
    I have adthoid cp and I  have a feeding tube that goes straight into my stomach because I eat like a 4 year old 
  • chiarieds
    chiarieds Online Community Member Posts: 16,808 Championing
    Hi @Alex2021 -  any question is OK, so please don't worry. I'm not sure I'd define it as a 'sub-condition,' rather that Cerebral Palsy can manifest in different ways, but I see where you're coming from. It can affect different limbs, as in your case the legs, just one side of your body, or all 4 limbs, & can also be athetoid as mentioned above, where instead of spasticity, there can be difficulty with involuntary movements; difficulties with speech, etc.
    As with many conditions, everyone will be affected differently. You might be interested in looking at Scope's info on CP, & there's certainly a correlation in that having CP may mean you're potentially using so much energy that moving around may be many times harder than someone without CP. Please see:  https://www.scope.org.uk/advice-and-support/cerebral-palsy/
    I'll also ask our CP Specialist info Officer @Richard_Scope to chat with you, as he will have better insight.

  • Richard_Scope
    Richard_Scope Posts: 3,744 Cerebral Palsy Network
    Hi @Alex2021
    Your cerebral palsy type is- spastic (Latin term, spasticus meaning drawing, pulling, stretching)
    Diplegia or Bilateral (modern term) explains the number of affected limbs. In your case, two.

    I have spastic, quadriplegia. Meaning I have spasticity in all four limbs.

    In terms of energy levels, it is widely accepted that people living with CP can use up to 3 times more energy than non-CP people, just completing daily tasks. There is some information that I prepared about Fatigue and CP and how to manage it.

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