Newly Disabled — Scope | Disability forum
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Newly Disabled

KatB79 Community member Posts: 14 Connected

I'm only 18 months disabled since getting covid in March 2020. I use a wheelchair outside and my husband is my carer.

Hoping to find answers here as I'm moving from 'this will only last another 6 mnths' to 'oh..well, we better look at more long term stuff'

I have three little dogs, two young adult 'kids' and absolutely no life anymore. I'm very familiar with my bedroom these days and very glad we managed to finish decorating it before I got sick ?

Sorry in advance for any stupid questions ?


  • woodbine
    woodbine Community member Posts: 10,365 Disability Gamechanger
    @KatB79 good evening and a warm welcome to scope, it's great that you've found us, on this forum there are no such thing as "stupid questions" you'll find us a friendly bunch so ask away.
    I know from experience that coming to terms with being disabled isn't easy.
    Seasons greetings to one and all 🎄🎅🏻🌲
  • KatB79
    KatB79 Community member Posts: 14 Connected
    Thanks both. It's been a rough ride. I had some great help from iTalk that got me through a lot of the feelings of loss and anger, although I do still feel angry sometimes.

    Wish they did a 'welcome to being disabled' handbook with hints, tips and everything you might be entitled to lol We didn't know I could claim PIP and LCWRA (universal credit) at the same time until earlier this year ? but it's not like the DWP offer up that info is it?
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
    Hi and welcome to the community from me too 

    I agree it is a hard position to be in dealing with becoming disabled and at the same time trying to understand the benefits and support available if you can get it

    Too many things people don't realise may have to change eg housing , looking after home and children , isolation , losing friends and independence,  losing ability to work 

    The list goes on 
  • Ivypots
    Ivypots Community member Posts: 3 Listener
    The Citizen's advice are really good at letting you know all your options, you can even ask them about grants and one off funding help for things like equipment or furniture should you need it. Every area is different but it's amazing what people don't realise is out there! 

  • KatB79
    KatB79 Community member Posts: 14 Connected
    Thanks! I'll get someone to ring them for me ?

    I've been referred for something called the DFG? To do with adaptations so hopefully that will be really helpful.
  • Tori_Scope
    Tori_Scope Scope Campaigns Posts: 12,461 Disability Gamechanger
    You can read some information about the Disabled Facilities Grants (DFG) here (Scope) @KatB79 :) 

    I'm sure it must be difficult adapting to a new way of living. If you have any questions, or just need someone to vent to or chat with, please feel free to post or comment at any time.
    National Campaigns Officer, she/her

    Take part in The Play Investigation 


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