Find out how to let us know if you're concerned about another member's safety.
Hi, my name is CjH26! I'm looking into claiming PIP or DLA
I've recently been diagnosed with HSD and fibromyalgia-and-chronic-fatigue my EDS UK support group suggests EDS as my Beighton criteria test score is through the roof my doctor cannot seem to see the medical link between HSD HEDS EDS POTS FM, I'm looking into possibly claiming pip or dla as it affects my everyday life even having to reduce the hours I work so I'm looking for help and advice from people who understand and don't think you are mad
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Need to talk?
Over Christmas the online community might be a little quieter than usual, so if you need urgent emotional support or if you feel like you might be in crisis, please read up about how to stay safe for now and find help.
You can also speak to somebody in confidence by calling Samaritans on 116 123 for free or send an email to
Of course, if you feel like you might be at risk right now, please call 999 or visit your local hospital.
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