Access to benefits - Page 2 — Scope | Disability forum
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Access to benefits

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  • poppy123456
    poppy123456 Community member Posts: 54,395 Disability Gamechanger
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    Why on earth should a partners circumstances be taken into consideration when someone claims PIP? That really would be ridiculous. Claiming PIP has nothing at all to do with any extra expenses caused through a disability. My daughter claims Enhanced for both parts, lives at home with me, never goes out alone and has no extra expenses at all but this doesn't mean she's not entitled to the PIP she receives.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • calcotti
    calcotti Community member Posts: 10,010 Disability Gamechanger
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    racyguy said:It should be the case that the DWP look at the overall picture of the claimant as well as his/her spouse when awarding PIP as well as ESA.  
    In other words you want all benefits to be means tested.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • racyguy
    racyguy Community member Posts: 560 Pioneering
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    Why on earth should a partners circumstances be taken into consideration when someone claims PIP? That really would be ridiculous. Claiming PIP has nothing at all to do with any extra expenses caused through a disability. My daughter claims Enhanced for both parts, lives at home with me, never goes out alone and has no extra expenses at all but this doesn't mean she's not entitled to the PIP she receives.
    Entitlement to PIP in itself is fine, just as it is to me, everybody is entitled to make a claim. But where entitlement falls down in my opinion is that the current situation does not take into consideration two important things. The first is the real need for a financial award due to having sufficient income/resources elsewhere. The second is the consideration of the real need for an award when considering what extra expense the claimant is put to because of the disability.
    You may well have an underlying entitlement but is there a need for the money that the entitlement brings. You yourself say that for your daughter there are no extra costs created by her disability so why should a financial award be made that is clearly not needed?

      
  • poppy123456
    poppy123456 Community member Posts: 54,395 Disability Gamechanger
    edited January 2022
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    How dare you tell me that my daughter doesn’t financially need her PiP award and that is' clearly not needed!!! She claims it because she’s entitled to it because of her disability!!! 
    What she spends her PIP on is entirely her decision! 
    PIP isn’t means tested so other income and financial circumstances make no difference what so ever!! 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • racyguy
    racyguy Community member Posts: 560 Pioneering
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    How dare you tell me that my daughter doesn’t financially need her PiP award!!! She claims it because she’s entitled to it because of her disability!!! 
    What she spends her PIP on is entirely her decision! 
    PIP isn’t means tested so other income and financial circumstances make no difference what so ever!! 
    I certainly have no intention in upsetting you but isn't this a case of the old adage of claimants making Welfare Benefit claims solely for financial reasons simply because they are entitled to?
    I will leave it there but my way of looking at the whole benefit situation could so easily be changed to provide for large increases to those claimants that have a genuine and demonstrative financial need out of the savings made (some part way to creating a position of financial equality and giving a minimum income floor) at no cost to the taxpayer?
     
  • Spoonbill
    Spoonbill Community member Posts: 70 Courageous
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    If anyone happens to be familiar with any good books/discussions exploring the subject more, I'm thinking that might offer more space for thought and decompression etc. From a review, I understand that Stef Benstead's Second Class Citizens is one example that deals with means-testing problems, but I've only got as far as putting it on a long to-read (or perhaps more likely, listen) list, so I can't say how balanced that particular one might be. If anyone knows and feels like putting one forward, I for one would like to try to learn more.
  • chiarieds
    chiarieds Community member Posts: 16,112 Disability Gamechanger
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    Seeing that Stef Benstead says she has ME (more correctly known as Myalgic Encephalopathy, not Encephalomyelitis, as Dr Charles Shepherd has explained), & it's also stated that she has Ehlers-Danlos Syndrome (which I also have), begins to fill me with some dismay.....

    Stef says, 'I currently suffer from ME, also known as Chronic Fatigue Syndrome. I became ill whilst studying for a PhD at the University of Cambridge, following a 1st class degree from that university. I had to withdraw from the PhD after completing one year of study.'    Yet also,

    'Stef has a 1st from the University of Cambridge but had to leave a PhD at the same university after becoming severely ill with the genetic connective tissue disorder, Ehlers-Danlos Syndrome.'

    The 2 conditions are not mutually exclusive (yet I'm being somewhat cynical here @Spoonbill ), so unsure her book will be on my reading list.

  • woodbine
    woodbine Community member Posts: 11,671 Disability Gamechanger
    edited January 2022
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    There are many side to the means testing argument, some would say that it actually doesn't save that much money, it's like winter fuel allowance for pensioners many of them actually don't need it and spend it on anything but fuel, whist others desperately need more, a simple solution would be to only pay it to pensioners who are in receipt of hb/ctr/or pension credit.

    And we should never forget the SRP the day must come when that will be means tested as we get more and more old people being supported by fewer and fewer younger people.

    It's a discussion that could go on and on and on.

    2024 The year of the general election...the time for change is coming 💡

  • onebigvoice
    onebigvoice Scope Member Posts: 751 Pioneering
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    @mikehughescq,  What a brilliant and interesting post above a very interesting read thanks.

  • racyguy
    racyguy Community member Posts: 560 Pioneering
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    The only observation I have is when a need become a want.
    Additionally I must be in the 20% that Mike mentions about not using a payment for the purpose it is paid. Our fuel costs are met by 12 equal monthly direct debit payments which almost always meets the actual annual cost. We also receive £200 extra Winter Fuel Allowance We are also on a low income (PCG) but cannot remember a time when the WFA was used to pay for the necessities of life. Maybe we take budgeting too seriously. Our household budget does allow us to have meals out, go to the cinema etc. paid for out on the WFA, CWP , budget surplus as well as the Christmas £10 each. 
    As for pensioners not claiming benefits I agree that this is the case. A single pensioner (over 65) is entitled to a weekly minimum income of just under £400 (£20800 pa, Gross £26,400 if working 35 hours a week on £14.50 an hour.) if they are also in receipt of DLA/PIP enhanced care & mobility and that excludes the WFA & CWP. 
    I do remain satisfied that a great deal of money is being paid out to the wrong people simply because they are entitled.
  • poppy123456
    poppy123456 Community member Posts: 54,395 Disability Gamechanger
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    Then it’s a very good thing that you don’t make the decisions about who is and who isn’t entitled to these benefits then isn’t it. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • racyguy
    racyguy Community member Posts: 560 Pioneering
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    Then it’s a very good thing that you don’t make the decisions about who is and who isn’t entitled to these benefits then isn’t it. 
    Entitlement to make a claim is one thing but an universal entitlement to a fixed financial award for all and every successful claimant is a totally different thing in my opinion.  Should wealthy (both capital and/or earnings) individuals receive the same level of financial award as say someone living on benefits and being unable to work?  
  • poppy123456
    poppy123456 Community member Posts: 54,395 Disability Gamechanger
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    If someone is entitled to a disability benefit such as PIP regardless of their financial circumstances then yes, they have every right to claim it. It’s not means tested so their financial circumstances make no difference.
     If I won the lottery tomorrow, I would continue to claim my PIP because I’m i’m entitled to it!
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • woodbine
    woodbine Community member Posts: 11,671 Disability Gamechanger
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    Disability benefits in my opinion are very different from many other benefits, but we shouldn't have to fight to get them, when they were alive my parents received the WFA and frankly they didn't need it, SM has an aunt and uncle who get WFA they are millionaires living in a 500k house they don't need it. And yet the working poor and those on benefits are starting to have to make a real choice between eating and heating it's pathetic.
    I am really concerned that we are going to see people either freeze to death or die of starvation, you might think thats scaremongering, fine but come back this time next year and tell me i'm wrong.
    2024 The year of the general election...the time for change is coming 💡

  • chiarieds
    chiarieds Community member Posts: 16,112 Disability Gamechanger
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    Hmmm...when need becomes a want, tho they are synonymous, so how would that actually be defined?
    Perhaps if someone has the luxury of not needing monies paid to them in benefits, with careful budgeting, rather than budgeting out of necessity, this should be donated to those in need. Yet how would 'need' be defined? Perhaps someone who has the enhanced rate of PIP for both daily living & mobility would donate somehow to those with lower or no PIP award? Ah. well, perhaps a great deal of money is being paid out to the wrong people....
    As far as such a means-tested benefit goes, then I think very polite 'arguments' have been given above. This forum tries to help members, not unfortunately antagonise them.
  • chiarieds
    chiarieds Community member Posts: 16,112 Disability Gamechanger
    edited January 2022
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    Sorry Mike, I was posting at the same time as yourself. It both takes me a while to type & was also venting off steam. The poster has previously commented, 'With my health issues some would expect me to be in bed 24/7. I don't and I still enjoy a full life despite the issues.' Great; with my health issues if I was in bed 24/7 I wouldn't be in so much pain, but rail against this. So, who is deserving of more money, or would @racyguy somehow give me some of his money as his quality of life is better than mine? This would indeed be nonsense.
    When I separated from my husband, all I had at the time was my DLA......£450 every 4 weeks; believe me I seriously had to budget; grew vegetables out of necessity. Outgoings £250+ a month, & that was before paying for gas & electricity, or food. Didn't have your luxury, as had to pay for LPG, & also electricity to our Park Home owner, which continues.
    So, did I 'need' DLA, yes, in order to exist.; does PIP now help, yes.
    Am in total agreement that indeed 'need' & 'want,' as mentioned above, are one & the same thing.

  • poppy123456
    poppy123456 Community member Posts: 54,395 Disability Gamechanger
    edited January 2022
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    What makes me so angry is my daughter was judged by raceguy as not needing her PIP because she has no extra expenses because of her disability. She has no extra expenses because she lives with me. She's unable to live alone and would need a lot of support and help just to get through 1 single day and there's 7 of those in a week.
    For her, it's not as easy as just "looking for somewhere to live"
    She certainly doesn't live with me rent free, she pays her way, although she wouldn't know what a 10p was if you gave it to her so i guide her and help her with her money.
    Everything she does is because i'm there, she needs support to make a meal, dress, wash, go out, budgeting, going to appointments, telephone calls and just stepping foot outside the door. Every week she tells me that she wouldn't know how she would cope without me and i've given up my life for her but i'd do it all again in a single heartbeat.
    It makes my blood boil when a complete stranger judges MY daughter!!
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • poppy123456
    poppy123456 Community member Posts: 54,395 Disability Gamechanger
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    @Teddybear12 thank you. I just get so angry when people judge my daughter.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Spoonbill
    Spoonbill Community member Posts: 70 Courageous
    edited January 2022
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    I think it's a bit much to expect for an in-depth socio-economic analysis on a disability board, @racyguy. I hope that you will take the time to read the article posted by mikehughescq (sorry, tagged you again!) and perhaps look into some analyses of universality and means testing in more depth to see how they actually play out. Economics is notoriously difficult to grapple with, and I struggle, so I'm actually sympathetic to your resistance, but I think it's worth bearing in mind that a position without evidence is an idealogical opinion, which you're entitled to hold, yet it doesn't guarantee that anyone else will find it of any substantive merit.
    Again, I am sympathetic to difficulty understanding the socio-economics but also aware that it's an emotive and potentially triggering subject (as you can see from the responses!).
  • calcotti
    calcotti Community member Posts: 10,010 Disability Gamechanger
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    The last obvious case of reacting to the 'people getting benefit they don't need' approach was the introduction of the Child Benefit High Income Charge.
    Recent House of commons briefing paper explores all the complexity that introduced
    https://researchbriefings.files.parliament.uk/documents/CBP-8631/CBP-8631.pdf
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.

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