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Difficult school with my 4 year old son

Shazza1986
Shazza1986 Member Posts: 10 Listener
edited December 2021 in Education
Hi my son started school in September and was in hospital in October and has been diagnosed with type 1 diabetes and has some behaviour problems too his school isn't managing well especially with his diabetes his doctor has said he's has world development delay but is being assessed for ASD and adhd is there anything I can do to help him with school so he's not being left out or being put outside because they can't deal with him or keeping him off he has a health care plan in place thank you for reading I'm just getting fed up xxx
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Comments

  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,126 Pioneering
    Hi @Shazza1986 Welcome to the Community. It will be difficult for your son to adjust having just started school then a few weeks later being in hospital. Also from your other post you have said there have also been family changes. Having injections everyday must also take some time for him to come to terms with. Have you spoken to his school to see what help they can give him and any ideas as to how you could help him? Do you have any support at home? I am so sorry you are finding everything so difficult at the moment. If you have any questions please ask. Take care.
  • Adrian_Scope
    Adrian_Scope Posts: 8,363

    Scope community team

    Hello @Shazza1986. Does your son have 1-1 support recommended in his plan? He definitely shouldn't be being left out or put aside as they should be looking for ways to include him. Have you spoken to the school SENCO about your concerns?
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  • Shazza1986
    Shazza1986 Member Posts: 10 Listener
    I've asked for a 1-1 but for some reason they don't listen to me my sons pediatrician is having a talk with the school as soon as they go back x 
  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,126 Pioneering
    @Shazza Fingers crossed, let us know how you get on. Take care.
  • MrsMwa
    MrsMwa Member Posts: 31 Connected
    @Shazza1986
    Hello sorry to hear about what you are going through. My eldest like your child is in the early years stage has a learning disability plus other very complex medical and cognitive needs. He has had a 1:1 from day 1 which i fought hard for his early years advisory teacher & consultant put this in their reports for his ehcp that he needed 1:1 TA. Please look at getting a professional to clearly document this somewhere in your sons supporting ehcp documentation. Is your son in a mainstream school? Mine is and it honestly has been an upward struggle from the very beginning, its horrible because you do not want to have a negative relationship with your child's school but you MUST do what is in your child's best interest. My child gets left out the school try to justify it by listing his complex needs and it hurts but do not lose hope. My child is awaiting a special needs school place is this some thing that you have explored? Honestly I was reluctant part of me wanted to hold so dearly to the so called “normal” of mainstream schools. However upon visiting 3 special needs schools i was blown away by just how amazing they were so much so i spent 4 hours chatting and touring one school (the one my child is waiting a place for) i was nearly late for my eldests school pick up and this is only few months back! 
    I too am in a similar boat so message if you want to talk anytime
    x
  • Shazza1986
    Shazza1986 Member Posts: 10 Listener
    @mrMwa thanks sorry for the late reply he is in mainstream school they have told me that they are looking for a 1-1 for him so I'm hoping it's going to get better but I think I'm going to look into a specialist school for him I'm lucky my neighbour has a young son who goes to one so been chatting to them about it too xx
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Community Co-Production Group Posts: 914 Pioneering
    Hi @Shazza1986

    Thanks for reaching out to us. I always appreciate how much courage it must take to reach out. I am sorry to hear you and your son are experiencing such a tough time, especially with the school.

    I want to thank everyone who has already responded to you because they have been amazing. Sometimes it is lovely to just hear from people with similar experiences, isn't it? Just to clarify, does your son have an EHCP? If so, the school legally has to follow the supports listed.

    In terms of supporting him with school, I'm sure you are already doing all of the practical things, like fighting his corner. Just to add though, I would recommend identifying his triggers and supporting him to address his triggers, looking at any work sent home or the relevant curriculum (EFYS/National Curriculum), and identifying where his needs would best be addressed.

    Additionally, I am wondering if you are able to attend any hobbies with him? This would just ensure he is able to meet people of a similar age and with similar interests. I think it is just as important to make sure his social needs are being met as well as his well-being/pastoral needs and academic needs.

    Please be patient with yourself too though. I can appreciate just how difficult this must be for you. How are you managing? Please know we are here to support you just as much as we are to help you to navigate the system for your son.

    Some resources you may also find useful include:

    - IPSEA (https://www.ipsea.org.uk/)
    - Diabetes (https://www.diabetes.org.uk/)
    - Mencap (https://www.mencap.org.uk/learning-disability-explained/conditions/global-development-delay)
    - National Autistic Society (https://www.autism.org.uk/)
    - ADHD Foundation (https://adhdfoundation.org.uk/) 

    I hope this helps but if you need anything we are here and we are listening to you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities, and assistive technology. Pronouns: She/her.
  • Shazza1986
    Shazza1986 Member Posts: 10 Listener
    @L_Volunteer thank you so much xxx is ehcp a health care plan its been changing weekly his diabetes nurse's are going back to school soon to retrain some teachers and give them more information and we have a video call with the pediatrician and School next week so fingers crossed it will get easier we go to a few clubs with a few people in them he doesn't like too much noise he wears his headphones alot xx
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Community Co-Production Group Posts: 914 Pioneering
    Hey @Shazza1986

    An EHCP does indeed include a health care plan but it should also include education. The full name is an education and health care plan.

    If it doesn't, I'd encourage you to try and get one as it could explain why things are a little uncoordinated and unsupported!

    To get one if you need to, I would encourage you to talk to your son's SENCO and/or classroom teacher in the first instance. If they are less than supportive then you could apply directly through the local authority.

    I am really glad to hear your son's diabetes nurses are going back to school to help educate them about diabetes! It is a good sign that the school wants to help but are lacking the appropriate knowledge, experience, or confidence. 

    Good luck with the meeting. How are you currently feeling about the meeting?

    I'm autistic so all I can say is I agree with not liking a lot of noise and preferring headphones! 

    As always, if you have any questions, need anything to be clarified, or need any further support we are here for you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities, and assistive technology. Pronouns: She/her.
  • Shazza1986
    Shazza1986 Member Posts: 10 Listener
    Thank you for your your help I asked the teacher about a ehcp and he had the educational psychologist round today to do a ehcp and she definitely felt like he needed 1 to 1 support so it's all in the process now thank you so much xxx wouldn't of know any of this for him xx
  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,126 Pioneering
    Glad it has worked out for you. Hopefully this will help your son.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Community Co-Production Group Posts: 914 Pioneering
    Hi @Shazza1986

    Thanks for your response. Just like @Teddybear12 said, I am really glad we were able to help. I hope your son receives the support he needs soon! If you stumble across any more questions, please don't hesitate to ask  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities, and assistive technology. Pronouns: She/her.
  • Tori_Scope
    Tori_Scope Posts: 7,049

    Scope community team

    Great news, well done for sticking with it @Shazza1986 :) Keep us updated with how he gets on!
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