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Close to PIP award end date

_witchcore
_witchcore Member Posts: 19 Connected
edited January 3 in PIP, DLA, and AA
Good afternoon

I've asked about this before, months ago, but can't find the thread... apologies.

My husband was awarded PIP until Dec 2021, 3 years ago. It was a 2 year awarded, extended due to covid.

He recieved a review form in Jan 2021, with a deadline to return it by June. It was sent back and recieved in plenty of time. There was a letter from my husband's therapist which acknowledged that he was finding telephone therapy too difficult and that it has been put on hold until in-person treatment resumes. I mentioned that my husband may find any telephone assessment difficult and that a face to face appointment would be better. I know that's not what most people want/need but my husband just doesn't speak on the phone. Unless asked a yes or no question he just doesn't say anything and even then he thinks about it for a long time. People think he has gone because of the silences. I thought it was one of his quirks -  his GP has requested an autism assessment for various reasons.

We moved house in August and I called PIP to update the address. They said they had received the form but it hadn't been looked at yet.

Towards the end of the year I called again because I was worried that it was ending in December and we hadn't heard anything. I was told it had been extended until the 1st of March because it hasn't been looked at yet, but we have never had a letter about this. He did receive a payment in December, after the end date, so I have no reason to believe this isn't true. What did concern me a bit is that the address change I called about in August hadn't been done correctly... it had been changed on PIP systems but not DWP systems (?)

I decided it was a worry for next year... but now it's next year and we haven't heard anything. I'm conscious of the fact that last time it took 12 weeks to make a decision after his first assessment. There's only 8-9 weeks until the award expires and as far as we know it hasn't progressed at all. What, if anything, should we do? Would DWP allow the award to expire even though we did what was requested?

Comments

  • calcotti
    calcotti Member Posts: 3,825 Disability Gamechanger
    edited January 3
    Your previous posts were in this thread started by another user
    https://forum.scope.org.uk/discussion/comment/469007#Comment_469007
    _witchcore said: What did concern me a bit is that the address change I called about in August hadn't been done correctly... it had been changed on PIP systems but not DWP systems (?)
    Not clear what you mean. PIP is a DWP department, there will also be an assessment provider dealing with the assessment.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • _witchcore
    _witchcore Member Posts: 19 Connected
    edited January 3
    Thank you @calcotti - I know the difference between the assessment provider and DWP. I know that PIP is a DWP department. What I meant is that there is a separate central computer system where my husband's details are held and the address hadn't been updated on there. So the previous advisor didn't do housekeeping when they updated the address on whatever system PIP use. Presumably they just update it on a programme that other DWP departments don't need/use. Hope that clears that up.
  • calcotti
    calcotti Member Posts: 3,825 Disability Gamechanger
    If you receive other benefits you need to tell each department separately. DWP departments are not joined up.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • _witchcore
    _witchcore Member Posts: 19 Connected
    edited January 3
    Ok @calcotti I will bear that in mind. Although, my sister works for DWP (not in PIP which is why I can't ask for advice on this) and said that they use a system called Searchlight which is a central system used by multiple teams. I'm not sure. She said that in the team she works on, their specific system "pulls" the information from this central system and updates the address if there is a change. My own address was updated for PIP but I only called ESA about myself. It is just my husband's that wasn't done. I have been worried in case any letters were sent to our old address. That said, I think he would have got a text about any assessment, and if he missed it the payments would stop? I don't know why I mentioned that because it's not that relevant and it's obviously caused confusion and now the discussion is about that and not my actual query. I think it was me just venting about little mistakes that lessen my confidence in things going right. Do you have any advice regarding the end date approaching? 
  • calcotti
    calcotti Member Posts: 3,825 Disability Gamechanger
    edited January 3
    _witchcore said:..it was me just venting about little mistakes that lessen my confidence in things going right. Do you have any advice regarding the end date approaching? 
    It’s fine to vent. You can obviously ring DWP and/or the assessment provider to ask about progress but you are likely to simply be told that you are in a queue. 
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • poppy123456
    poppy123456 Member Posts: 25,700 Disability Gamechanger
    Closer to them time the PIP award is ending you will need to ring and ask if a decision's not been made on the review. Only they will be able to tell you whether his current PIP award will be extended again, if no decision's been made on the PIP.
    With change of addresses, yes you should report this to all departments and not just the one.
  • _witchcore
    _witchcore Member Posts: 19 Connected
    Thank you so much for your advice. We still haven't heard anything so I called today to ask what stage everything is at. Same as months ago, "in a queue waiting to be sent to the assessment provider". It's now 6 weeks until the award end date. I asked what would happen if we go past that date and they sort of refused to answer. I was just told that "you just have to wait" and when I said "well what if he waits, and the award ends before you review it?" Their response was "well it hasn't ended yet and it's in the queue so I can't answer that". I guess you were right Calcotti when you said I would just be told that it's in a queue. Someone must be able to tell me what will happen if the review isn't done?

    I am so worried. My children are asking if they can do this that and the other and I'm having to say I don't know because I don't know how we will be for money in a few weeks. My daughter's 10th birthday is imminent and she's asking for a party. The loss of SDP will leave us in poverty. I can't claim child benefit because my ex partner claims it and we have shared care but it's always been paid to him as I was working when we split. Due to this I get bedroom taxed and I pay for their lunches as well as half of their uniforms etc. I have no money for a court case if I tried to claim it and besides, their dad lost his job in lockdown and needs the money for them when they're there. When we are getting other things we are entitled to then we don't struggle. 

    I know there's no guarantee my husband will get PIP again but his ability to do the activities has not changed so I'm willing to fight for it and a longer award which we specifically asked for. I feel like this review is hanging over our heads like the sword of damocles and it's making me utterly depressed. I haven't felt this way in years. My husband is stressed and isn't eating or looking after himself. The PIP doesn't make a dent in our outgoings but to lose the SDP... we could lose our home. I'm thinking we will have to apply for discretionary housing payments and see if they can cover the rent shortfall if the worst happens. I've also contact united utilities and BT and they have schemes for people on a low income.

    I've applied for a few admin jobs in my area and km thinking that I just won't have my surgery. I can't swallow at the moment and I'm at risk of a blood clot because of haemmorhagic bladder so I've been waiting on a cystectomy for years. In normal times I'm in hospital every week having instillations which take me a few days to recover from, hence leaving my job. I'm thinking that if I could just will myself to be better I can provide for my family. I asked my friend and ex colleague for a reference and she said no, and if I go back to work now then I'm stupid. I do value her opinion but what else can I do? Sorry for the rambling. Does anyone have any ideas as to what I can do to stop worrying? I can't enjoy anything because it feels tainted by this looming over us.
  • poppy123456
    poppy123456 Member Posts: 25,700 Disability Gamechanger
    When you rang DWP you're speaking to someone from a call centre, not someone from DWP so i'm not surprised they couldn't answer your question whether the award will be extended. They read from a screen and if the information isn't there, there's nothing to tell you.
    Whether the award will be extended further is anyones guess. I'd leave it a couple of weeks and ring again it maybe extended by then.
    You mention SDP, your husband would only be claiming this if you're receiving DLA mid/high rate care, PIP daily living, or you're registered blind. I'm assuming one of those apply?
    For the DHP you would need to contact your local Authority as it needs to claimed from them.

  • _witchcore
    _witchcore Member Posts: 19 Connected
    edited January 14
    Thanks Poppy, yes I'm also disabled... I have a degenerative genetic condition and I use a powerchair as well as being seriously ill myself. My husband as well as being physically disabled really struggles with his mental health. I have never worried about my ESA or PIP awards and found the process easy but my husband has really struggled. He got turned down twice before asking me for help. I think I automatically get ESA as I can't walk (or use a manual chair) and I'm at risk of complete loss of bladder continence... so it doesn't get reviewed either. Also I think having an ambulance called to my workplace multiple times maybe satisfied the criteria for behaviour that us unacceptable in any workplace. I'm not sure. I used to lose consciousness a lot. My PIP is an ongoing award enhanced for both. That doesn't get reviewed until 2028. I wish everyone's was that simple.

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