Hi, my name is Helen01! — Scope | Disability forum
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Hi, my name is Helen01!

Helen01 Member Posts: 2 Listener
edited January 4 in Start here and say hello!
I have been advised by my GP to join SCOPE. I have suffered for many years with depression anxiety panic attacks I also have PTSD amongst many other illnesses and I hope by just writing this message I have opened up a slight bit of my life. Which I am really struggling with at the moment. I am in heart failure also I have COPD emphysema chronic asthma and many other problems with my lungs I have had 2 strokes I am suffering with long covid I can't do anything really for myself I also have Fybromiyga, spondylitis arthritis in my hands spine, 2 herniated discs fluid retention I'm been tested for "Cushings disease" I am on so much medication I also have neuropathy in my feet. Basically there's a lot wrong with me and I don't feel like in fact I'm not getting any help. I'm not sure what to do on this website? Like I said my GP gave me the link? 


  • Sandy_123
    Sandy_123 Member Posts: 2,366 Pioneering
    Hi @Helen01 welcome to the forum.  Here we suport each other through our health issues. There are lots of conversations that you can join in with if you wish to.   I'm sorry to read that you are experiencing alot of health issues listed and can  uderstand that you feel depressed. Hopefully your gp is supportive with this too. 
    Do you have a good support network at home to help you with the things you struggle with? 
  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,043 Pioneering
    Hi @Helen01 Welcome to the Community. I am sorry you have so many difficulties at the moment. We are friendly and support each other on the forum. Do you have questions you would like to ask. Please join in when ever you feel like you are ready.. Take care,
  • Tori_Scope
    Tori_Scope Posts: 7,005

    Scope community team

    Welcome to the community @Helen01 :) How are you doing today? 

    Thanks for joining the community! I'm glad your GP sent you the link.

    I think Sandy_123 has explained what we're about pretty well. You're welcome to discuss anything that's important to you here on the community, whether you'd like to share something that's been on your mind, or have a natter about the TV shows you've been watching lately. You can see the broad kinds of topics we discuss by visiting the categories page. You can also view the latest threads on the community by visiting recent discussions, which will show you what our members are talking about right now. If you ever need any help finding your way around the community, please do give us a shout.

    I'm also sorry to hear that you're experiencing quite a few different health problems at the moment, and that you don't feel as though you're getting the right level of support.

    Are you currently receiving any support for your mental health?
    I can't do anything really for myself 
    Do you have enough support at home to help you manage day to day life and tasks? If you feel as though you could benefit from some additional support, you may want to consider making a social care referral (gov.uk) for yourself to your local authority's social care team. 
    Online Community Coordinator, she/her

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

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  • Helen01
    Helen01 Member Posts: 2 Listener
    Thank you both so much for all your help and support. I have a bit of an idea how this works now. I have been referred to the social care team and today I have been visited by an Occupational therapist to help with adoptions for my bungalow. I have also been double jabbed today finally had my booster jab also the flu jab at the same time so I'm feeling rather hot and agitated. Taken my medication I'm hoping the symptoms will calm down in the next couple of days.
    Thank you and if I need to ask anything else I will get in touch.
    Helen x
  • Sandy_123
    Sandy_123 Member Posts: 2,366 Pioneering
    Hi @helen01 hopefully you get all the adaptions that you need soon.  
  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,043 Pioneering
    Hi @Helen01 I hope your symptoms calm down for you soon. Let us know how you get on. Take care.


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