Son turned down for PIP advice for appeal

Anne206

Hi There,

Can anyone give me any help or advice on my situation. My son was turned down for PIP for the 1st time and I am going to appeal this. He was awarded 2 points on the daily living activities. The assessment was a phone call which lasted approximately 1 hour and half. He did lose concerntration after 45 mins and what the assessor didn’t know he was throwing sweets at me not in a violent way just messing about as he does when he gets restless he was also playing with his fidget dice cube thingy. The assessor asked what that noise was and we told her, but she never mentioned this in her report. He was diagnosed with autism and ADHD in 2021 after being referred in 2019. After the final diagnose in 2021 we thought we would have a break through, but things were worse. Now my son would rather think his thick and stupid and not been told what was wrong with him. He thought once he was diagnosed it would be better and he would get the help he needed. He dies self harm his moods gets low and he can lock himself  away for days. He needs help with medication, he doesn’t go out much as he can’t deal with too many people. His been like this since school age and he is now 39. Everything in the report was wrong and I wondered if the assessor was even listening I said he self harms because no one cares and he can’t cope. The worry I have if he storms out and not know what his doing in a depressed state. He does get anxious and depressed. Ever good thing he as achieved like passing his driving test in his early 20’s the assessor used that against him but he hasn’t drove in over 10 years because of the stress and he would only drive a short 15 minute drive town and back. He hasn’t had many jobs but always tried, never been employed over a year. People are not understanding of people with learning disabilities and can be very abusing towards him because his slow and they class him as lazy. He is not not good with strangers or big groups. I give up work a couple of years ago so I could be there for him and stop me worrying about what his doing. I am due to retire this year and I am finding it hard to cope with no support from anywhere just to help with forms, housing or any problems. 

Any advice or guidance would be greatly appreciated. Many thanks 

Anne

janer1967

Hi and welcome to the community 

I'm sorry to hear what you and your son are going through 

Have you tried welfare rights or cab to help with your sons pip claim or indeed filling in forms 

If they can't help they could maybe signpost you to some help 

I know un my area there is a community group that help with form completion 

Libby_Alumni

Hello @Anne206, 

Welcome to the community and thank you for sharing your post and being so vulnerable and honest with us all.

I can see that you're going through an extremely challenging time at the moment and therefore, we at Scope, would like to offer some additional support/resources for you. We will do this via email, so please keep an eye out on your inbox. The email will come from community@scope.org.uk  

If you have any issues with receiving the email, then please just let us know on here. 

Take care now and we will speak to you soon.

Libby

Anne206

Thank you to everyone for the warm welcome and replies. All this is new to me and I had help setting it up so l might be a bit slow in replying. Just getting use to the site and how to use it. Thank you very much for all the feedback. Anne

Libby_Alumni

That's okay @Anne206 we understand and if you need any help with anything, then please just let us know. 

Just to let you know and to put it on your radar, we have sent you an email. Of course, you don't have to respond at all, but I just wanted to let you know

Take care now and speak to you soon.

Libby

Alex_Alumni

Hello again @Anne206 I just wanted to check in with you and see how things have been going lately?