Remaining politically neutral during General Election 2024


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While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

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Hi, my name is amanda82!

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amanda82
amanda82 Community member Posts: 3 Listener
I have had a new medical diagnosis and not sure if I can carry on working as I’m in so much pain right now.

I have never not had a job and never claimed any benefits before so don’t know where to start.

can anyone help me please?

Comments

  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,981 Disability Gamechanger
    edited March 2022
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    Hi @amanda82

    Welcome to Scope's forum. It is great to see you have joined us. How are you today?

    What a great question! In all honesty, it is not an area of my expertise. This means I can only hope someone with more knowledge in this area is able to respond to you soon.

    In the meantime, I just wanted to respond to greet you and let you know that we hear you and are here for you. Have you been able to talk to anyone else about the pain you are in? 

    Thinking of you. Please do just let us know if there's anything else we can do to support you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • amanda82
    amanda82 Community member Posts: 3 Listener
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    I talk to my GP all the time.  I do have a Pain Management consultant at the hospital but he is as much use as a chocolate fireguard.  I can never get a hold of him.  The pain meds that I’m on are the highest they can give me and I’ve tried everything under the sun.  I’m at my wits end and my head is all over the place
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,981 Disability Gamechanger
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    Thanks for your response @amanda82. I do have to say, you made me chuckle with your reference to a chocolate fireguard. How frustrating though! I can imagine why you would be struggling. I am really glad to hear you at least have some support from your GP though. Hopefully, someone on here will be able to respond to you with much more insight than I have been able to! I want you to know that we all care and are here for you though  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,561 Disability Gamechanger
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    Hello @amanda82 thanks for reaching out, I hope you'll find the community a helpful and supportive place.

    I'm sorry to hear about the pain you're in. Have you spoken to your GP about a pain management plan following your new diagnosis? Do you feel like you're getting enough support at the moment?

    I wonder if you've spoken to your workplace about your condition, and the possibility of flexible working, or reasonable adjustments? Scope has some guidance on reasonable adjustments here.

    Additionally, I know that Turn2Us has a benefits calculator which you might find helpful.

    If you feel there's anything I've missed or need further help with, please don't hesitate to ask :)

    Alex
    Online Community Coordinator
    Scope

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  • amanda82
    amanda82 Community member Posts: 3 Listener
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    hi Alex, my GP has told me that he can’t put me on any new meds as I’m maxed out as I have CRPS also.  As I said about pain management - they are useless. I have recently started a new job but they are not as supportive as my last one and there is no room for reasonable adjustments or change of hours.  I’m just so scared of giving up work as I’ve never not worked but after chatting to my GP yesterday I don’t think I have much of a choice.  I have no clue where start or who to contact
  • poppy123456
    poppy123456 Community member Posts: 57,114 Disability Gamechanger
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    Hi,
    Your employer must pay you SSP for 28 weeks if you’re entitled to it.
    You should never quit your job before getting some expert advice from ACAS. 
    If you do go down the SSP route you can look at claiming Universal Credit as well. If you live with a partner you claim as a couple and both your circumstances will be taken into consideration. Use a benefits calculator to check entitlement. You can report your health condition and send in fit notes from your GP.
    New Style ESA can be claimed 3 months before the SSP ends but you won’t be paid anything until the SSP ends. You will need your SSP1 form and a fit note to claim this.
    If you claim both of those together the ESA will be deducted in full from any UC entitlement.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,981 Disability Gamechanger
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    Thanks for your response @amanda82. As you can hopefully see, you are in good hands here! There is always at least one person who can help you navigate things if you want them to. In the meantime, I will just respond again to let you know that we hear you and are here with you. It sounds really difficult but we think you are doing a really good job in reaching out for support today  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,561 Disability Gamechanger
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    Thanks for explaining @amanda82 the earlier comments were posted while I was writing mine, so it's very helpful of you to clarify :)

    I'm really sorry to hear that your new employers aren't supportive, especially since The Equality Act 2010 requires an employer to make reasonable adjustments to enable a disabled person to work. If you have experienced discrimination, you can get help from the EASS helpline.

    If you'd find in helpful, Citizens Advice has more information on an employers duty to provide reasonable adjustments.

    You might also like to search for an adviser using AdviceLocal

    I know that anything new can be scary as it's uncertain, and often we tend to focus on the big 'what ifs', which don't help us to feel settled. Starting to work out benefits can be quite daunting, but do make use of the benefits calculator from Turn2Us to start.

    Take your time with it, and let us know if you're unsure of anything.

    Alex
    Online Community Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to give us feedback? Complete our feedback form now.
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi and welcome to the community 

    As advised its not a good idea to just quit a job there maybe alternatives like sick leave , medical dismissal for example 

    You may not have much entitlement with it being a new job but have a look at the company policy relating to long term sick   and medical dismissal before making any decision 

    Ask to be referred to oh for work place assessment they can then suggest what options are available 
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