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We want to hear from you: please tell us about your experience of the online community.

Executive Dysfunction

SK_7

Hi I’m Sabena. I have recently discovered that I suffer from executive dysfunction. I had never heard of this before and have done some research and reading on it.

I wanted to know if there is any support/support groups available for this condition?

Thanks

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Comments

chiarieds

Hi @SK_7 - & welcome to the community. I wonder if Headway may be able to offer help. Please see: https://www.headway.org.uk/about-brain-injury/individuals/effects-of-brain-injury/executive-dysfunction/

Ross_Alumni

Hello @SK_7

Welcome to the community, I hope you are well and it's nice to see you join us.

Thanks for making your opening post and telling us about your ED, and I hope that the link shared above can be useful for you. Have you discussed any questions or concerns you have about your condition with your GP / medical team?

I hope you enjoy taking part in the community, and please feel free to have a browse and get involved wherever you'd like. We have a search function in the top right of the page that can be used to search key words or phrases, and we have numerous categories that you can read through and get involved with.

L_Volunteer

Hi @SK_7

Welcome to Scope's forum. It is great to see you have joined us. How are you today? Thanks for finding the courage to reach out to us. I always appreciate how much courage it must take to reach out, especially the first time. How are you feeling about discovering you suffer from executive dysfunction? If you type into Google "executive dysfunction support" you should find quite a lot.

Executive dysfunction is quite common for autistic people and people with ADHD, although it can of course occur by itself too. I am just wondering if there is any specific support you are looking for with this? I am sure quite a few people (including me!) would be more than happy to support you with this but we want to make sure it is relevant and appropriate for your experiences and wishes.

Let us know if there's anything, in particular, we can do to support you

SK_7

Thanks for your responses and for making me feel welcome. I have not discussed my executive dysfunction with my G.P. yet. I keep putting it off because I feel overwhelmed. At first I struggled with the diagnosis and then I researched it and it made a lot of sense. I have had these issues all my life and it has only just come to my attention as my physical difficulties have always overshadowed my cognitive problems. The other issue I have is that I have always masked my executive dysfunction and when my relatives are trying to help me, I can’t explain what help I need. Consequently my relatives are frustrated and sometimes impatient with me.

The support I need is being able to speak with people in the same boat as me , so that I have some coping strategies as I feel very isolated, frustrated and overwhelmed.
Thank you for the link to headway.org.uk - some useful information there and I think I will give the helpline a try as I am fed up of going round in circles.

chiarieds

Hi @SK_7 - thank you for replying, & pleased you feel the Headway link seems promising. I hope you do indeed try their helpline. It's difficult when you get a diagnosis, yet good when it begins to make sense of the difficulties that may have been there all along. Just keep on researching; the more you understand, the easier it will be to talk to your GP when you feel ready. Kindly let us know how you get on.