Hi, my name is Right_sidekick0! I have CP. Is it possible to have fibromyalgia? — Scope | Disability forum
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Hi, my name is Right_sidekick0! I have CP. Is it possible to have fibromyalgia?

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Right_sidekick0
Right_sidekick0 Community member Posts: 2 Listener
edited March 2022 in Cerebral palsy
Hi,
I hope everyone is OK and looking forward to the summer!

 I have cerebral palsy, not diagnosed until 2017.  I have been feeling less and less energised.   Pain, spasms, aches which affects my sleep.   Is it possible to have fibromyalgia?  If so, how do I get a diagnosis? 

 Many thanks. 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    edited March 2022
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    Hello @Right_sidekick0

    Welcome to Scope's forum. It is great to see you have joined us. How are you today? I hope you are well. I am well thank you and looking forward to the summer! I hope you are too. How are you feeling about your cerebral palsy diagnosis? 

    Sorry to hear you have been struggling, especially with energy, pain, spasms and aches which affects your sleep. We do not provide medical advice/diagnosis here. However, you can get a diagnosis by speaking to your GP and being referred to other health professionals if necessary. I hope this helps  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hello @Right_sidekick0 and welcome to the community :) Thanks for reaching our with your query. I am very much looking forward to summer thank you, and the lighter evenings it brings!

    As @L_Volunteer has mentioned, we can't give medical advice or diagnosis on the forum, but I would encourage you to speak with your GP, or your physio or other trained specialist if you have one, about the way you've been feeling lately, and the symptoms you've been experiencing.

    As someone who has Cerebral Palsy (CP), I know that it impacts everyone who has it differently. I often feel more fatigued and tired when I have a few days worth of physical activity, and other times, when I have a lot on my mind, that impacts my energy levels too.

    You might like to read these discussions on the challenges of aging with CP, and Aging and CP which I found really useful for my own perspective, so I hope you do as well. 

    Feel free to browse the Cerebral Palsy Category if you'd like to connect with other members who have CP :) 

    Do let me know if there's anything I've missed, and keep us updated with how you get on.

    Alex
    Online Community Coordinator
    Scope

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