Hi, my name is shelley9! I have CP and I'm looking for new friends
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shelley9
Community member Posts: 20 Listener
Hi I’m new to this I have cerabal palsey and I’m looking for new friends
Comments
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Welcome to the community from me too @shelley9 I'm glad you've joined us! How's your week been so far?
As teddybear12 has said, there are a couple of categories you might be interested in checking out, such as the coffee lounge, and the CP category.
The coffee lounge is the home of our casual conversation and games, and is a great place to chat with likeminded people. Do you have any particular hobbies or interests?
We have many members who live with CP, as you'll be able to see if you visit the CP category. I'm wondering whether you might like to attend our virtual CP Cafe, which we run with CP Sport? I'm sure @Richard_Scope would be able to answer any questions you might have about that. It looks like the next one is on the 9th May. -
Hi @shelley9
I have replied to your messageScope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Hi I’m having a really bad time with my cp today
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I'm sorry to hear that @shelley9. Would you like to tell us a little more about what's been going on today?
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Hi @shelly9. Thanks for reaching out to us. It sounds like you are having a particularly difficult time with your CP at the moment. Would you like to tell us more about what this looks like for you at the moment? We are here for you if you would like to share more with usCommunity Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
Yes please I’m legs go very tight and when this happens I can’t move my legs or do anything for my self and it really upsets me
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@shelley9, do you take any medication to help you manage the tightness?Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Thanks for your informative response @shelley9. I can hear it upsets you that when this happens you can't move your legs or do anything for yourself. Is there anything which usually helps you to get through this?
I think being kind to yourself and giving yourself the rest you need will help but I appreciate this is easier said than done and you may have other ideas. Also, do you have everything you need?Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
I’m on backlofen 4 times a day and I’ve got a medical review at 2pm with my gp on the phone
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Good luck with your medical review at 2pm with your GP on the phone @shelley9. How are you feeling about it?Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
I will am nervous about it incase they have to send me in to hospital depending on the outcome
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Still waiting for my doctors to ring and do my medical review but it’s making me nervous as I’ve missed the phone call twice today
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shelley9 said:Still waiting for my doctors to ring and do my medical review but it’s making me nervous as I’ve missed the phone call twice todayOnline Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
i will there going to ring soon
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Hi, @shelley9
How are you today? Did the doctor call?Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
I am still the same the doctors didn’t call so I’m going to get my Soupport worker to ring them today and find out what’s going on
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I'm really sorry to read that. It is really frustrating, isn't it? But it does give you time to make a list of all of the things that you would like to speak to the doctor about.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
I’m in a a e waiting to see a doctor to see what’s going on
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Hi @shelley9 thanks for updating us, I'm sorry you've had to go to A and E, and I hope that you won't have too long a wait to see the doctor.
Have you got a list of what you'd like to talk about with you? If not, could you make one while you wait?Online Community Coordinator
Scope
Concerned about another member's safety or wellbeing? Flag your concerns with us.
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