Hi, my name is sharonspinkact!

sharonspinkact
sharonspinkact Online Community Member Posts: 13 Connected
in Start here and say hello!
Hi everyone,
I'm Sharon & I'm a mum of 4. My eldest is 35 & the youngest is 13. 
I'm parent/carer for my youngest - she has hypermobile spectrum disorder/ (suspected) hypermobile Ehlers Danlos Syndrome & is awaiting assessment for ASD & ADHD. We're at the start of her EHCP journey too.
I also have hEDS & 1 of my older daughters has HSD.
I live in a small village just inside North Yorkshire but I still say I'm in Leeds, as that's my home town.

Comments

  • Tori_Scope
    Tori_Scope Scope Posts: 12,453 Championing
    Welcome to the community @sharonspinkact! It's great to have you with us :) Thank you for sharing some information about yourself and your family. How are you doing today?

    Please feel free to take a look around the community, and get stuck in. Here are some categories you may be particularly interested in visiting:
    How have you been finding the EHCP process so far?
  • sharonspinkact
    sharonspinkact Online Community Member Posts: 13 Connected
    Thanks for the welcome. I've just had my 1st support call with Navigate so that was really helpful. I'm finding the EHCP process really daunting & overwhelming, to be honest, & very worrying in case we have to go to tribunal if my daughter isn't given an EHCP.
  • Sue_Alumni
    Sue_Alumni Scope alumni Posts: 484 Empowering
    hello @sharanspinkact
    Welcome to the online community.  The good news is that you have come to the right place for lots of support regarding the EHCP process as many of our members will have had experience of this.
  • Tori_Scope
    Tori_Scope Scope Posts: 12,453 Championing
    I'm glad that Navigate are able to support you @sharonspinkact :) 

    I can imagine that'd be a worrying prospect! As Sue has said, we've had quite a few members post about their experiences with EHCPs, so you're in good company. 

    IPSEA are a good contact to save in case you need them in the future.
  • sharonspinkact
    sharonspinkact Online Community Member Posts: 13 Connected
    Thanks, everyone. I've used bits from the IPSEA website & been in touch with SENDIASS too.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    That's good to hear @sharonspinkact I just wanted to add my welcome to the community :)

    Do keep us updated and let us know if we can help with anything!

    Alex

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