Hi, my name is msna!
msna
Online Community Member Posts: 2 Listener
Just diagnosed with PPS. Had polio when I was 1 year old. (69 now). Just want to share things with people going through the same thing
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Comments
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Hi @msna welcome to the forum, thanks for sharing a little about yourself. I don't have your condition but some others may do here, who may reply. I've put a link for you to look at, you may of read it before, but might be worth a look.
https://www.britishpolio.org.uk/
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A warm welcome to the community from me too @msna
You'd be welcome to post about your experience of living with post-polio syndrome (PPS). Getting a new diagnosis can bring about some mixed feelings- how have you been doing since you found out you have PPS?
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Hi Tori, thanks for the welcome. I had my diagnosis on Friday and have felt upset since then. Although we all want a diagnosis, when it comes it does seem to hit hard. For the last 15 years my left side has become weaker and weaker, I thought I was going crazy but deep down I thought it was from the polio I had when I was younger. Sadly we do not have family member who are alive to tell me exactly what happened to me. I am so glad I found this forum and will welcome any support it can offer. Once again, thanks for the welcome0
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I think it's quite normal to feel that way after receiving a new diagnosis @msna, even if you did suspect it.
Of course, we're here to support you whenever you need Many of our members have experience of receiving a new diagnosis, so you're in the right place.0
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