Hi, I'm new here and have had a look around at what seems a friendly and very helpful forum.
I applied for PIP in February and have had my award, finally.
My issues are a combination of arthritis, cysts and ligment damage in my knees resulting in hyper-extension, my knee buckling and constant pain. The problem I have is in getting across the inconsistencies in how/when this affects me.
For example, I can walk the dog to the end of the road, along the green a bit and back again (total is less than 200 metres) but that involves a multitude of stops where I can lift my right leg (the worst one) and rest for around a minute or so. I'd say that even from standing up, getting the dog ready and getting out of the door the most I'd do in one 'stint' would be around 10-12 metres. However, the other extreme is that I can stand up, step one pace and my knee hyper extends or buckles. This results in extreme pain and an inability to walk more than a pace and that's only to get to a seat. This will last for a good few minutes before the pain eases enough for me to consider trying again/moving forward.
The award has accepted I need to use assistance with preparing food, bathing, getting dressed and a few other things around the house and I've the standard award for living. However, they've decided that I am able to walk between 50 and 200 metres in one go and are unable to award me mobility.
I really could do with some help in wording my reasons for requesting MR as I just can't seem to get across the impact this has on everyday life. I can do the weekly shop but I really suffer as a consequence and it still involves a lot of stops getting around a moderately large store (worst case was 28 stops and included my knee giving out 6 times). I frequently have issues where getting to the kitchen results in my knee giving out (pretty much daily occurrence) and cooking can be quite a painful experience.
Any suggestions? I feel they just look at the best case and take that to be their decision, ignoring stops and time taken to perform these distances.
Many thanks