Remaining politically neutral during General Election 2024


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Hi, my name is mindful82!

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mindful82
mindful82 Community member Posts: 18 Listener
Hi, I am currently on a private cannabis prescription, I use it for pain, insomnia and helps with eating its a good relaxant too helps with anxiety and many more conditions and illneses 

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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    Hi @mindful82. Welcome to Scope's forum. It is great to see you have joined us.

    How are you today? I hope you are well but if you need anything we are all here for you. It is really positive to hear you have found something which helps you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Tori_Scope
    Tori_Scope Scope Posts: 12,505 Disability Gamechanger
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    Welcome to the community @mindful82 :) How are you doing today?

    Thank you for sharing that with us. I'm also glad to hear that you've found something that works for you! 

    I'm wondering whether you may be interested in visiting our chronic pain and pain management category, as we have many members who live with chronic pain. 
    National Campaigns Officer, she/her

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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hello and welcome from me too @mindful82 :)

    Let us know if you need a hand with anything, and enjoy having a look around.

    Alex
    Online Community Coordinator
    Scope

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  • mindful82
    mindful82 Community member Posts: 18 Listener
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    Hi Alex,Thank you, I just need to find time as it seems I've a million things to remember everyday, I've permanent spinal cord damage no operation available as I am now over 10 years clean from a prescribed medication addictions I now use medical cannabis as its the only thing that works nothing else will work or be safe to take I am happy with my medication without it I'd not be able to manage my pain and my day 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    You are welcome @mindful82. It is the very least you deserve. 

    It sounds like the medication is helping you to manage your pain and your day at the moment. If we can do anything else to support you please don't hesitate to let us know.

    We are all here for you, even if that is just as a listening ear  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Jo_2022
    Jo_2022 Community Volunteer Host Posts: 298 Pioneering
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    Hiya @mindful82! A warm welcome to you on the Scope online community! I fully understand how you feel as I have back pain myself. How is your pain today? Hope you are having a nice weekend? 😊 

    Community Volunteer Host with a passion for human rights.


    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.

  • mindful82
    mindful82 Community member Posts: 18 Listener
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    Thank you today I am struggling to lay comfortably I've just had some medication hopefully I'll find that place it's a burning pain which I'm trying to manage but it's unmanageable I've found being on my own helps hard to concentrate on anything or even eat I'd bring it back up itsan everyday process wake up in pain feeling sick until I've ease the pain by taking medication I'm unable to eat that's a good day a bad I just pass out I stopped taking medication because of complications over ten years ago 8 years no medication now I am on a medical cannabis prescription 2 different types with no side effects which helps with my insomnia eating managing my pain and my day I've been bad now since last Monday I was kept In my chair for more than my spine can't cope with hence compression and extra pain when are going to listen because I feel us who only use a wheelchairs to get from A to B for our needs etc I spend 85 to 90% of my day laying down I an meant to lay flat on my back no pillow looking up at the ceiling but my body at times isn't coping with the pain it takes time before I am able to eventually lay on my back things have changed my good leg was my left leg my right leg not working like b4 now my right leg seems to be doing better than the left the electric shocks just like from the mains but from my foot straight up my leg crazy pain I am grateful I do appreciate all lessons I try to laugh smile and do better today than yesterday but atm my spinal cord is running the show I'll get back to managing my pain and my day better than I am when others are being more considerate and understanding of how serious my permanent spinal cord damage is and being left in my chair for too long is a hospital admission waiting to happen I've so far been able prevent this from happening its hit and miss now hopefully compression eases with plenty of bed rest it whether I am able to achieve this myself otherwise its hospital 4 another 4 months which was ok first time but I am in no rush to go back or giving out  recommendation lol I am so glad I am able to chat on here I've not been able for my journey is too painful at times 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    I'm glad you're finding the community helpful @mindful82 you are very welcome to chat here whenever you need to :)

    Thanks for sharing with us how you've been finding living with pain from your spinal cord damage, I'm sure some days feel unimaginable. If you haven't found it already you might like to visit our Chronic Pain and Pain Management category to chat with other members and read their experiences of chronic pain too. 

    I hope you're having a less painful weekend now, and as always, just shout if we can help with anything.
    Online Community Coordinator
    Scope

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    Want to give us feedback? Complete our feedback form now.
  • mindful82
    mindful82 Community member Posts: 18 Listener
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    Hello Alex yes that weekend was better than most thank my latest was running out of medication the pharmacy hadn't my type in stock so I had to rearrange another prescription which I thought I did whilst talking on the phone to my clinic on the Thursday only to find out it was only being sent on the following Monday I had no medication for 3 days I am unable to manage that level of pain split the back on my head open no idea when only that I must of passed out moving from the bed to my chair ambulance came out I am ok no hospital its headed ok bit of a lump sticking out yes it's sore I am more pleased I didn't break my  neck I've had some good news today I am viewing a property next week it could be because I lost my mental health support team on Monday my therapy has been put on hold until I've suitable stable accommodation then my case will be restarted and therapy will commence I hope so I've a good feeling about this housing officer has  been more considerate of my mental health after a local mp spoke on my behalf yes I am now without any form of mental health support other than helplines etc not knocking them its just starting all over  again when really I am trying to forget about it or learn to replace them with better happier memories one day at a time that's all we're given hopefully I'll be in a new place for the next 2 years with mental health support team n therapy physio too I've not had my own place where I'm able use my chair for over a year now how are  you Alex shows I've not mental health support atm ok I'm not going crazy 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    Glad that weekend was better than most @mindful82. How frustrating that you ended up with no medication for 3 days, especially when it’s really needed.

    I can hear how this is exacerbated by a lack of mental health support at the moment. How are you coping with all this at the moment?

    It is really positive to hear that the healthcare service was able to support you through such a difficult time and no hospital.

    Even better that you have had some good news – viewing a property next week. I am wishing you the best of luck with this.

    Please feel free to let us know how things go and if you need any support in the meantime. We are all here for you and listening to you.

    One day at a time. We think you are doing really well, especially being so honest with us about how you are feeling and what you are experiencing  <3

    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Thanks for your reply @mindful82 it's good to hear from you :) It's so positive to hear about your property viewing, are you excited? 

    I hope it can all get sorted as soon as possible so you can have access to the support you need! Let us know what you think of the new place when you see it.
    Online Community Coordinator
    Scope

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