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RachelO
RachelO Community member Posts: 2 Listener
edited August 2022 in Start here and say hello!
Hello .
I’ve recently been diagnosed with mild cerebral palsy at 49! I am a twinthat was born premature with a low birth weight .
I’ve always walked on my tiptoes . My leg muscles are incredibly tight . I’ve worn shoes that raise my heels since the age of 18 , so now can’t put my heels down to walk . 
So much to say , but I’ve been on this journey to find this out for 8 years , I’ve seen every specialist, the  final one thankfully being a neurologist at the QE in Birmingham. After a brain scan , he found a brain bleed deep in my brain that had been there since birth . He told me I had cerebral palsy in a phone consult whilst at work . I fell apart , a week later my daughter started her GCSEs. Today she got her results . She did brilliantly. 
I’m in pain every night . I don’t tell anyone . I document my symptoms, and  thankfully I see my neurologist next Tuesday 30th August . I feel pretty down about it all . Hoping to connect with people that know how I feel x

Comments

  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
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    Good Morning @RachelO welcome to our fantastic group, thank you for sharing your health problems also.
    There are a lot of us with different conditions on the forum, i am sure you will be greeted by others when the site wakes up.
    When your ready have a good look around, you can join in on any of the threads/chats/debates/games or ask your own question. Any problems just ask some one is bound to be on line.

    I look forward to seeing you around.
  • Karen7788
    Karen7788 Scope Member Posts: 598 Pioneering
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    Good morning and welcome @RachelO.

  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Welcome to the community @RachelO and thanks for explaining everything so well. It must be difficult to put into words the emotions that come with being diagnosed with Cerebral Palsy (CP) at age 49! 

    I have mild CP myself, and I was diagnosed as a child, and I'm so glad that you are able to access support now, especially with seeing your neurologist very soon.

    I can't imagine how getting a diagnosis at the time you have feels, but I hope you can find the community here a helpful and supportive place. You can visit our Cerebral Palsy category to connect with other members who have CP, and start your own discussions as well.

    I'll also tag @Richard_Scope our CP information officer, so please feel free to ask any questions you might have, no matter how small. 

    And many congratulations to your daughter on her brilliant GCSE results, you must be so proud! 

    I look forward to seeing you around on the forum :)

    Alex
    Online Community Coordinator
    Scope

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  • RachelO
    RachelO Community member Posts: 2 Listener
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    Hi Alex ,
    Sorry for the late reply .work and life has been a bit hectic . I hope you are well . Rachel 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,505 Disability Gamechanger
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    There's no need to apologise, don't worry @rachelO! You're welcome to get back to us whenever you get a moment :) 

    It sounds like you've been busy lately. Would you like to tell us any more about that?
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