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Hi, my name is Old63!

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Old63
Old63 Community member Posts: 21 Connected
Afternoon everyone. 
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Comments

  • Karen7788
    Karen7788 Scope Member Posts: 598 Pioneering
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    Hi @Old63, welcome and 63 is definitely not old. 
  • Old63
    Old63 Community member Posts: 21 Connected
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  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
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    Hello @old63 and welcome to the online community, how are you?

    Would you like to tell us a bit about yourself?
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

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  • Old63
    Old63 Community member Posts: 21 Connected
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    Hi. What happened to me was I had been going to doctors for 3 years complaining about pain in my leg. I gave up going because the pain never went away no matter what they did. 
    29th Jan went to work. Turned my PC on. Then bang it felt like I had been hit with a hammer. I could not see for a few seconds. Said to myself what the hell was that. Then it happened again so I sat down for a while. I went over to the guy who worked next to me. Told him something not right with me. Next thing I remember I was in a ambalance. Paramedic said I had a fit. Pulled myself around phoned my partner to come pick me up. 11th Feb same thing happened only this time it was worse felt nothing like it. Went to A and E. They did some tests. Told me I was getting transferred to another hospital. 3 months later 5 operations leg amputated had a heart attack then I had a stroke. Transferred to another hospital for recovery. Still on 34 tablets a day. Blood clots. 
  • Sandy_123
    Sandy_123 Scope Member Posts: 52,574 Disability Gamechanger
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    @Old63 hi and welcome, goodness me, you've been through alot. That must of been awful for you. Are you on the road to recovery now? 
  • Old63
    Old63 Community member Posts: 21 Connected
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    They stopped giving me physio. As I still have problems with my stump getting infected all the time. So at the moment I'm house bound. Hopefully the council is going to put in some ramps for me and are widening my front door. They took measurements yesterday so fingers crossed. 
  • Sandy_123
    Sandy_123 Scope Member Posts: 52,574 Disability Gamechanger
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    Oh that will be better for you, at least you can get out then
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi and welcome to the community 

    I'm sorry you have been through so much I wanted to teach out 

    I am also an amputee as s result of sepsis from foot infections which I had for 4 years never realised hoe oll I had become.

    It is hard to adjust to this massive life changing event but 5 years on I live quite a full life . Things started to get better when I was housed in a bungalow and got a electric chair 

    I've tried prosthetic but just as I was starting I lost my sight in one eye.causing balance issue and knee injuries but.if you can then try and use one once your infections have sorted 
  • Old63
    Old63 Community member Posts: 21 Connected
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    Bless you I hope you are OK now. I now suffer from epelepsy which is embarrassing as I wet myself. 
    My balance is unbelievable. I did not realise just by having lost a leg how bad it is. I got to close to edge of bed and out I went lol. I now have rails to stop me from falling out.I go upstairs on my bum. It's when I get to the top I need help. I'm not even going to try for a leg. 
    Have you got diabetes? Because what you just said is exactly what happened to my friend I met in hospital. 
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi again 

    Yes I have diabetes had it over 30 years hence the foot problems and vision amongst other effects 

    I used to go upstairs on my hands and knees found that easier and used a foot stool to kneel on then stand to get in chair.
    I live with my son who was only 10 at the time 

    I'm sorry you have epilepsy as well it can't be easy dealing with that on top of everything else 

    I'm usually around here.if you want a chat 

    Have you applied for pip 
  • Old63
    Old63 Community member Posts: 21 Connected
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    Yes I get the enanched rate of mobility. I was awarded 7 points on the daily living. The district nurses said that's not right. So I phoned them up. Now I get the enanched rate of daily living. I'm still waiting to hear back from  ESA to say which group I'm in. I'm still in the assessment phase. All I know is I'm not entitled to the cost of living payment. Or any top ups because I get contrabution based esa.They have done assesment they have had letters from my doctor and my consultant. Which told them what I had done. Yet still awaiting decision 5 months later. 
  • bg844
    bg844 Community member Posts: 3,887 Disability Gamechanger
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    You will get £150 between the 20th September and 1st October if you was in receipt of PIP before 25th May, you’ll also get £400 on your energy bill too.
    It may be worth seeing if you are eligible for Universal Credit too as this would bring another source of income for you plus other things such as access to free prescriptions, eye tests and dental etc. If awarded LCWRA you’ll get an extra sum on top of your basic UC entitlement. 

  • Old63
    Old63 Community member Posts: 21 Connected
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    I all ready get my free prescription as I was medical discharged from the army. I got a war pension but took the lump sum as it was classed as under 20%..That was back in 1980s. UC is a non starter as I have to much savings. Thanks for your Advise
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    It sounds positive that you get free prescriptions @Old63. If we can do anything else to help please don't hesitate to let us know.

    We are all here for you, even if that is just listening to you. Good luck with things  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Old63
    Old63 Community member Posts: 21 Connected
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    You are welcome @Old63. How are you today?  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Old63
    Old63 Community member Posts: 21 Connected
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    Daughter just brought my tea. First time in a car yesterday. So things are looking up. Wife comes home tonight. So I'm having a good day today. Hope you are having a good times also. 
  • swaincott
    swaincott Community member Posts: 4 Listener
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    Hi I’m also 63 how are you getting on
  • Old63
    Old63 Community member Posts: 21 Connected
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    Im doing fine for now. How are you doing? 
  • swaincott
    swaincott Community member Posts: 4 Listener
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    Hi you, I’m useless on tecky things and new to this group so don’t really know who I’m talking to Oops 
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