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jaybird12345 said: Thank you for asking! I'm still disheartened by my telephone Assessment. I have a late onset, rare form of muscular dystrophy. Symptoms suchas drop foot started appearing around 2000 and have progressed over the years. Around 2018 I began panicking as the strength in my shoulders and hands is declining . I've avoided trying to claim any benefits hencefar as I've always thought there are people with worse problems than me. But now I really need financial support to adapt my house, buy an electric chair , pay for chiropodist or even minor things like going to a hairdressers to get my hair washed because I can't raise my arms etc. Thr hospital has provided me with sticks, splints and a rollator. Based on some of the stories I've read I don't think I'll score enough 'points'. My point ia I need the financial support now to help me extend the lengrh of time I can live an independant life Of course I may be stressing prematurely as my Assessor may well have been able to interpret my condition by asking how many bedrooms i have. I'm just going to wait patiently until October .
jaybird12345 said: Thankyou shellbell20 My mother had Meniere's so I absolutely commiserate with you. I remember one 'episode' she desctibed whereby she was literally struck down whilst out shopping and she felt she was in a sort of coma where she knew what was going on around her but couldn't do or say anything.It's an awful condition.I despair of my family. My oldest son got married last year and asked me if I really needed to use my rollator! I'll definately look at that link . Thank you again
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