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Hello, New Here

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emberkid
emberkid Community member Posts: 16 Connected
Hi, I'm new, you can call me Ember.  I don't really know what should be included in this introduction, so I'll just share a little about myself.  I'm 29, female, and my primary disability is autism.  I'm also diagnosed with ADHD, PTSD, and a few other mental health things. 

I've been physically clumsy and awkward all my life, and after meeting with a physical therapist, I learned this clumsiness is due to low muscle tone and ankle joint misalignment, so I will soon be wearing AFOs.  This will be my first experience with being "visibly disabled", and I have a lot of questions for the community about what I might be able to expect.  

Some of my interests include writing, drawing, swimming, and collecting stuffed animals.  I have been working on a comic series about autism for the past five years, and have been writing stories all my life.  My autistic special interest is dinosaurs; I can tell you anything you want to know about them!

I look forward to getting to know others around here, and learning from everyone's experiences!

Comments

  • Jo_2022
    Jo_2022 Community Volunteer Host Posts: 298 Pioneering
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    Hello @emberkid! 👋🏻 A warm welcome to you on the online community! Thank you for this post. It is lovely you have shared your story with us and I enjoyed finding out about you 😊

    How are you today? My younger brother has Autism and he is interested in films, tv shows and video games.

    You may want to have a look at these sections:

    https://forum.scope.org.uk/categories/coffee-lounge


    All the best! Take care 😁 ♾️ 

    Community Volunteer Host with a passion for human rights.


    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.

  • emberkid
    emberkid Community member Posts: 16 Connected
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    Thanks for the welcome guys! I look forward to checking out various areas of the forum and getting to know more people!
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hello again @emberkid and welcome! If I haven't said already I love your profile picture, did you draw it? :) 

    And can you tell us anymore about your comic series? It sounds like you've been working really hard on it. 

    Hopefully you're finding your way around the forum okay, but please ask if you have any questions, or need anything, we're here to help.

    Alex
    Online Community Coordinator
    Scope

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  • emberkid
    emberkid Community member Posts: 16 Connected
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    Lol, thanks Alex!  No, I didn’t draw my profile picture, I found it online and thought it was appropriate 😆

    My comics feature anthropomorphic animals, and center around a ten year old cat named Jacie, who has autism and ADHD like me.  Generally each episode is a segment of a larger overarching story, and there can be several stories within a volume.  I’m currently working on volume five.  

    The stories are really just about the day to day life of a child with autism, either based on my own experiences, or the way I wish things could have been for me growing up.  I’m not an expert artist by any means, but I enjoy it and it passes the time.
  • Sue_Alumni
    Sue_Alumni Scope alumni Posts: 486 Pioneering
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    Good morning @emberkidd and a warm welcome to the community from me too.   What sort of questions would you  like to ask our members ? Feel free to talk about things that are close to your heart and know that you wont be judged  and that our community is friendly and supportive. 
    Take care - it's good to have you on board. 
    Sue
    Online Community Adviser

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
  • emberkid
    emberkid Community member Posts: 16 Connected
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    Thank you for the warm welcome Sue!  I recently asked a question in the mobility aids category requesting tips for a new AFO user, since this will be my first time using any kind of mobility aids.  I'm also interested in hearing from other orthosis users about their daily life experiences with said orthoses, as well as getting input from anyone with hypermobility issues, as I'm in the process of being evaluated for ehlers danlos syndrome. 

    Mostly I'm just looking for people with similar conditions to converse with, since EDS and orthosis use aren't the most common of conditions, at least according to the google searches I've performed.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    You are welcome @emberkid. It is the very least you deserve.

    Hopefully, someone will be able to respond to your question in the mobility aids category soon, if they haven't already. 

    It might be worth posting about the other things you are interested in within the relevant categories too. How are you currently feeling about being in the process of evaluation? 

    Wishing you the best of luck with all this. We are all here for you and you don't have to face this, or anything else, alone if you don't want to  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    emberkid said:
    Lol, thanks Alex!  No, I didn’t draw my profile picture, I found it online and thought it was appropriate 😆

    My comics feature anthropomorphic animals, and center around a ten year old cat named Jacie, who has autism and ADHD like me.  Generally each episode is a segment of a larger overarching story, and there can be several stories within a volume.  I’m currently working on volume five.  

    The stories are really just about the day to day life of a child with autism, either based on my own experiences, or the way I wish things could have been for me growing up.  I’m not an expert artist by any means, but I enjoy it and it passes the time.

    That sounds amazing @emberkid, it can be an incredibly powerful thing as a child to find a story which centre's someone like you, or explores what you are experiencing day to day- something which can be hard to find for many disabled and neurodiverse children.

    Hopefully if ever you do get to share your work it will have a really positive impact :) 
    Online Community Coordinator
    Scope

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  • emberkid
    emberkid Community member Posts: 16 Connected
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    Thank you Alex! I’ve been encouraged multiple times to publish.  I don’t know if my art is publication-worthy, and I’d have to do some reformatting for some of the earlier ones in which I was still learning and hadn’t figured out layout yet, but it would be a lot of fun to get to share my work with a wider audience!
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    The most important thing to ask is would you like to publish it @emberkid? If you would then it's worth a try!  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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